Discussions By Condition: I cannot get a diagnosis.

hit by car body changing please read!!!

Posted In: I cannot get a diagnosis. 20 Replies
  • Posted By: reese7194
  • August 13, 2008
  • 11:16 PM

hello. i will try to keep this simple

-october 30th hit by car crossing street. thrown fifteen feet landed on left buttocks. go to ER i am "fine"
-six weeks later find i have fracture in tibula / fibula
-develop hump left side of back
-later find out have protrusion C5-C6
-later right leg is now longer and right hip is longer
-still left side back is different than right
-right shoulder begins to fall more
-walking becomes strange. walk becomes jerky.
-hips / pelvis rotates. if my lower body pointed straight upper body is pointed over to left
-legs / walk continue to get worse. can walk for 15 minutes only.

been to stanford physical medicine. they said they could not help and think it must be brain damage. they send me to neurology for TBI. neuro checks me out for two hours. can not walk with one foot after the other. can not to many of tests. but they do not do any scans of brain.

finally the head guy comes in and says "you don't have a disease" i wasn't particularly pleased since i was perfectly healthy until hit by car.

other doctor tell me i should now see a "general practioner"

i have been to UCSF as well. go back to stanford in two weeks to physical medicine.

neuro had me walk up and down the hall on video. i thought they believed me.

when the other doc came in, like other doctors, he did the feeling tests on body. i feel everything on my body. nothing numb. then finds out i take lithium. blames the gait like walk on lithium and leaves.

this is ***l like you all know. one thing i am missing is a person to come with me who is a parent or a powerful figure. i have gone alone not by choice. i have been humilated more than once.

one nice doctor said he had no idea what it was. the main issues are

-rotated pelvis. quite a bit
-leg length right leg
-hip raised on right side as well as leg
-and strange movement

it has progressed and continues to progress. now my legs shake when i walk at times.

why would they not give me a TBI test. i tole them that was why i was there. "you don't show any signs" i was told.

-my eyes hurt from writing at this moment from computer screen
-i have no sense of time. of day, month, time all confused.

all this messes with your head so much you feel like you are a phony or are furious.

i never though that my past psychiatric issues would conflict with being hit by a car crossing the street at 20 mph and flying 15 feet in the air. i was lucky to be alive.

