Discussions By Condition: I cannot get a diagnosis.

Hip problems and doctors don't know why

Posted In: I cannot get a diagnosis. 9 Replies
  • Posted By: Brookiepoo81
  • August 5, 2008
  • 05:09 PM

I'm 26 but have a REALLY long history of back problems stemming back to having Neuroblastoma (tumor in my spine) cancer as a child. I also had scoliosis and have had rods in and out 3 times. They've fused my spine and I've broken my spine and now have rods again. There's a lot more that goes into that, but it would take forever to explain.

The last surgery I had was 8 years ago and that was when I broke my spine and had the rods put back in. Well, now, for the past 3 or 4 years, I've been having hip pain and I'm assuming it's because I can't use my spine for any bending so my hips and knees get all the work. It's been a constant thing, but just one of those things you deal with on a daily basis and almost get used to.

About a year ago, I was camping and we were going fishing and were hiking up this mountain and I stepped wrong and my leg twisted weird and it felt like my hip completely popped out of place. I then lost control of my leg and fell and it felt like it popped back into place. Needless to say, it was VERY painful, and then I had to walk over a mile back to the car. I just HAD to be the tough girl and not go to the doctor, but here I am a year later and I'm in a lot more pain now. I've gone to a joint doctor who said the xrays looked ok, but I needed an MRI where they inject dye into my hip joint to see if there's a tear or something. He said the MRI looked great and there was nothing wrong and that I should just take some anti-inflammatory and maybe swim. That's great to hear and all, but I'm still in pain. I'd gone to an ortho doc to check out my back and he said the hardware and everything looks good.

So why the heck am I hurting so bad?! At first I thought it was because I started exercising again, because it would get like 100 times worse after I walked for an extended period of time. But, it's been like 3 or 4 months that I've been exercising and it's never gotten any better. In fact, it feels like it's getting worse because now it's moving to the back of my hips and lower back.

If there's anyone out there who could please help me, I'd greatly appreciate it! I'm losing faith in doctors and I'm out of PTO to leave work to do test after test and see doctor after doctor. I just need a solution!

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9 Replies:

