Discussions By Condition: I cannot get a diagnosis.

Hi all Dr.s in these forum.. please, help me

Posted In: I cannot get a diagnosis. 40 Replies
  • Posted By: unavena
  • April 25, 2008
  • 01:04 PM

First of all,
sorry for writing so much in detail , i am not english native speaker , its not easy to describe how i feel. I'd be so much thankful for any suggestion from you.

I am a 20-year old girl and I suffer CONSTANT fatigue and sore throat. I am really desperate for help.
I cannot function normally like this! I have energy for nothing, it makes me feel I am so useless. and I am so sad to visit my gp because I know he may think that there is nothing wrong with me and I am just lying.

-I have been tested many times but the blood (thyroid function, liver, glucose and few others - dont remember) showed I am healthy.
-I'm 5'7 and 60 kg, try to eat healthy diet and get some exercise every week.
-my temperature (after activity like walking) 37 C -37.5 and at rest 37 C.
-I feel lheart palpations or how to call it (feel my heart beat very well in my chest) but heart beat should be OK 85-90 pm.
so... everything seems ok... but

-I have sleeping problems - sometimes cannot sleep although Im tired, or usually wake up few times at night, or most of the mornings I wake up after a good amount of sleep (like 9 hours) and wanna sleep more!! and if i have time i sleep again - i dont have to wait fo it - i fall asleep immediately!... i can sleep 12-15 hourss a day, seriously (normally, i dont have time to do that.. but if i have free time,.. i sleep.
Somebody told me I feel tired because I sleep a lot.. but.. if i sleep lets say 8 hours a day per week, I just feel more tired! if i study at night i sleep twice as much the foollowing day.
Sometimes I wake up with bone(or muscle? -feels like bone) pain (arm, hand..). I get excesively tired few hours after taking exercise.
-> To sume it up - Usually I wake up and feel like rubbish. (pain, fatigue) and during the day I generally feel unwell, like having flu (sore throat, a bit runny nose) and having slightly high temperature. I feel weak.


-Occasionally I have problems with swallowing, like recently, but most of the times I have just a normal sore throat I feel like as if I have flu most of the times. I feel like my airways are stuffed with something and dont breath deeply. If I cough (which i do little) sometimes I can hear there is some mucus or what in my throat. often I have to spit out mucus or saliva or whatever it is in my throat because it is uncomfortable for me. i have bone pain (for two years) in the left part of chest (X-ray showed no problem,doctor thought it was inflammation, i took some antinflamatory pills also recently i've had swollen foot , toes, Ive taken antiinflammatory medicine)

-I CANNOT CONCENTRATE at all (I study at uni.. there4 face difficult times:( )
At my lectures, everybody noticed that I am constantly yawning! im tired!
besides that I have no drive and motivation to do things because I know i am not lazy but tired (that is a difference) and i have worse exam results not because i dont want to study but because i cannot concentrate at all and feelso tired. if i cud, i'd do more. but i cant.


There are days or few hours when I feel OK. But generally, MOST of the time NOt at all. At the moment I just want to cry because I dont know why the ***l I feel like this and cannot live a normal life without constant constant constant fatigue, flu-like syptoms, being not able to study and take exercise seriously, being not able to work on anything. I am not lying - i so much want to be active and do things! i am not happy to feel like this!
Do you have any idea what cud my symptoms relate to??


THANK YOU in advance SO MUCH fo ANy good ADVICE.

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40 Replies:

  • Not a doctor, but had many of your symptoms and was diagnosed with a rare complication of autoimmune thyroiditis called hashimoto's encephalopathy. It is diagnosed by checking thyroid ANTIBODIES- even if thyroid hormones are normal, as most people's are. In fact, while I was ill for 8 years, I had my thyroid hormones checked 6 times and was reassured that my thyroid gland was A-okay. Subsequent ultrasound of my gland showed it to be full of tiny nodules from the autoimmune destruction. Whoops!So, if you get desperate or have been worked up for everything else under the sun and they are starting to refer you out to shrinks, you might consider looking into this.Sorry you are going through this and I pray that you will get some kind of an answer soon.Best Wishes.
