Discussions By Condition: I cannot get a diagnosis.

Hip problems and nobody can tell me why

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • August 5, 2008
  • 05:01 PM

I'm 26 but have a REALLY long history of back problems stemming back to having Neuroblastoma (tumor in my spine) cancer as a child. I also had scoliosis and have had rods in and out 3 times. They've fused my spine and I've broken my spine and now have rods again. There's a lot more that goes into that, but it would take forever to explain.
The last surgery I had was 8 years ago and that was when I broke my spine and had the rods put back in. Well, now, for the past 3 or 4 years, I've been having hip pain and I'm assuming it's because I can't use my spine for any bending so my hips and knees get all the work. It's been a constant thing, but just one of those things you deal with on a daily basis and almost get used to.
About a year ago, I was camping and we were going fishing and were hiking up this mountain and I stepped wrong and my leg twisted weird and it felt like my hip completely popped out of place. I then lost control of my leg and fell and it felt like it popped back into place. Needless to say, it was VERY painful, and then I had to walk over a mile back to the car. I just HAD to be the tough girl and not go to the doctor, but here I am a year later and I'm in a lot more pain now. I've gone to a joint doctor who said the xrays looked ok, but I needed an MRI where they inject dye into my hip joint to see if there's a tear or something. He said the MRI looked great and there was nothing wrong and that I should just take some anti-inflammatory and maybe swim. That's great to hear and all, but I'm still in pain. I'd gone to an ortho doc to check out my back and he said the hardware and everything looks good.
So why the heck am I hurting so bad?! At first I thought it was because I started exercising again, because it would get like 100 times worse after I walked for an extended period of time. But, it's been like 3 or 4 months that I've been exercising and it's never gotten any better. In fact, it feels like it's getting worse because now it's moving to the back of my hips and lower back.
If there's anyone out there who could please help me, I'd greatly appreciate it! I'm losing faith in doctors and I'm out of PTO to leave work to do test after test and see doctor after doctor. I just need a solution!

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