  • Do You Have Any Other Symtoms Other Than Pain Such As Weakness, Numbness, Tingling, Swelling, Or Stiffness? How Is Your Rom (range Of Motion)?
    Anonymous 42789 Replies Flag this Response
  • Definitely stiffness. On my left hip, in the groin area, it catches sometimes or if I turn weird it hurts catches and pops and hurts like heck. It's basically a lot of stiffness and a constant, dull, pain. As far as range of motion, it's ok except if I'm laying down and pull my left leg up to my chest and turn my knee outward... hard to explain and I don't know the correct terminology to explain it. But when I do that I can't turn it all the way out like I used to, it catches again and it's painful. The right leg is better, but still can't do it all the way.
    Brookiepoo81 4 Replies Flag this Response
  • well It Really Sounds To Me Like You Have A Hip (acetabular) Labral Tear. Maybe U Should Get Examined For That. If Not I Could Think Of... 1. Traumatic Bursitis 2. Hip Tendinitis Or 3. Pain Assoiciated With Your Yrs Of Back Pain. Let Me Know If U Have Any Other Symtopms Even If They Arent Associated With Ur Hip Directly. Hope This Was Of Some Use. Hope U Get Better.
    Anonymous 42789 Replies Flag this Response
  • I'm 26 but have a REALLY long history of back problems stemming back to having Neuroblastoma (tumor in my spine) cancer as a child. I also had scoliosis and have had rods in and out 3 times. They've fused my spine and I've broken my spine and now have rods again. There's a lot more that goes into that, but it would take forever to explain. The last surgery I had was 8 years ago and that was when I broke my spine and had the rods put back in. Well, now, for the past 3 or 4 years, I've been having hip pain and I'm assuming it's because I can't use my spine for any bending so my hips and knees get all the work. It's been a constant thing, but just one of those things you deal with on a daily basis and almost get used to. About a year ago, I was camping and we were going fishing and were hiking up this mountain and I stepped wrong and my leg twisted weird and it felt like my hip completely popped out of place. I then lost control of my leg and fell and it felt like it popped back into place. Needless to say, it was VERY painful, and then I had to walk over a mile back to the car. I just HAD to be the tough girl and not go to the doctor, but here I am a year later and I'm in a lot more pain now. I've gone to a joint doctor who said the xrays looked ok, but I needed an MRI where they inject dye into my hip joint to see if there's a tear or something. He said the MRI looked great and there was nothing wrong and that I should just take some anti-inflammatory and maybe swim. That's great to hear and all, but I'm still in pain. I'd gone to an ortho doc to check out my back and he said the hardware and everything looks good. So why the heck am I hurting so bad?! At first I thought it was because I started exercising again, because it would get like 100 times worse after I walked for an extended period of time. But, it's been like 3 or 4 months that I've been exercising and it's never gotten any better. In fact, it feels like it's getting worse because now it's moving to the back of my hips and lower back. If there's anyone out there who could please help me, I'd greatly appreciate it! I'm losing faith in doctors and I'm out of PTO to leave work to do test after test and see doctor after doctor. I just need a solution! I recognise the symptoms you describe.. What kind of work do you do?? In my case environment turned out to be a major factor in my hip problem (now almost resolved) which sounds similar to yours by the way you describe the pain. I would like to explain how I came to the realisation of what was causing my problem and will try to condense it - it's a big topic! This is more about WHY you have the problem - not treating the symptoms. I used to be a professional singer and pianist in Europe. Suddenly one day walking around Hamburg, I stopped in my tracks and couldn't move - not even a step. Painful left hip joint/groin! I bent slowly over with my chest to my thighs and it seemed to ease it and go back into place.. I was very perplexed because I really had a great diet and was very sporty and fit - but I'd also broken my leg skiing a few years before and it was worse than it should have been. The hip got worse, and eventually I couldn't walk after sitting at the piano for 45 min - I'd have to stand there and pretend I was rearranging my music until I could take a step. I used to get stuck in the car too - would try to get out, and then couldn't take a step for a minute or so. As you say, VERY painful. Seemingly unrelated (but not) I had a problem with my gums and to a lesser degree with my teeth - gingevitis, abcesses.. Spent a fortune on dentist bills. My hygenist always said that my gums didn't look like they belonged to me because I looked so healthy. (This IS going somewhere!) 