Discussions By Condition: I cannot get a diagnosis.

Hip and Back pain since I was Ten years old!!!!!!!!!!! NO ANSWER!!! Please help!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: rjb1116
  • November 1, 2008
  • 03:01 PM

When I was ten years old, I woke up and my hip hurt. I was getting ready to go to camp, and I thought nothing of it. I went back to sleep for about two hours, and when I woke up, I couldn't put any pressure on my left leg because my hip hurt so bad. My mom rushed me to the pediatrician and they sent me straight to the hospital, where I was admitted for almost two weeks. While I was in the hospital, they tried to rule everything major out, like septic hip, cancer, and AVN,(which is what my dad has). They did MRIs, x-rays, blood work, and everything came back perfectly normal. When I was discharged from the hospital, I was on crutches because I still could not put pressure on my leg. After about ten weeks, and some physical therapy, my pain subsided and I felt better, I mean I still had pain, but not to the point where I couldn't walk. (this was right before fifth grade, so I started fifth grade on crutches) Then in sixth grade, the same thing happened, except this time, my back hurt. All of my labs, x-rays and MRIs came back normal. Still no diagnosis. (I was not hospitalized, but I went to an orthopedic doctor) Yet again, in seventh grade I had another episode. Still, all tests came back normal and within eight weeks, I was back to normal. With the second episode I had in seventh grade, I was referred to a chiropractor. She was the one that gave me some relief, but not enough to make me feel like a normal teenager. In eighth grade, I had another episode. This time I was fed up with crutches, and I went the wheelchair route. I seemed to get better quicker this time, but it was still seven weeks or so. During this entire episode, I saw a chiropractor every week and I was sent to Egleston (major hospital in Atlanta, GA) and, there, I saw the, I guess you could say most famous doctor, who specialized in pediatric hip and back pain. After being to all these doctors and still having no answer, I am fretting that I will never get an answer. I am a freshman in high school now and am about to start driving and I don't know what I'm going to do if I have another episode. I am afraid that I am on the verge of another episode right now because yesterday and today, it has hurt to walk. If you have any suggestions or anything that might be an answer that I might be able to be tested for, please let me know!!! I am desperate!!!!!!!!!! :( I have never been tested for SCFE but looking at the symptoms, I have every one of them. The only difference is I'm a white female. Thanks again for looking and please reply!!!!!!!

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3 Replies:

  • It's a long shot, but because you and your dad have the same symptoms, I wonder if there is something in your genes. Your should mention to your doctor that you aren't the only person in your family with this problem. Sometimes osteonecrosis (the other name for your dad's problem) is caused by something to do with your blood. There doesn't seem to be a connection between your hip & your blood, but there is. Ask about Factor V Leiden and other blood conditons like it. The medical term is "thrombophilic mutations." You're pretty sharp for a frosh, BTW! Maybe you'll end up in medicine! We can always hope! :D I wish you a long, pain-free life.
    aquila 1263 Replies
    • November 4, 2008
    • 07:29 PM
    • 0
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  • When I was ten years old, I woke up and my hip hurt. I was getting ready to go to camp, and I thought nothing of it. I went back to sleep for about two hours, and when I woke up, I couldn't put any pressure on my left leg because my hip hurt so bad. My mom rushed me to the pediatrician and they sent me straight to the hospital, where I was admitted for almost two weeks. While I was in the hospital, they tried to rule everything major out, like septic hip, cancer, and AVN,(which is what my dad has). They did MRIs, x-rays, blood work, and everything came back perfectly normal. When I was discharged from the hospital, I was on crutches because I still could not put pressure on my leg. After about ten weeks, and some physical therapy, my pain subsided and I felt better, I mean I still had pain, but not to the point where I couldn't walk. (this was right before fifth grade, so I started fifth grade on crutches) Then in sixth grade, the same thing happened, except this time, my back hurt. All of my labs, x-rays and MRIs came back normal. Still no diagnosis. (I was not hospitalized, but I went to an orthopedic doctor) Yet again, in seventh grade I had another episode. Still, all tests came back normal and within eight weeks, I was back to normal. With the second episode I had in seventh grade, I was referred to a chiropractor. She was the one that gave me some relief, but not enough to make me feel like a normal teenager. In eighth grade, I had another episode. This time I was fed up with crutches, and I went the wheelchair route. I seemed to get better quicker this time, but it was still seven weeks or so. During this entire episode, I saw a chiropractor every week and I was sent to Egleston (major hospital in Atlanta, GA) and, there, I saw the, I guess you could say most famous doctor, who specialized in pediatric hip and back pain. After being to all these doctors and still having no answer, I am fretting that I will never get an answer. I am a freshman in high school now and am about to start driving and I don't know what I'm going to do if I have another episode. I am afraid that I am on the verge of another episode right now because yesterday and today, it has hurt to walk. If you have any suggestions or anything that might be an answer that I might be able to be tested for, please let me know!!! I am desperate!!!!!!!!!! :( I have never been tested for SCFE but looking at the symptoms, I have every one of them. The only difference is I'm a white female. Thanks again for looking and please reply!!!!!!! Okay....I don't know if this is helpful, but we are going to see a neurologist soon. It has come down to the point that there is nothing else to do and I am afraid of having another episode. My right hip started hurting yesterday, so right now i am really scared of what it could be. We are going to one of the neurologists at Emory (big hospital in Atlanta, GA) so I am really hoping I will get an answer...... Any suggestions? please comment!!!
    rjb1116 4 Replies
    • November 13, 2008
    • 05:38 PM
    • 0
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  • When I was ten years old, I woke up and my hip hurt. I was getting ready to go to camp, and I thought nothing of it. I went back to sleep for about two hours, and when I woke up, I couldn't put any pressure on my left leg because my hip hurt so bad. My mom rushed me to the pediatrician and they sent me straight to the hospital, where I was admitted for almost two weeks. While I was in the hospital, they tried to rule everything major out, like septic hip, cancer, and AVN,(which is what my dad has). They did MRIs, x-rays, blood work, and everything came back perfectly normal. When I was discharged from the hospital, I was on crutches because I still could not put pressure on my leg. After about ten weeks, and some physical therapy, my pain subsided and I felt better, I mean I still had pain, but not to the point where I couldn't walk. (this was right before fifth grade, so I started fifth grade on crutches) Then in sixth grade, the same thing happened, except this time, my back hurt. All of my labs, x-rays and MRIs came back normal. Still no diagnosis. (I was not hospitalized, but I went to an orthopedic doctor) Yet again, in seventh grade I had another episode. Still, all tests came back normal and within eight weeks, I was back to normal. With the second episode I had in seventh grade, I was referred to a chiropractor. She was the one that gave me some relief, but not enough to make me feel like a normal teenager. In eighth grade, I had another episode. This time I was fed up with crutches, and I went the wheelchair route. I seemed to get better quicker this time, but it was still seven weeks or so. During this entire episode, I saw a chiropractor every week and I was sent to Egleston (major hospital in Atlanta, GA) and, there, I saw the, I guess you could say most famous doctor, who specialized in pediatric hip and back pain. After being to all these doctors and still having no answer, I am fretting that I will never get an answer. I am a freshman in high school now and am about to start driving and I don't know what I'm going to do if I have another episode. I am afraid that I am on the verge of another episode right now because yesterday and today, it has hurt to walk. If you have any suggestions or anything that might be an answer that I might be able to be tested for, please let me know!!! I am desperate!!!!!!!!!! :( I have never been tested for SCFE but looking at the symptoms, I have every one of them. The only difference is I'm a white female. Thanks again for looking and please reply!!!!!!!.................. Okay.... I know this may be a long shot, but they are testing me for lupus. I have just about all of the symptoms like hair loss, headaches, joint swelling, chest pain, swelling around eyes, extreme fatigue, pale/ purple fingers when I get cold, rash- but its on my upper arm and shoulder. The only symptoms I don't have are the rash on the face, fever, mouth sores, and sensitivity to the sun. But when I talked to my doctor she said that if I had lupus of the joints, that I probably wouldn't have the rash on my face, mouth sores, and the sensitivity to the sun..... Any comments?????
    rjb1116 4 Replies
    • November 27, 2008
    • 02:47 PM
    • 0
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