only one doctor has asked what happened

thank you.sorry so long

Reply Flag this Discussion

20 Replies:

  • try an orthopedic doctor, it sounds like your problems are bone related
    qwertyuiop123 453 Replies
    • August 26, 2008
    • 00:57 AM
    • 0
    Flag this Response
  • thanks but i've seen like six. they seem to only be interested in separated shoulders and acl's. i have nothing broken so i'm pretty screwed.i think i've fallen into some strange category where only two people so far have seen and understood what is happening and seen me degenrate over the last six months. but they openly said i need to go to a university hospital. so i went to stanford. and told by physical medicine that it wasn't something they could help with and it was or seemed like brain oriented and had me get tests.i just hope that someone will at least tell me what is going on and do some tbi brain stuff. the neuro department didn't do a ***n thing but tell me i didn't have a disease. which is great but it 's not the issue.
    reese7194 13 Replies
    • August 26, 2008
    • 01:29 AM
    • 0
    Flag this Response
  • You need to audio record your doctor's visit. Get the bastards on "tape" . Get an electronic usb audio recorder. Memorize this line "So you are saying nothing is wrong with me? Put it in writing" Demand a copy of your medical records so you have it writing as well. They NEVER say nothing is wrong with you on the records. They in generalities so they don't look bad. If you sue them, it will bite them in the **s. When you finally find a doctor that finds out whats wrong. SUE THE other doctors that said nothing is wrong with you. Most doctors are morons. You will have to do your own research. We will try to help you with that.
    niceguy 22 Replies
    • August 26, 2008
    • 02:04 AM
    • 0
    Flag this Response
  • thank you so much for what you wrote. you have no idea how much i appreciate the words you used and even though it feels like this doesn't happen to people - that it does. even though i know and knew that - but it goes away as people just ignore you more and more and you continue to degenerate.thanks againi go back to stanford tomorrow. so i am to late for the audio but i will do everything else you said.the irony is i was naive enough to think if someone is hit by a car walking across the street that you don't get treated with anymore belief or care.thanks again
    reese7194 13 Replies
    • August 26, 2008
    • 04:47 AM
    • 0
    Flag this Response
  • Have you checked a chiropractor (a good one)? I wasn't reading very carefully (trying to find info on photosensitive epilepsy atm) but some of the stuff you were putting out there, especially in the order you put them... Sounds like undiagnosed spinal problems. Believe it or not, it can cause a cascade effect when your spine is funky. Muscles get stretched weird, sieze up, other muscles stretch weird to adjust for it, vicious cycle and all that. Getting hit by a car would definitely screw your spine up too. If your head doesn't clear out with some chiropractic work, you'll want to get that checked separately. Just remember, EVERYTHING in your body is moves, works and responds/adjusts to outside and inside stimuli through nerves. ALL of your nerves run up through your spinal cord to your brain. Similar to a computer, if the wiring to the hard drive gets screwed up you may think you're having problems with your memory (all your files are corrupted, you got a computer virus etc..), but your real problem is the wire is messed up. The hard drive is just fine (except that it can't "talk" to the rest of the computer.). Fix the wire and voila' the hard drive is "fixed".
    Anonymous 42789 Replies
    • August 26, 2008
    • 05:21 AM
    • 0
    Flag this Response
  • I hope today's appointment goes better than the others have, let us know how it went
    qwertyuiop123 453 Replies
    • August 26, 2008
    • 04:25 PM
    • 0
    Flag this Response
  • thanks man.in a funny ****ed up way they went as well as i had hoped. it's thought that i have brain damage / tbi / disorder is causing my body to change.why it is only continue to degenerate is not yet known. i asked if it could be spinal compression and he said that is a possibility. i think it's spinal compression. these are new terms for me.in conclusion. i am being sent from stanford to another place. hopefully it will be taken as somewhat urgent.so after all this time. i guess the doctors should have thought of something as strange as an MRI of the brain, or one of the tons of tests you can do for the back for spinal compression. if that is the right term. since i had a myriad of similiar symtomsbut i really find it kind of ... choose word that in ten months not one doctor took an mri of my head or a ctscn.but i guess they don't have to.i still find it odd that it took ten months to have someone think of me getting my brain tested? that someone wouldn't do an brain mri just in case?but thanks. reallhy
    reese7194 13 Replies
    • August 27, 2008
    • 04:34 PM
    • 0
    Flag this Response
  • I highly recommend trying acupuncture to help get your body and brain back on track. Acupuncture is fantastic for post trauma and injuries of all kind - including brain trauma/stroke/etc. I cannot recommend this treatment highly enough - acupuncture works! Best wishesDOM
    acuann 3080 Replies
    • August 27, 2008
    • 06:01 PM
    • 0
    Flag this Response
  • thanks it is somethng i have done n the past that worked but for other thins such as excema and such.the thing, might be stupid, that has been holding me back is finding out what is wrong. then once i do i can choose what i feel is best.hopefully that makes some sense?actually there have been strange kind of embarrassing physical symtoms that came about during this. and i went to an acupuncture for them because going to a doctor would have been a marry go round. also doctors would not understand what they are related to.thanks. curious if what i said makes sense to you?
    reese7194 13 Replies
    • August 27, 2008
    • 06:10 PM
    • 0
    Flag this Response
  • I understand the need to find a western allopathic diagnosis, but keep in mind that you may not get a definitive one. It is not uncommon to develop autoimmune dysfunction after a trauma like you experienced. I think that may be coming into play here causing your brain to "misfire". Scalp acupuncture in particular is so very helpful. My only point is that acupuncture is most successful the earlier you treat symptoms. Waiting many months for a diagosis just makes things harder to treat. I also don't know what western treatments other than drugs like gabapentin or oxycodone would be suggested. IMO getting relief with acupuncture will not rule out eventually getting a diagnosis from a western doc. Also want to mention that your hx of psychological issues along with spasms and gait disturbance may point to a B12 deficiency. Have you had your B12 levels checked and do you know what they are? Best wishesDOM
    acuann 3080 Replies
    • August 27, 2008
    • 06:23 PM
    • 0
    Flag this Response
  • Could those symptoms have had anything to do with spinal compression or brain damage or whatever or is that something different?
    qwertyuiop123 453 Replies
    • August 27, 2008
    • 06:58 PM
    • 0
    Flag this Response
  • Complications of Crohn’s Disease

    Recognize the risks associated with Crohn’s disease.

    8 Surprising Facts About Cholesterol

    Did you know that one in six US adults has high cholesterol?

