Discussions By Condition: I cannot get a diagnosis.

Hoping for help.....

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: mrhchick
  • January 29, 2008
  • 08:36 AM

I am not even sure where to start, but I am hoping to find some ideas on this site, as the medical professionals I have visited thus far have left me very disappointed.

In July of 2007 I started having severe night sweats, I didn't think much of it until I started having to change my shirt during the night. I set up an appointment to see my family doctor. He drew blood and started running tests for diabetes, thyroid, etc. That was in August and we set up an appointment to recheck in one month. In early September I was at work and started feeling strange. After a few minutes of just not feeling right, I started having tremors in my arms and hands, extreme dizziness, fuzzy vision, muscle weakness (almost not being able to stand),profound headache, and an inability to think and communicate. My mother rushed me to the ER, and I was treated for dehydration. The Doctor seemed to think I should be just fine within a few hours of leaving. I wasn't. Over the next few days, things grew progressively worse. I couldn't stand due to the dizziness, my legs were barely able to support me, and I slept a lot. I went back in on Monday morning and was told that I had an ear infection. When I still hadn't gotten any better, I was back in the ER. This time they finally did a CT and found sinusitis. I was refered to ENT, while waiting for that appointment, I had several episodes of incontinence, in addition to sleeping 12-18 hours a day. I was given round after round of antibiotics. My family dr refered me to a nuerologist who ran an MRI and EEG. He found nothing in either of these tests. (we were convinced it was MS) All of the symptoms continued thru late October, I had gotten to the point where I was using a cane to walk, and then a wheelchair. Until one day in October, I woke up from a nap and I was was pretty much full stregnth, the only remaining symptom was the headache. It starts in the front of my head and then spreads out like lightening to my temples. This was attributed to the sinusitis and since the antibiotics weren't doing anything, the ENT decided to do surgery. That was in late Nov. Surgery went well and I didn't have any complications. About three days after the muscle weakness and dizziness disapated in late Oct, I devolped digestion issues. I was having problems with "dumping" as the doctor called it. I could eat something and within ten minutes would have a very strong and violent need to use the bathroom. This was attributed to the months of antibiotics. I was given Flagyll and told to eat yogurt by my family doc. (Forgive me, I know this is a long drawn out story...) The rest of the year went alright, I was still having occasional headaches, EXTREME tiredness, and the digestion problems. In late Dec, I had some small tremors in my arms and hands again. I went to the Neurologist again and he ran blood work to check for Lymes, Lupus, and other things. All tests came back normal. He put me on propanolol. Since then I am still having problems with headaches and am very tired. I have had one more acute episode of tremors, vision problems, etc. Again my family rushed me to the ER. After five hours of sitting in the er and not being seen, I walked out.

I am at a loss as to what to do and where to turn for answers. All of the tests that my family dr, neurologist, and ent have run have come back normal. I am still having headaches that interupting my ability to work about three days a week. I have had three rounds of Flagyll for the digestion issues, and they seem to work for a 7-10 days, but the dumping returns. I am still extremely tired. I will work an eight hour shift and come home and nap for four hours, be up for two, and then sleep all night. It is almost impossible for me to stay awake. This has never been a problem for me before. I am 25 years old and I spend my days working and sleeping. I am married and my relationship has suffered, as I am very irritable. I am afraid to drive home some days as I don't want to fall asleep driving. I am afraid to eat out as I know I will need to use the bathroom immediatly (sometimes part way thru a meal). I am at a loss as to what more to do, as every time I seek diagnosis and treatment, nothing is solved. If anyone has an idea on what more to do, what might be wrong with me, anything helpful after reading my story, I would be thrilled to hear it.