    Anonymous 42789 Replies Flag this Response
  • Im no doctor but someone with the same medical condition that im almost sure you have. Im 90% sure that you have chronic fatigue immunity dysfunction syndrome also called chronic fatigue syndrome. Your symptoms which you currently have are the classical defining symptoms of it for diagnoses and are the symptoms which most of us get first. This is a quite serious illness which most doctors are still very naive about (about a quarter of people with CFS are bedbound or housebound..on disability etc).. so you need to find one who specialises in it, who is up to date with the recent studies on it etc etc Your symptoms are completely normal for this illness and thou the swallowing problem isnt as common for it, it is a symptom too. (one at the online CFS support forum im involved in, was only discussing that symptom this week.. ive come across a few who struggle to swallow cause of it ). http://www.notcrazy.net/forum/viewtopic.php?t=5074 Take care with the exercise... exercise can be very harmful to CFS patients and can cause worsening of symptoms and also bring in more symptoms.. for some...permanently. "An Introduction to Chronic Fatigue Syndrome Imagine feeling exhausted after walking two blocks, having chronic sore throats and muscle and joint pain. Imagine your head feels stuffed with wet sand and when you try to read, words swim on the page. Imagine feeling heavy and sluggish rather than rested after a night's sleep. And imagine that these ailments last for years. These are some of the symptoms of chronic fatigue syndrome, also known as chronic fatigue and immune dysfunction syndrome (CFIDS,) or myalgic encephalomyelitis, a serious and disabling illness that is now one of the most common chronic illnesses of our time. It is also one of the most misunderstood. " http://www.immunesupport.com/chronic-fatigue-syndrome-understanding.htm the above was from the immunesupport site (biggest CFS support site online. I strongly suggest you go there and read up on it.
    taniaaust1 2267 Replies Flag this Response
  • There is one test you should ask for if not already done, and that is cortisol. You need to have a 8am and a 8pm or midnight one, as well as a 24 hour urine sample. Elevated levels of cortisol cause the problems you are having. Good luck... Kiera
    Anonymous 42789 Replies Flag this Response
  • There is one test you should ask for if not already done, and that is cortisol. You need to have a 8am and a 8pm or midnight one, as well as a 24 hour urine sample. Elevated levels of cortisol cause the problems you are having. Good luck... Kiera I too think you should have the above two test... cortisol levels just below normal (or cortisol levels which flutulate..eg. abnormally low to abnormally high) or indications of adrenal issues or of something affecting the adrenals... and hence can be something else which can point to a CFS diagnoses (something which most doctors will not be aware of unless they specialise in CFS. With CFS there is usually problems on the hypothalamus, pituitory.. adrenal pathway.. hence often issues with cortisol in at least a third with CFS). http://www.immunesupport.com/library/endocrine-system.htm (i've posted this info as I think your cortisol test may possibly show up out of the normal range.. make sure your doctor does not just dismiss this result (as many doctors dont realise that out of abnormal range cortisol, indicates issues.. it's something endocrine specialists concern themselves with)
    taniaaust1 2267 Replies Flag this Response
  • First of all,sorry for writing so much in detail , i am not english native speaker , its not easy to describe how i feel. I'd be so much thankful for any suggestion from you. I am a 20-year old girl and I suffer CONSTANT fatigue and sore throat. I am really desperate for help.I cannot function normally like this! I have energy for nothing, it makes me feel I am so useless. and I am so sad to visit my gp because I know he may think that there is nothing wrong with me and I am just lying. -I have been tested many times but the blood (thyroid function, liver, glucose and few others - dont remember) showed I am healthy. -I'm 5'7 and 60 kg, try to eat healthy diet and get some exercise every week. -my temperature (after activity like walking) 37 C -37.5 and at rest 37 C.