1 year ago I was performing with a normal mike instead of my ususal headset. A mike is always very close to or touching the lips. Within 3 days I had mouth cankers (for the first time in years), and the light bulb went on. It was the electromagnetic fields from the microphone which were causing my gum problems (other singers I know have these kind of problems, as well as cold sores, etc.). EMF's also interfere with the way the body uses calcium, which keeps the body alcaline as well as obviously being important for the bones. The headset was far enough away that it didn't cause cankers, but caused the other problems. I havn't sung for 9 months, and have NO gum/teeth issues. My hygenist almost cried (with happiness!) at my last cleaning. I realised my hip problems was due to sitting over/beside a power transformer and close to an amplifier for 5 hours/night, 6 days/wk - pretty high EMF and radiation exposure. I've ALMOST got rid of the problem now through some basic supplements, environmental modifications in my home, and some alcaline producing natural energy products to support bone growth.. it's about 80% better and I never get "stuck" any more. I discussed this with other pianists/singers who had been doing this for years, and they all had health problems - digestive stress and mainly hip problems.. When we are exposed to these acidic fields, the body of course starts to become acidic and in order to alcalise itself, it pulls calcium out of the bones in order to survive. This acidity also causes candida yeast overgrowth, which in turn adds to the acidity - a vicious cycle. (This accounts for the digestive stress that many of my colleagues suffer with.) Candida yeast is actually a major factor in osteoporosis. Heavy metals, environmental toxins, sugar/alcohol, medications etc. will all cause yeast overgrowth as well. Many babies are born with it. (diaper rash, colic, eczema, ear aches all indicate candida imbalance.) You had your problems starting very young - you could have been born with candida overgrowth as many babies are..or you could have had exposure to EMF's /radiation as a child, perhaps in your bedroom or from something in the house.. One thing most North Americans are not aware of is how dangerous box spring mattresses can be when pushed up against the wall. Especially 2 walls in the corner of a room. (I learned this in Germany - they're much more aware of it.) A lot of kids have their beds in the corner of the room to give them more space, or parents put the baby's cot in the corner of their room. Electrical fields from the wiring in the walls radiate out about 1 ft from the wires. Any metal - including box springs or metal bed frames - within that 1 ft will pick up the electrical field - it's called "coupling" - and it travels through the whole bed. So we're sleeping in a stressful electrical field. The best bed is wooden with a foam, air, or other mattresses that do not contain metal. Radiant heat (floor heating) is another source of dangerous radiation/emf's. We used to have it in our last house, and I noticed my hip got a lot worse. When we moved, it improved somewhat, but performing less made the most difference. If any of this resonates with you, and you want to contact me privately that's fine. I can tell you what I took and did to get rid of the hip problem.warm regards, Karen freehelp99@yahoo.com
    Kinesiologist 62 Replies Flag this Response
  • Did the dr look for sacroliliac problems? This is a triangular joint that ties the hips together and sometimes it gets inflamed and can cause hip pain. The tests my Ortho ran didn't show this.I would suggest a pain management clinic, they run different tests and treat. After months of unexplained hip pain{ mostly right side}, I walked out of that office pain free and have been that way 5 yrs. ~~JerseyLymie
    Anonymous 42789 Replies Flag this Response
  • well It Really Sounds To Me Like You Have A Hip (acetabular) Labral Tear. Maybe U Should Get Examined For That. If Not I Could Think Of... 1. Traumatic Bursitis 2. Hip Tendinitis Or 3. Pain Assoiciated With Your Yrs Of Back Pain. Let Me Know If U Have Any Other Symtopms Even If They Arent Associated With Ur Hip Directly. Hope This Was Of Some Use. Hope U Get Better. Actually, I had an MRA done where they inject dye into the joint and get an MRI to check for a Labral Tear and everything was "fine". They said my x-rays look fine as well.
    Brookiepoo81 4 Replies Flag this Response
  • I recognise the symptoms you describe.. What kind of work do you do?? In my case environment turned out to be a major factor in my hip problem (now almost resolved) which sounds similar to yours by the way you describe the pain. I would like to explain how I came to the realisation of what was causing my problem and will try to condense it - it's a big topic! This is more about WHY you have the problem - not treating the symptoms. I used to be a professional singer and pianist in Europe. Suddenly one day walking around Hamburg, I stopped in my tracks and couldn't move - not even a step. Painful left hip joint/groin! I bent slowly over with my chest to my thighs and it seemed to ease it and go back into place.. I was very perplexed because I really had a great diet and was very sporty and fit - but I'd also broken my leg skiing a few years before and it was worse than it should have been. The hip got worse, and eventually I couldn't walk after sitting at the piano for 45 min - I'd have to stand there and pretend I was rearranging my music until I could take a step. I used to get stuck in the car too - would try to get out, and then couldn't take a step for a minute or so. As you say, VERY painful. Seemingly unrelated (but not) I had a problem with my gums and to a lesser degree with my teeth - gingevitis, abcesses.. Spent a fortune on dentist bills. My hygenist always said that my gums didn't look like they belonged to me because I looked so healthy. (This IS going somewhere!) 