  • well from the little i know i would say absolutly not. i knew nothing about the many things or types of things spinal compression can fall under. some of them are far from good.i think at this point the brain damage seems to be pretty much something that is happening.i think the other question which i asked stanford about is what you are asking and his answer was "yes possibly"now hopefully when i go to this new place this will be looked at. because from what i have read there are myriads of tests for all of this.do you know anything about this? there are many other terms i know little about or very little about that can be cause by trauma like the term myelpathy or even stenosis.oh i want to tell anyone who finds all this pedestrain and annoying that i understand.basically all i know is what i have found. i could literally feel my body changing for the last six months. now maybe that is impossible. but at night asleep i would feel my pulse pounding like it wanted to come out of my back. things that are not believed. such as one leg length and eventually now the shaking of the legs and the right leg being incredibly weak to the left. etc etc etcmentally the biggest thing is memory. past and present. but mainly this thing that is hard to explain. there is the common saying "i have no sense of smell" i have something like "i have no sense of time" days, months, time, it's like there is almost none. it's strange.thanks. i can't tell how much i appreciate it.
    reese7194 13 Replies
    • August 27, 2008
    • 09:08 PM
    • 0
    Flag this Response
  • in terms of acupuncture and what you mentioned. i have had tests done because of doctors back east. the B12 test done some months back. but for a reason that is not logical. i really followed my instinct of what to do. maybe it is dumb. i am not one to say.but for the many people who told me to only see a great chiropracter before i knew there were some disc issues in my neck and lower back. to me it's kind of basic common sense, even without any prior knowledge. you don't want to do taht.the other issue i have with acupuncture. is finding the right person. even when i went when i got sick in a strange way. there was the need for them to massage my pelvis which only causes pain and actually worsens it.but i understand what you are saying. do i wait till the very end and find out nothing can be done. but i see the place tomorrow that specializes in this stuff. and as long as they to tests on my head and check out the spine i will feel relieved. there are so many different tests i don't know what should be done and if they do not do one you make sure they do.thanks though.
    reese7194 13 Replies
    • August 27, 2008
    • 09:14 PM
    • 0
    Flag this Response
  • i think you are right about the drugs. only irony is i was never given any. they never though my situation was painful enough to even give me something as ridiculous as tylenol 3. and of course i couldn't ask for any because then i would have just been some "junkie" looking for pills. though i am no way anti opiates or pills. i am in now way against people using drugs that are "illegal'personally i wouldn't know but of course when people get to a certain point pain managment is used. and to be honest from the people i have known or spoken with that in itself is ***l. being treated like a child and never given what you obvious need.but that is a separte subject.
    reese7194 13 Replies
    • August 27, 2008
    • 09:17 PM
    • 0
    Flag this Response
  • but for the many people who told me to only see a great chiropracter before i knew there were some disc issues in my neck and lower back. to me it's kind of basic common sense, even without any prior knowledge. you don't want to do taht. I may of taken this part of your post the wrong way but a "good" chiropractor IS very careful. What Ive found is that they often will not even really go and work on ones back if one has bad issues.. before they see xrays and stuff. And then they will work according to those and what they can feel when they examine. When i went to a chiro.. the chiro gave me a referal to the hospital for xrays first. A good chiro can read xrays and that much better than doctors.... (as they have much more experience as their expertise is all the bone stuff................. I myself was once rushed to hospital.. I was basically paralized (couldnt move for pain and was going unconcious when I did move.. it felt like something was being compressed in my back, I could feel something very very wrong.. like my back was weak and going to cave). Doctors couldnt figure it out, scans showed ostero arthritis (in 3 places which I shouldnt have at my age) and slightly bulging disk..but nothing which should of been giving me the effects I was getting (screaming like a burns victim on any movement of my spine).. the problem was one my chiro would of fixed thou!! had doctor allowed him to come into the hospital. After not being able to move in hospital bed for 5 days, doctor/nurse forced me to move again.. on that occassion as they'd been trying to attempt to get me to roll out of bed with support, while keeping my spine straight .. I ended up passing out yet again.. they missed catching me as I passed out too quick.. so i ended up unconsicious on the hospital floor, I awoke to find I'd been put back into bed and was on oxygen but amazingly.. my back was fine again. Hitting the floor like I did when I fainted, obviously put something which was very wrong back in the right place, (which the doctors themselves couldnt find on xrays). (At that point I just left the hospital 2 days later, against the doctors advice so they just rang me while I was home for several days. They wanted me to stay cause of the epsoides of unconsciousness on moving my spine. but hey.. i was fine, my back was fixed when I went down (only slight pain after that which I then went to chiro for) so I wasnt about to stay there any longer.. sooo glad to get out of the place).. moral of my whole story.. is sometimes the doctors just dont know!! and Next time if it happens again.. even if it is against my doctors orders.. I WILL be ringing my chiropractor who always seems to be able to help my back in the past.