-I feel lheart palpations or how to call it (feel my heart beat very well in my chest) but heart beat should be OK 85-90 pm.so... everything seems ok... but -I have sleeping problems - sometimes cannot sleep although Im tired, or usually wake up few times at night, or most of the mornings I wake up after a good amount of sleep (like 9 hours) and wanna sleep more!! and if i have time i sleep again - i dont have to wait fo it - i fall asleep immediately!... i can sleep 12-15 hourss a day, seriously (normally, i dont have time to do that.. but if i have free time,.. i sleep. Somebody told me I feel tired because I sleep a lot.. but.. if i sleep lets say 8 hours a day per week, I just feel more tired! if i study at night i sleep twice as much the foollowing day.Sometimes I wake up with bone(or muscle? -feels like bone) pain (arm, hand..). I get excesively tired few hours after taking exercise.-> To sume it up - Usually I wake up and feel like rubbish. (pain, fatigue) and during the day I generally feel unwell, like having flu (sore throat, a bit runny nose) and having slightly high temperature. I feel weak. -Occasionally I have problems with swallowing, like recently, but most of the times I have just a normal sore throat I feel like as if I have flu most of the times. I feel like my airways are stuffed with something and dont breath deeply. If I cough (which i do little) sometimes I can hear there is some mucus or what in my throat. often I have to spit out mucus or saliva or whatever it is in my throat because it is uncomfortable for me. i have bone pain (for two years) in the left part of chest (X-ray showed no problem,doctor thought it was inflammation, i took some antinflamatory pills also recently i've had swollen foot , toes, Ive taken antiinflammatory medicine) -I CANNOT CONCENTRATE at all (I study at uni.. there4 face difficult times:( )At my lectures, everybody noticed that I am constantly yawning! im tired!besides that I have no drive and motivation to do things because I know i am not lazy but tired (that is a difference) and i have worse exam results not because i dont want to study but because i cannot concentrate at all and feelso tired. if i cud, i'd do more. but i cant. There are days or few hours when I feel OK. But generally, MOST of the time NOt at all. At the moment I just want to cry because I dont know why the ***l I feel like this and cannot live a normal life without constant constant constant fatigue, flu-like syptoms, being not able to study and take exercise seriously, being not able to work on anything. I am not lying - i so much want to be active and do things! i am not happy to feel like this!Do you have any idea what cud my symptoms relate to?? THANK YOU in advance SO MUCH fo ANy good ADVICE. Are you a vegetarian or do you eat a significant amount of meat?
    Freddd 3576 Replies Flag this Response
  • You have Chronic Fatigue Syndrome. Now go to the CDC website or the NIH website and read the symptoms. This disease is caused by a pathogen (virus, bacteria, parasite or yeast/mold/fungus). However CFS with a sore throat would probably indicate that you have a bad bacteria or a parasite. I would ask your GP to get a stool test for parasites, although please note that this testing is not very accurate, and it might be advisable to do other testing such as seeing an Infectious Disease Doctor. Parasites can cause many problems (mental, emotional, joint, muscle, sleep, energy, concentration, anxiety etc), and they are hard to detect. Blood testing of WBC's may reveal a parasite infection, but not always. Only if was an acute infection which many of them are not. I suffered with parasites which many doctors did not know. Parasites come in a few variaties 1) Nematodes 2) Cestodes 3)flukes 4) protozoa which would include Giardia, Cryptosporidium, or possibly B. Hominis, D. Fragilis or Microsporidia. The stool tests again are unreliable, so at the very least you must test repeatedly. Are you suffering w/ gastrointestinal problems like bloating, upset stomach, bowel changes etc.? But you are classic CFS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
    LINENUP 122 Replies Flag this Response