1 year ago I was performing with a normal mike instead of my ususal headset. A mike is always very close to or touching the lips. Within 3 days I had mouth cankers (for the first time in years), and the light bulb went on. It was the electromagnetic fields from the microphone which were causing my gum problems (other singers I know have these kind of problems, as well as cold sores, etc.). EMF's also interfere with the way the body uses calcium, which keeps the body alcaline as well as obviously being important for the bones. The headset was far enough away that it didn't cause cankers, but caused the other problems. I havn't sung for 9 months, and have NO gum/teeth issues. My hygenist almost cried (with happiness!) at my last cleaning. I realised my hip problems was due to sitting over/beside a power transformer and close to an amplifier for 5 hours/night, 6 days/wk - pretty high EMF and radiation exposure. I've ALMOST got rid of the problem now through some basic supplements, environmental modifications in my home, and some alcaline producing natural energy products to support bone growth.. it's about 80% better and I never get "stuck" any more. I discussed this with other pianists/singers who had been doing this for years, and they all had health problems - digestive stress and mainly hip problems.. When we are exposed to these acidic fields, the body of course starts to become acidic and in order to alcalise itself, it pulls calcium out of the bones in order to survive. This acidity also causes candida yeast overgrowth, which in turn adds to the acidity - a vicious cycle. (This accounts for the digestive stress that many of my colleagues suffer with.) Candida yeast is actually a major factor in osteoporosis. Heavy metals, environmental toxins, sugar/alcohol, medications etc. will all cause yeast overgrowth as well. Many babies are born with it. (diaper rash, colic, eczema, ear aches all indicate candida imbalance.) You had your problems starting very young - you could have been born with candida overgrowth as many babies are..or you could have had exposure to EMF's /radiation as a child, perhaps in your bedroom or from something in the house.. One thing most North Americans are not aware of is how dangerous box spring mattresses can be when pushed up against the wall. Especially 2 walls in the corner of a room. (I learned this in Germany - they're much more aware of it.) A lot of kids have their beds in the corner of the room to give them more space, or parents put the baby's cot in the corner of their room. Electrical fields from the wiring in the walls radiate out about 1 ft from the wires. Any metal - including box springs or metal bed frames - within that 1 ft will pick up the electrical field - it's called "coupling" - and it travels through the whole bed. So we're sleeping in a stressful electrical field. The best bed is wooden with a foam, air, or other mattresses that do not contain metal. Radiant heat (floor heating) is another source of dangerous radiation/emf's. We used to have it in our last house, and I noticed my hip got a lot worse. When we moved, it improved somewhat, but performing less made the most difference. If any of this resonates with you, and you want to contact me privately that's fine. I can tell you what I took and did to get rid of the hip problem.warm regards, Karen freehelp99@yahoo.com I sit in an office all day at the computer. The strange thing is, though, that I've done this for years and it hasn't been like this forever. I don't know if its the same type of radiation as you're describing, but I had radiation as a child with cancer? I don't know if that makes a difference or not. Other than that, I don't know. Let me know what you think or if you have other questions. I'd be interested in finding out more about this.
    Brookiepoo81 4 Replies Flag this Response
  • Understood.... But what about my other suggestions? If those are ruled out I will research some more 4 u. I would need more specifics tho. like what movements hurt more. does it get better with rest? any swelling? warm to the touch? what kind of pain do u feel? ex. stinging, burning, sharp, throbbing, etc. Any discoloration? Is the pain or stiffness worse as u wake up or throughout the day does it maintain the same? if u stretch it where you place one foot over your outer thigh and pull your flexed leg toward you with the opposite arm is it more painful? Any clicking noise? etc....
    Anonymous 42789 Replies Flag this Response
  • Understood.... But what about my other suggestions? If those are ruled out I will research some more 4 u. I would need more specifics tho. like what movements hurt more. does it get better with rest? any swelling? warm to the touch? what kind of pain do u feel? ex. stinging, burning, sharp, throbbing, etc. Any discoloration? Is the pain or stiffness worse as u wake up or throughout the day does it maintain the same? if u stretch it where you place one foot over your outer thigh and pull your flexed leg toward you with the opposite arm is it more painful? Any clicking noise? etc.... The others haven't been ruled out. My question is though... how would they find out if this is what it is or not? Would it be through MRI or xrays? Or is there other tests that they'd do to find it? The reason I ask is because they've done the MRI and xrays and say both of those look perfectly normal. Sorry about not answering the pain questions, I thought I'd put them in my first post. The pain is pretty constant. Doesn't hurt any time more than another (with the exception of exercising, it of course hurts worse). No discoloration or swelling. Stretching hurts but only when, say I'm laying down and grab my left foot with my right hand and push down on my knee to flex it outward. It's the groin that hurts, inner hip. It's a constant dull pain, but when it catches, it's a painful stabbing or ripping pain. It does click when it catches. I was discussing it with my mom earlier and remembered that I'd been diagnosed with Snapping Hip Syndrome YEARS ago, but that was because the ligament on my OUTTER hip had slipped over the joint and then back into place. I don't know if that has anything to do with the inner hip or not.
    Brookiepoo81 4 Replies Flag this Response
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