with no real diagnosis, I'm a 28 year-old Male from Michigan
I guess I should list the tests I've had:
MRI head, neck, and TMJ
blood work includes thyroid
bone scans of shoulder
Problems I've have:
TMJ right side mostly
shooting pains, right side from the jaw, to my neck, sometimes traveling to my right shoulder
muscle spasms in my shoulders, neck, tmj, upper and lower back, the one in my neck and shoulders have been there for 2 years now
I have low hormone levels and have prescribed hormone shots to raise them to better levels
I have small muscle "flutters" or tremors, but they are mild and seem to happen when randomly at random areas (forearm, tricep, my right eyelid, legs, the jaw where my TMJ is most prevalent)
I have some hand pain, mostly in the right hand, but some one the left
I have mild scoliosis, my body seems to lean to the right
a lot of my joints pop and click: neck, fingers, wrist, shoulders (those are painful), ankle, knees, hips
muscle atrophy in my right shoulder, but it has been built back up for the most part thanks to proper physical therapy
My SI joint is off cue (probably from the scoliosis)
SI joint offbalance
Treatment so far:
chiropractor visits (once a month tops)
physical therapy (on and off for the last 2 years)
bite splint for my TMJ
and the medications listed above had one time involved anti-depressants,
botox shot (once) in the offending right shoulder where the majority of my spasms occur
What I really want:
a proper diagnosis and a good doctor that'll help me find it
I've been to neurologist (2), rheumatologist, rehabilitation doctor (good doctor helped me get some answers, but left me without a true answer),
TMJ specialist (helped me get this nifty bite splint), and an endocrinologist (found the low hormone levels, but found nothing wrong with my thryoid after a TSH test)
where do I go from here? I don't think I've gotten worse, it's just more of the same. The muscle tremors are mild bordering on infrequent to semi-frequent. I just want a proper diagnosis so I can feel like I did before this all happened, which do so randomly.
I keep in good spirits and I try not to let this bother me. My mental well-being is good and I have a semi-normal life of work and extra circular activities. I'm moving to a new city this year and I'm still trying to attain my dreams. Sometimes I feel like I was robbed of my last two years, but I continue to move on and hope for a better tomorrow.
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