  • I too think you should have the above two test... cortisol levels just below normal (or cortisol levels which flutulate..eg. abnormally low to abnormally high) or indications of adrenal issues or of something affecting the adrenals... and hence can be something else which can point to a CFS diagnoses (something which most doctors will not be aware of unless they specialise in CFS. With CFS there is usually problems on the hypothalamus, pituitory.. adrenal pathway.. hence often issues with cortisol in at least a third with CFS). http://www.immunesupport.com/library/endocrine-system.htm (i've posted this info as I think your cortisol test may possibly show up out of the normal range.. make sure your doctor does not just dismiss this result (as many doctors dont realise that out of abnormal range cortisol, indicates issues.. it's something endocrine specialists concern themselves with) taniaaust1 is quite right! Cortisol (and all other hypthalamus, pituitary and adrenal hormones will be affected. I suffered such severe levels of these hormones during my infectious state. I talked with 2 of the leading endocrinologists in the USA and they both told me that these responses are due to a humoral immune response. These humoral immune responses come from only 2 things :: parasites or bacteria. So if they were to test your hormones, they will probably be out of line. But again, this is not the primary issue, the primary issue is a parasite or bacterial infection (and usually the gastrointestinal tract is the location). So kill the bad guys and you will be well.
    LINENUP 122 Replies Flag this Response
  • Which part of the world do you live in? I am wondering if you might be in a part of the world that has more natural healing arts like India or China. Oftentimes they have remedies that could help.
    LINENUP 122 Replies Flag this Response
  • You have Chronic Fatigue Syndrome. Now go to the CDC website or the NIH website and read the symptoms. This disease is caused by a pathogen (virus, bacteria, parasite or yeast/mold/fungus). However CFS with a sore throat would probably indicate that you have a bad bacteria or a parasite. I would ask your GP to get a stool test for parasites, although please note that this testing is not very accurate, and it might be advisable to do other testing such as seeing an Infectious Disease Doctor. Parasites can cause many problems (mental, emotional, joint, muscle, sleep, energy, concentration, anxiety etc), and they are hard to detect. Blood testing of WBC's may reveal a parasite infection, but not always. Only if was an acute infection which many of them are not. I suffered with parasites which many doctors did not know. Parasites come in a few variaties 1) Nematodes 2) Cestodes 3)flukes 4) protozoa which would include Giardia, Cryptosporidium, or possibly B. Hominis, D. Fragilis or Microsporidia. The stool tests again are unreliable, so at the very least you must test repeatedly. Are you suffering w/ gastrointestinal problems like bloating, upset stomach, bowel changes etc.? But you are classic CFS!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! I am very interested in your help. I had the flu back in Feb got over that and then days later I was hit with a nasty stomach virus that I have seemed to never recover from. I had the samething happen in Dec 2006, I have almost the same symptoms that Unavena has and I am looking to see which specialist I should go see?
    llelnino 13 Replies Flag this Response
  • 28/m Hispanic/American These are my exact symptoms, They vary from week to week For the past 2 years I would get the flu and get over that fine but just as I was getting better I would get hit with a stomach virus and it would take me another month or so to recover from that but for the past 2 years it has been a very slow recovery. My symptoms for the first week would start as fever, diaherra, loss of appetite, chills, then as I slowly got my appetite back would be fatique, headaches, dizziness, aches, chills, sensitivity to light and temperature, blurred vision, excessive thirst, frequent urination, Subnormal body temperature(between 97-98.3) At times it almost feels like I have a slight sunburn on my face. These symptoms sound alot like Lupus, CFS or maybe Diabetes. I got a complete CBC and Urinalysis done and they came out negative. I even did 2 HIV and 1 STD test, TB and they were all negative. My doctor has pretty much given up on me she wanted to send me to a mental health clinic and to a Infecteous Disease Clinic and to have an EKG done. She pretty much thinks that it is all in my head but I know what I am feeling. Please Help.:( I have just recently noticed that my symptoms worsen with any sort of exercise. I was extra sore and tired for days after. It feels like even thinking negative or getting upset seem to worsen my symptoms as well.