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7 Replies:

  • I have similar sysmtoms, I do not have tremors, but I am 60 years old. I am not able to work, I too am afraid to drive.I am suffering for last 10 years.I have had bypass surgery 8 tears ago. I am told I my heart is in good condition. The pressure in my eye are good. I get checked by ny endocrinologist,and ophthalmologists, and cardiologist in addition to my primary care physician. I have been to psychologist, sleep disorder specialist and neurologist. I am almost out of all specialists. I used to be a software specialist but had to give up because of travel. I own few business to keep me occupied. I am married to a wonderful wife ( a physician), and a beautiful well settled daughter.Financially we are well off and very social in our community and society. I am diabetic, sugar is controlled with medicine Glucophage 1000mg 2 times day.I also take vytorin. My fasting sugar is in the 90. I am tired after 10am in the morning. I take a 2-3 mile walk at 8am.I can not focus, my eyesight to read after 10am. I have checked eyesight; they can not find any problem.I have idiopathic sleep disorder; I can sleep 7-8 hours in the night and sleep at any time of day for 2-3 hours.My weight is steady for last 40 years at 142lbs. No alcohol, no smoking, Lacto vegetarian. Occasional cup of coffee.i have seen neurologist and endocrine doc. all test are negative for thyroid and mysthenia gravis.The weakness is making routine work difficult.Need help!!!!!!
    rajicon 4 Replies
    • January 29, 2008
    • 11:29 AM
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  • I hate that I'm starting to sound like a parrot, but you need to do a course of probiotics.http://forums.wrongdiagnosis.com/showthread.php?t=25322flagyll not only kills bad bacteria but good also, hence your digestive problems. yogart has good bacteria in it but it just ain't enough to make a difference for you. Probiotics with acidiphulis and bifidobacterium will.As you can see by the thread it can be far reaching to. Regards.
    TerryG 120 Replies
    • January 29, 2008
    • 00:41 PM
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  • I too have most of your sysnptoms. I have also posted here. I will forward any response i get.I am suffering for last 10 years.I have had bypass surgery 8 tears ago. I am told I my heart is in good condition. The pressure in my eye are good. I get checked by ny endocrinologist,and ophthalmologists, and cardiologist in addition to my primary care physician. I have been to psychologist, sleep disorder specialist and neurologist. I am almost out of all specialists. I used to be a software specialist but had to give up because of travel. I own few business to keep me occupied. I am married to a wonderful wife ( a physician), and a beautiful well settled daughter.Financially we are well off and very social in our community and society. I am diabetic, sugar is controlled with medicine Glucophage 1000mg 2 times day.I also take vytorin. My fasting sugar is in the 90. I am tired after 10am in the morning. I take a 2-3 mile walk at 8am.I can not focus, my eyesight to read after 10am. I have checked eyesight; they can not find any problem.I have idiopathic sleep disorder; I can sleep 7-8 hours in the night and sleep at any time of day for 2-3 hours.My weight is steady for last 40 years at 142lbs. No alcohol, no smoking, Lacto vegetarian. Occasional cup of coffee.i have seen neurologist and endocrine doc. all test are negative for thyroid and mysthenia gravis.The weakness is making routine work difficult.Need help!!!!!! Post a comment.
    rajicon 4 Replies
    • January 29, 2008
    • 00:44 PM
    • 0
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  • Infections – Classically, tuberculosis is the infection most commonly associated with night sweats. However, bacterial infections, such as endocarditis (inflammation of the heart valves), osteomyelitis (inflammation within the bones), and abscesses all may result in night sweats. Night sweats are also a symptom of AIDS virus (HIV) infection. Have all these things been checked?
    rad-skw 1605 Replies
    • January 30, 2008
    • 00:17 PM
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  • I think RAD is on to something. When I began to read everything, it seemed to be a virus attacking the young lady. Read through all of this for some good answers:http://www.aafp.org/afp/20030301/1019.html be sure to read the "evaluating night sweats" charts"...he has what should have been the proper procedure in your case...it could be lung or heart, GERD related according to that information...I second the probiotics...
    Monsterlove 2921 Replies
    • January 30, 2008
    • 07:05 PM
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  • I do not have night sweat, but thanks
    rajicon 4 Replies
    • January 31, 2008
    • 04:24 PM
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  • Thank you everyone for the ideas. The doctors have run several tests to look for infections. This included HIV, Mono, TB, and they also checked for any chronic issues that would cause inflammation of my blood cells. So far everything has been normal. I have been taking an accidophillus supplement since I was first started taking antibiotics, but I will do some more searching and see what the pharmacist can recommend. Thank you again for the suggestions.
    mrhchick 1 Replies
    • January 31, 2008
    • 08:56 PM
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