Discussions By Condition: I cannot get a diagnosis.

Hip lots of doctors no diagnosis

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: Anonymous
  • May 16, 2007
  • 04:27 PM

I just had an MRI yesterday with good news and bad news. The good news was there is nothing wrong with my bones or joint in my hip. The bad news they don't know why I am feeling pain. At first they thought it was bursitis then a degenerative disc in my lower back. I have been through therapy, x-rays, 2 MRI's, cortisone shots and nothing is working and I am still in pain.
Yesterday they said well maybe you have fiber myalgia, Maybe? what does that mean?
Let me tell you my symptoms. I have a constant pain in my left hip, kind of like an ache, feels like an inflamation to me and it makes it hard to walk or work out. Then when I am walking if I walk too fast or twist just the wrong way I have a shooting pain up my groin all the way to my that is so ban it gives me chills but only lasts for a few seconds.
My history: 5 years ago I popped the sacroiliac joint out while dancing, go figure, but it popped back in, I had lots of therapy and several shots in the joint but got better after two years. Now this pain has started about a year ago same hip but a different pain. I have had a full hysterectomy so I know it is not female organ related.
I am at a loss, they want to send me to a rheumotologist now. I can't afford to keep going to doctors and getting x-rays and therapy. I think it is a pinched nerve possibly but no one listens to me.
Has anyone experienced this kind of pain and if so what did you do. Can anyone suggest anything I am at my wits end, I am depressed, 50lbs overweight because I can't exercise all I can do is watch my diet but then I get so depressed I eat chocolate and mess that up.
My quality of has gone down since I can't go hiking or anything I used to be able to do. :(
Any Ideas would be appreciated.
Thank you
Mulvi

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14 Replies:

  • Fibromyalgia... please google symptoms of Myalgic Encephalomyelitis know you could have 1 symptom or 100...it doesn't matter I'm being tested countless people on this site with ME symptoms I'm not saying you have it...just saying lots of people here with similar complaints and none can get a diagnosi?? what's happening here?? Look where I've posted...you'll get the picture...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Hi Mulvi,Sounds like you are having a very hard time of it. :(Unfortunately, it is the case that pain can be produced from problems that will never show up on any imaging study. Just because you can feel excruciating pain, doesn't mean they can get a picture of it. If you can afford two more doctor appointments, and go to a rheumatologist and get blood tests, it might be worth it, but I have a feeling you could wait on that if it is fibro, because you could get prescriptions from your regular doctor for the meds generally prescribed for fibromyalgia, and see if it helps: anti-depressants and pain meds like Ultram and Tylenol.I know this next advice is going to sound heartless (please forgive me) but I also think you will get the most relief from losing weight. There IS something wrong that is causing you pain, and the more weight you have on it, the harder your problem is being pressured under it. My sister was having similar problems, and she lost about 30 pounds (out of the 70 or so she needs to lose) and she said it was amazing how significantly the pain reduced in her hips and knees. So even if you could lose half the weight, it might really help your pain situation.Losing weight is HARD. Really hard. Especially when you are in pain!!! So you can't possibly do it alone. There just isn't any way. In my family, weight is a major problem. And the best resource for it that they seem to have found is OA, Overeaters Anonymous. If you are in the US you can find a group at this website: http://www.oa.org/index.htm. The meetings are free, and the support is fantastic. I promise. They hook you up with someone who you talk to on the phone every day (or more than once a day, if you want) so that you aren't doing this alone. And the person they partner you up with has gone through it all already. OA has groups that are non-religious, and groups that are very religious, and everything in between. The "higher power" they look to is whatever each person makes of it. I do hope this response is helpful. I wish I had more to offer.Best,Shula
    Anonymous 42789 Replies Flag this Response
  • mommycat, not everybody has ME! One symptom is not enough! check out Fukuda's criteria for diagnose before you keep telling everybody that sets a post here they might have ME, please. I DO have ME/SFC and I know what I'm talking about. Statistics show only 0.4 % of the population has this disease, so let's be serious! The diagnose criteria are: * Extreme fatigue for at least 6 months that cannot be explained by medical tests and * Have 4 or more of the following symptoms: o Forgetting things or having a hard time focusing o Feeling tired even after sleeping o Muscle pain or aches o Pain or aches in joints without swelling or redness o Feeling discomfort or "out-of-sorts" for more than 24 hours after being active o Headaches of a new type, pattern, or strength o Tender lymph nodes in the neck or under the arm o Sore throat Mulvi, have you tried a chiropractor? It worked for me, when I was 25-30 years old I had a pain similar to what you explain (by the way, the doctors only told me to take pain pills... it had no cure -boy, where they wrong!), now I'm 42 and I have many other things, (EM has plenty of symptoms to keep you entertained, I assure you...) but my back and my hip doesn't hurt anymore (I take no pills, they hyrt my stomach badly)! I remember I used to poke in my thumb pressing very hard in my left hip to be able to walk a couple of streets, or the pain would climb all the way to my toes! If you can, give it a try it could help you.
    Anonymous 42789 Replies Flag this Response
  • you have ME???...where did you get it how did you get it??when did you get it?? look at these people's symptoms there is a pattern...seriously joint painmuscle painvertigotinnitusfaintingfatiguemoodytwitchingseems to "flare up"pins and needlesweaknessnauseavomitingrashesmemory problems none of their symptoms seem to follow any pattern...neither do mine I'm currently being testedthey've ruled most everything else out This is viral, contagious...even through breathing on someonewhy is so hard to believe that only the people with ME/CFS diagnosis are the only ones who were ever infected?? is it not possible that back in the 80's, others caught this as wellit is passed like a cold or a flu...not to mention all the other ways Arre you the only person you know with this?/just wondering...mommy cat
    mommy cat 1654 Replies Flag this Response
  • Lots of advise thanks to all I appreciate the feedback. First of all no hard feelings here I know the weight is a problem and I have been working on it. I have been doing Weight Watchers and Have lost 20lbs since January, I just think it would drop faster if I could exercise better. I admit when I get upset I will sneak off for that candy bar but I regret it every time I get on the scale. I used to smoke so It is one vice or the other. I can't stand to smoke anymore ( no insult to anyone out there who does) I just do not care to do it anymore. As for the Chiropractor I have thought of that, I used to go to them when I was younger my trouble with them are that they expect you to keep going for the rest of your life and I do not believe that is necessary. The last one I went to tried to convince me my children needed to go and to top it off he mis-diagnosed me which made me very upset with him. Anyway that is an option I am keeping open if I can find a good one.The good news is I spoke to the nurse of the doctor I saw several years ago when I had trouble with my hip before and she told me to get all my x-rays, MRIs and reports together and bring them to the doctor and he will look at them and let me know what he thinks I should do or where he would suggest I go from here. I think this is good since he was right the last time I was having problems with my hip.Another curious thing I heard from my husband was a lady at his work had been having problems with a knee or something and it turned out it was from an accident she had many years ago when she was younger. The funny thing about it was that she had never experienced any problems with this area until now. Is that possible you think? My husband was concerned because when I was 15 I was in a motorcycle accident but I was throne off the bike and had no injuries noted except a not in my stomach that went away. I think that may be a little far fetched but then I am not a doctor.Anyway thank you for the advice I will get back when I hear form the doctor. I think this is a wonderful site it is nice to have someone to talk to who understands aches and pains.
    Anonymous 42789 Replies Flag this Response
  • Mulvi - many chiros seem to be the same, but all are not. I speak from experience as I have been one for 18 years. I would suggest finding a DC that practices Pierce technique. The analysis is easy and straightforward with a few X-rays. If you are going to respond well if will usually happen in a few visits.
    Anonymous 42789 Replies Flag this Response
  • Mulvi, I agree with Ralph. Just like any profession, there are good docs and there are not so good docs. You need to shop around and find one who is best qualified to help you...ask around and get referrals. In addition, have you considered trying acupuncture? It can also be very helpful for many different things, from pain management, to gastrointestinal disorders to depression and weight management. An acupuncturist will be able to determine if your pain is due to an excess or deficiency based condition, and treat this accordingly. There are many different causes of pain, and that is why it is so successful - it treats the individual, not just pain. To find a certified practitioner near you visit www.acufinder.com. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • The sacro/iliac joint can have arthritis. Especially if you have injured it before. They are doing fluoroscopic cortisone injections at pain clinics now frequently. Ask your doc if you might have this problem. How old are you?