    llelnino 13 Replies Flag this Response
  • Hiya i havent been here during the weekend.. im surprised THank you all so much!! I didnt expect anybody wud reply to my request that sounds so nonsense. i just have one question. what are those cortisol tests? thx:)
    unavena 1 Replies Flag this Response
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  • I am very interested in your help. I had the flu back in Feb got over that and then days later I was hit with a nasty stomach virus that I have seemed to never recover from. I had the samething happen in Dec 2006, I have almost the same symptoms that Unavena has and I am looking to see which specialist I should go see? llelnino: That is a very good question. This is such a tough question. I think so much of this depends on the doctor -are they open minded or flexible = willing to work with you. In the CFS arena, Traditional Western Medicine doesn't fully understand CFS and oftentimes the protocols for helping are limited. From more alternative minded practitioners, there is more of an awareness of the general physiology of the patient and may consider doing some things that fall outside the mainstream. Although I am not so sure that many of them have a grip on it either. There are some doctors that specialize in CFS, but they may not be near you. Self education I think is so important. Much of your symptomology is identical to the onset of my CFS. The excessive thrist and urination comment is very like mine - it is a unique endocrinological response due to the immune system. The doctor's suggestion about seeing an infectious disease doctor could be a good one, assuming he/she tests for the right things. If you want to email me, just add 123 to my username at yahoo.
    LINENUP 122 Replies Flag this Response
  • taniaaust1 is quite right! Cortisol (and all other hypthalamus, pituitary and adrenal hormones will be affected. I suffered such severe levels of these hormones during my infectious state. I talked with 2 of the leading endocrinologists in the USA and they both told me that these responses are due to a humoral immune response. These humoral immune responses come from only 2 things :: parasites or bacteria. So if they were to test your hormones, they will probably be out of line. But again, this is not the primary issue, the primary issue is a parasite or bacterial infection (and usually the gastrointestinal tract is the location). So kill the bad guys and you will be well. It may not necessary be so.. AS FAR as those leading endocrinologists know... humoral immune responses come from only 2 things. There is much which is being found out about CFS which is putting some new views on things... Have you seen Dr Cheney's last major talk he gave? He talks about CFS being caused by something going wrong with the energy system of the body and mitochrondra .. things going very wrong at cell level which only happen in a few other diseases. CFSer's systems have reverted back to the fetal state in some ways. Our oxygenation system goes back to how fetus's are (anerobic??). This low oxygen cell state then creates an ideal environment for viruses and other pathogens!! they thrive in it eg candida etc etc ..hence so many of us then go on carrying a heap of viruses and other stuff. With time.. it actually shifts our phenotypes? so has genetic preconcussions.. and once altered..this change still stands even if original cause was found. Genetic damage has been done (and wouldnt go immediately shifting back to normal state). One thing thou which many are forgetting is that in some.. CFS has been triggered by organophospate exposure or via heavy metals! I just wanted to share all this.. as treating the viruses etc.. thou it will help the body by taking some of the load off it, it may not necessary help anyone to fully recover.
    taniaaust1 2267 Replies Flag this Response
  • I have just recently noticed that my symptoms worsen with any sort of exercise. I was extra sore and tired for days after. It feels like even thinking negative or getting upset seem to worsen my symptoms as well. CFS does that to one. Some studies have found that people with CFS have problems with too much lactic acid (ends up in parts of body where it shouldnt even be!!).. maybe that is why we often end up so sore after exercise With CFS good pacing is very important so not to make things worst..
    taniaaust1 2267 Replies Flag this Response
  • l The excessive thrist and urination comment is very like mine - it is a unique endocrinological response due to the immune system. The doctor's suggestion about seeing an infectious disease doctor could be a good one, assuming he/she tests for the right things. If you want to email me, just add 123 to my username at yahoo. co-cure does a good doctor list for CFS.. do a search and you should find the list. I fixed the symptoms of excessive thirst and urination by homoeopathy...