    taniaaust1 2267 Replies
    • August 28, 2008
    • 01:53 AM
    • 0
    Flag this Response
  • It makes complete sense that you want to know what is going on with your body. However, an acupuncturist does not look at the body in the same way as your other doctors. Having or not having a diagnosis from a Western Doc will not matter too much in terms of how they treat you. They will make their own diagnosis based on the principles of Chinese Medicine that have been around for thousands of years. By all means, see everyone who can help you, but you might want to see an acupuncturist for these symptoms sooner rather than later. It is soooo much easier to treat an issue that has come up recently than one a patient has had for a while. Best of Luck.
    Anonymous 42789 Replies
    • August 28, 2008
    • 09:49 PM
    • 0
    Flag this Response
  • It makes complete sense that you want to know what is going on with your body. However, an acupuncturist does not look at the body in the same way as your other doctors. Having or not having a diagnosis from a Western Doc will not matter too much in terms of how they treat you. They will make their own diagnosis based on the principles of Chinese Medicine that have been around for thousands of years. By all means, see everyone who can help you, but you might want to see an acupuncturist for these symptoms sooner rather than later. It is soooo much easier to treat an issue that has come up recently than one a patient has had for a while. Best of Luck. Absolutely true! Please visit www.nccaom.org or www.acufinder.com to find a qualified practitioner near you. DOM
    acuann 3080 Replies
    • August 29, 2008
    • 04:21 AM
    • 0
    Flag this Response
  • reese7194.. your situation sounds awfully familiar to many undiagnosed/misdiagnosed Lyme patients (i am one of them).a car hit is trauma and the body processes both trauma and stress as STRESS. this stress caused by trauma can trigger dormant bacteria and/or parasites in your body and wreak havoc on your Central Nervous System (CNS).chiro & accu care is great and i swear by it, however, if your condition is beyond the abilities of the best specialists on the planet, then move on immediately. your you mentioned you wanted TBI testing.. what are you referring to?it took me nearly 3 yrs to get out of this crap (bedridden w/ CFS, major Neuro issues, muscle weakness, poor sleep, etc). recovery would have been much sooner if Drs had listened, considered my lifestyle and background, and tested me for Tick Borne Illnesses earlier (at IgeneX), AND understood what the results represented and the nature of the beasts (all TBI's).i am happy to share my ordeal with you anytime.. just know there is hope but you must stay the course and demand the studies YOU think are necessary (mind & gut). i suggest you get a brain SPECT and an MRI.ultimately YOU are responsible for your health, not your Dr. Drs are simply aides who provide the tools. find a Dr who is willing to order the studies you request.. your quality of life depends on it. choose wisely and move on swiftly and willingly. i saw 35+ before i got what i was looking for.read my story on this forum for details.. search sonicbmx. you can find more of my posts on Lymenet.org using same username.good luck and all the best..--sonicbmxsonicbmx@sbcglobal.net
    sonicbmx 44 Replies
    • August 29, 2008
    • 06:26 PM
    • 0
    Flag this Response
  • I noticed a couple other people mentioned this also but it really sounds like a spinal injury the discs in your neck that are out could be touching your spinal cord, which is never good. I went through a similiar situation. I had a multitude of symptoms that progressed over time such as dizziness, seizures, a change in my gate, numbness in R leg, and a bunch of other symptoms. Once I go into nursing I heard about the spinal thing and had it checked out and sure enough my slipped discs in my neck were touching my spinal cord just barely buit it is enough to cause a lot of problems... Well good luck...
    JCLKRELLE 1 Replies
    • August 29, 2008
    • 07:53 PM
    • 0
    Flag this Response
  • wanted to thank everyone. curious about the spinal tests that finally helped you after... i don't know so longthe place stanford sent me to said my physical symtoms were caused by TBI. except that it isn't common for TBI symtoms to progress over time.spoke to my PT about this. she said she has never seen someone with TBI to get continue to get worse.so ...either way i am not going to just leave things like that. they are going to do some tests as well.hope some or all are doing okay. thanks though for writing back. that was very cool
    reese7194 13 Replies
    • August 30, 2008
    • 05:12 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.