    rad-skw 1605 Replies Flag this Response
  • I finally got a diagnosis I have a partial tear in the lebram of my left hip. Ok for those who do not know it is the tissue that surrounds the joint. I looked it up and all my symptoms fit so great now I know what is wrong with me. Next problem no doctor here can fix it I got to go to an expert in TN oh boy what a mess, but at least I know now.
    Anonymous 42789 Replies Flag this Response
  • Hi Mulvi,I am so glad you finally got a diagnosis. But extremely curious HOW that diagnosis was made. Was it strictly on matching symptoms to the diagnosis, or did a doctor do an examination that led to the conclusion, or...?People put a lot of faith in scans like MRI's and x-rays, and they can be great, but they do miss a lot. Both my husband and I have had important things that were missed by MRI's, but found in surgery. I'm glad that you found someone who was willing to diagnose, even with nothing showing up on the earlier scans.Going far away to find the right doctor is a pain (whoops--unintentional, but apt pun!), but I'm glad that at least you now know what specialty you have to find. I hope you are able to find the right doc very soon, and get this problem fixed.Thank you so much for updating. Best,Shula
    Anonymous 42789 Replies Flag this Response
  • In reply to how they came up with the diagnosis the performed a Mylogram along with the MRI which is where they inject a dye and then looks at an x-ray. The problem was detected not by the doctor but by the MRI and X-ray technicians who are experienced in reading them. What I have apparently is rare or at least it is only just something they have started noticing because the MRI imagery is better now. Anyway no one in the state of MS does the procedure so they are referring me to Dr. Thomas Byrd who has apparently mastered this hip procedure. Anyway I am getting a second opinion then Dr. Byrd will look at everything so it will be a 3rd opinion. I do not take surgery lightly as I have had three non related already (c-section, gallbladder, and hysterectomy) and do not relish the idea. I have researched Dr. Byrd and I feel pretty safe and secure about all this. I am only upset now about having to wait. I want to stop hurting I am tired of it. I can only hope that my experience written on this website may help someone else now or in the future.Mulvi:)
    Anonymous 42789 Replies Flag this Response
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  • I just had an MRI yesterday with good news and bad news. The good news was there is nothing wrong with my bones or joint in my hip. The bad news they don't know why I am feeling pain. At first they thought it was bursitis then a degenerative disc in my lower back. I have been through therapy, x-rays, 2 MRI's, cortisone shots and nothing is working and I am still in pain. Yesterday they said well maybe you have fiber myalgia, Maybe? what does that mean? Let me tell you my symptoms. I have a constant pain in my left hip, kind of like an ache, feels like an inflamation to me and it makes it hard to walk or work out. Then when I am walking if I walk too fast or twist just the wrong way I have a shooting pain up my groin all the way to my that is so ban it gives me chills but only lasts for a few seconds. My history: 5 years ago I popped the sacroiliac joint out while dancing, go figure, but it popped back in, I had lots of therapy and several shots in the joint but got better after two years. Now this pain has started about a year ago same hip but a different pain. I have had a full hysterectomy so I know it is not female organ related.I am at a loss, they want to send me to a rheumotologist now. I can't afford to keep going to doctors and getting x-rays and therapy. I think it is a pinched nerve possibly but no one listens to me. Has anyone experienced this kind of pain and if so what did you do. Can anyone suggest anything I am at my wits end, I am depressed, 50lbs overweight because I can't exercise all I can do is watch my diet but then I get so depressed I eat chocolate and mess that up.My quality of has gone down since I can't go hiking or anything I used to be able to do. :( Any Ideas would be appreciated.Thank youMulviMy Dad had the same symptoms you have. He suffered for years with hip pain before he could no longer bear it. He just had a procedure, I believe its just simply a nerve block. It was a surgical procedure. He went through a lot of tests too before they finally realized that was causing the pain. He was uncomfortable after surgery and pain in incision site. He was told to walk for 6 weeks so everything could heal as its supposed to, he is doing great now. its been a 3 or 4 weeks and he is walking everyday and pain free! Hope this helps!
    cesteele 1 Replies Flag this Response
  • sounds like possible fibro to me as well? Do you have sore throats? Feeling of malaise and constant tiredness...just overall flue like symptoms?bood luck!:)
    bumblebee 5 Replies Flag this Response
  • I just had an MRI yesterday with good news and bad news. The good news was there is nothing wrong with my bones or joint in my hip. The bad news they don't know why I am feeling pain. At first they thought it was bursitis then a degenerative disc in my lower back. I have been through therapy, x-rays, 2 MRI's, cortisone shots and nothing is working and I am still in pain. Yesterday they said well maybe you have fiber myalgia, Maybe? what does that mean? Let me tell you my symptoms. I have a constant pain in my left hip, kind of like an ache, feels like an inflamation to me and it makes it hard to walk or work out. Then when I am walking if I walk too fast or twist just the wrong way I have a shooting pain up my groin all the way to my that is so ban it gives me chills but only lasts for a few seconds. My history: 5 years ago I popped the sacroiliac joint out while dancing, go figure, but it popped back in, I had lots of therapy and several shots in the joint but got better after two years. Now this pain has started about a year ago same hip but a different pain. I have had a full hysterectomy so I know it is not female organ related.I am at a loss, they want to send me to a rheumotologist now. I can't afford to keep going to doctors and getting x-rays and therapy. I think it is a pinched nerve possibly but no one listens to me. Has anyone experienced this kind of pain and if so what did you do. Can anyone suggest anything I am at my wits end, I am depressed, 50lbs overweight because I can't exercise all I can do is watch my diet but then I get so depressed I eat chocolate and mess that up.My quality of has gone down since I can't go hiking or anything I used to be able to do. :( Any Ideas would be appreciated.Thank youMulviI so wish I did. You sound almost to the point just like me. I am 59 and have been putting up with this for 10 years. I have had therapy, pain management with shots in my back. They said it was restless leg, which I knew it wasn't but went on all the different doses of Lyrica. then back to therapy. then a spinal fusion that relieved the pain in my back and the sciatica, but the aching legs, and pain in hips.... still there. over the years have had 3 Doppler tests, had an MRI, hips and arteries are good. so for 3 years I got shots i my hips for the severe bursitis which by the way gave me about a month releif and that's all. OK but why can't I walk or go up steps or why when I turn do I get pain in my groin that I can hit the floor with. I haven't given up yet, but I am tired, depressed and feel like no one hears me. I am right there with you if I hear of anything that works
    Anonymous 42789 Replies
    • October 10, 2010
    • 00:54 PM
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