    taniaaust1 2267 Replies Flag this Response
  • Are you a vegetarian or do you eat a significant amount of meat?yes i dont meat lots of meat, maybe twice a month
    Anonymous 42789 Replies Flag this Response
  • hiya, just want to say i checked some websites you suggested and have many symptoms of Cfid but also dont have many of them. what can you say about it please?Lists of Symptoms of CFIDS. i wrote "yes" where appropriate. "whats this" and similar comments mean i dont understand properlyGeneral or Physical Symptoms: YES Fatigue, often accompanied by nonrestorative sleep, generally worsened by exertion: 95-100% YES Nausea: 60-90% SOMETIMES Irritable bowel syndrome (diarrhea, nausea, gas, abdominal pain): 50-90% YES Chronic sore throat: 50-90% YES Fevers/chills/sweats/feeling hot often: 60-95% YES Muscle and/or joint pain, neck pain: 65-95% NO Bladder/prostate problems, YES frequent urination: 20-95% DONT KNOW Low blood pressure: 86% THINK SO Recurrent illness and infections: 70-85% YES Malaise: 80%** YES Heat/cold intolerance: 75-80% SOMETIMES Painful and/or swollen lymph nodes: 50-80% NO Systemic yeast/fungal infections: 30-80% YES RECENTLY Fungal infection of skin and nails: 71% NO Weight gain: 50-70% NO Increased/severe PMS: 70% YES RECENTLY Swelling, fluid retention: 55-70% SOMETIMES Shortness of breath: 30-70% NO Subnormal body temperature: 65%** NO Severe allergies: 40-60%** YES Sensitivities to medicines, inhalants, odors, and foods: 25-65% SOMETIMES Difficulty swallowing: 55-60% YES Heart palpitations: 40-60% DONT KNOW WHAT IT IS Sinus pain: 56% YES Rash or flushing of face: 35-45% YES Chest pain: 40% NO Hair loss: 20-35% YES Eye pain: 30%** I DONT KNOW W IS MEANT BY THIS Pressure at the base of the skull: 30% NO Weight loss: 20-30% YES DEFINITELY Tendency to bruise easily: 25% NO BUT FEEL SICK SOMETIMES Vomiting: 20% Neurological/Central Nervous System-related Symptoms: YES Confusion; inability to think clearly: 75-100% YES DEFINITELY Concentration/attention deficit: 70-100% YES Sleep disorder/disturbance (insomnia, unrestorative sleep, unusual nightmares): 65-100% YES Muscle weakness: 85-95% YES Headache: 75-95% (daily headache: 50%) YES Memory problems (especially short-term memory): 80-90% YES Photosensitivity: 65-90% YES Disequilibrium, spatial disorientation, dizziness, vertigo: 60-90% WHATS THIS Spaceyness, light-headedness: 75-85% NO Muscle twitching, involuntary movements: 55-80% WHATS THIS Aphasia and/or dyscalculia: 75-80% I DONT DRINK Alcohol intolerance: 45-75%** WHATS THIS Seizure-like episodes: 70%** (seizures: 2%) SOMETIMESespecially WHEN I HAVE VERTIGOS Coordination problems/clumsiness: 60% DONT KNOW Paresthesias (numbness, tingling or other odd sensations in face and/or extremities): 25-60% YES Visual disturbance (scratchiness, blurring of vision, "floaters"): 45-55% WHATS THIS Episodic hyperventilation: 40-45% VERTIGOS .WHAT IS a BLACKOUT?, Fainting or blackouts: 40% NO Strange taste in mouth (bitter, metallic): 25% NO Temporary paralysis after sleeping: 20% NO Earache: 20% YES FOR SMELL Other symptoms reported: decreased libido; hallucinations; alteration of taste, smell, hearing; tinnitus Emotional/Psychological Symptoms: SOMETIEMS Anxiety: 70-90% YES EXRTEME MOOD SWINGSMood swings, excessive irritability, overreaction: 70-90% YES IF INCLUDED IN MOOD SWINGS Depression: 65-90% .. FEEL LIKE Personality change: 55-75% NO Panic attacks: 30-40%
    Anonymous 42789 Replies Flag this Response
  • yes i dont meat lots of meat, maybe twice a month Hi Uunavena, The simple answer is B12 DEFICIENCIES. Come on over to http://forums.wrongdiagnosis.com/showthread.php?p=96471#post96471 and find out more about it. The complex answer is that some forms of b12 could heal most of your symptoms if taken with the right cofactors. Come on over and look at out symptoms list.
