Discussions By Condition: I cannot get a diagnosis.

Hi, I'm roker and I've been sick for over 2 years . . .

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • May 22, 2007
  • 09:30 AM

with no real diagnosis

I guess I should list the tests I've had:

MRI head, neck, and TMJ

spinal tap

blood work includes thyroid

bone scans of shoulder

Problems I've have:

TMJ right side mostly

shooting pains, right side from the jaw, to my neck, sometimes traveling to my right shoulder

muscle spasms in my shoulders, neck, tmj, upper and lower back, the one in my neck and shoulders have been there for 2 years now

I have low hormone levels and have prescribed hormone shots to raise them to better levels

I have small muscle "flutters" or tremors, but they are mild and seem to happen when randomly at random areas (forearm, tricep, my right eyelid, legs, the jaw where my TMJ is most prevalent)

I have some hand pain, mostly in the right hand, but some one the left

I have mild scoliosis, my body seems to lean to the right

a lot of my joints pop and click: neck, fingers, wrist, shoulders (those are painful), ankle, knees, hips

muscle atrophy in my right shoulder, but it has been built back up for the most part thanks to proper physical therapy

My SI joint is off cue (probably from the scoliosis)


Hormone shots
occasional vicoden


low hormone
mild scoliosis
SI joint offbalance

Treatment so far:

chiropractor visits (once a month tops)
physical therapy (on and off for the last 2 years)
bite splint for my TMJ
and the medications listed above had one time involved anti-depressants,
botox shot (once) in the offending right shoulder where the majority of my spasms occur

What I really want:

a proper diagnosis and a good doctor that'll help me find it

I've been to neurologist (2), rheumatologist, rehabilitation doctor (good doctor helped me get some answers, but left me without a true answer),
TMJ specialist (helped me get this nifty bite splint), and an endocrinologist (found the low hormone levels, but found nothing wrong with my thryoid after a TSH test)

where do I go from here? I don't think I've gotten worse, it's just more of the same. The muscle tremors are mild bordering on infrequent to semi-frequent. I just want a proper diagnosis so I can feel like I did before this all happened, which do so randomly.

I keep in good spirits and I try not to let this bother me. My mental well-being is good and I have a semi-normal life of work and extra circular activities. I'm moving to a new city this year and I'm still trying to attain my dreams. Sometimes I feel like I was robbed of my last two years, but I continue to move on and hope for a better tomorrow.

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