    Freddd 3576 Replies Flag this Response
  • 28/m Hispanic/American These are my exact symptoms, They vary from week to week For the past 2 years I would get the flu and get over that fine but just as I was getting better I would get hit with a stomach virus and it would take me another month or so to recover from that but for the past 2 years it has been a very slow recovery. My symptoms for the first week would start as fever, diaherra, loss of appetite, chills, then as I slowly got my appetite back would be fatique, headaches, dizziness, aches, chills, sensitivity to light and temperature, blurred vision, excessive thirst, frequent urination, Subnormal body temperature(between 97-98.3) At times it almost feels like I have a slight sunburn on my face. These symptoms sound alot like Lupus, CFS or maybe Diabetes. I got a complete CBC and Urinalysis done and they came out negative. I even did 2 HIV and 1 STD test, TB and they were all negative. My doctor has pretty much given up on me she wanted to send me to a mental health clinic and to a Infecteous Disease Clinic and to have an EKG done. She pretty much thinks that it is all in my head but I know what I am feeling. Please Help.:( I have just recently noticed that my symptoms worsen with any sort of exercise. I was extra sore and tired for days after. It feels like even thinking negative or getting upset seem to worsen my symptoms as well. hi...Your symptoms are so CFSy...they sound like CFS.. but I was confused by the cyclic nature of what you were describing but the more I think about it.. the more I think it probably is definately CFS. By what you said it sounded like you dont have the fatigue all the time? You get sick with flu like symptoms (in which time I suppose you are doing less due to being so unwell so you start to improve again)... For some of us.. it manifests more flu like. This symptom can be worst than the tiredness for some. but then once you start improving... I assume you are then doing more (being more energetic).. hence then the tiredness and other symptoms are kicking in (tiredness and exhaustion kick in more after exercise)... only then as it sounds you have triggered yet another "flare" of CFS.. you end up going back to the flu like symptoms (in which you probably slow down and do less, so may feel less tired, but more feverish and sick). Hence the cyclic weekly nature of what you are currently experiencing. In CFS we call it a crash/pull cycle. The flare of it, I'd think is when you are going feverish etc. basically it means you over done things and hence thrown yourself back into a CFS flare state, triggering like the immune response. Maybe when you are feeling a little weller, you could be eatting differently then too?? This too could end up throwing one back to the sicker state. (Many of us with CFS have food intollerances.. and these can make things worst). The only way you will get out of such a CFS cycle (if it's CFS).. is via regulating activity... dont go doing whatever you are doing now, which throws you into another flare. People with CFS often have to majorly cut back on things to prevent "crashes" and "flares" Im curious about why your doctor didnt think you have CFS?? *** One can be sent into a CFS flare not just by exercise but also for some, stress or too much brain work can send one into a flare
    taniaaust1 2267 Replies Flag this Response
  • yes i dont meat lots of meat, maybe twice a month Get a blood test to check your B12 levels. As the other poster said, you could have a B12 deficiency. That can cause a lot of symptoms.
    taniaaust1 2267 Replies Flag this Response
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