Discussions By Condition: I cannot get a diagnosis.

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Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: Anonymous
  • March 22, 2010
  • 11:17 PM

I'm 19, and other than a broken pelvis at 14, I've never had a real health problem in my life.

Symptoms
Stiff/painful throat, I.E. it hurts when I nod, shake my head, turn my head and lift heavy objects.
Tense jaw
Strange sleeping habits. Usually, when I slept, I woke up feeling rested an renewed, but now I awake feeling groggy and excessively tired.
Fatigue. I go to sleep at midnight, I wake up at 10 AM, and am ready for bed again at 10 PM.
Pure white snot
Thick, almost foamy looking, mucus from the back of my throat.
Insomnia. This only happens if i happen to be especially tired. I feel like I'm 'asleep' but I can still hear a lot of what's going on around me, and even instantly respond to something that is said. Usually it's while I'm trying to sleep, like when it's time for bed at night, or when I feel like a little extra sleep in the morning. It's like being somewhere between dreaming and awake.
Lots of gas. I mean a lot. Only every once in a while. I'll let loose a 5 second monster, and then a minute later another one comparable to the first. No foul odor though.
Full body twitch. Again, it's only every once in a while, and it's usually when I'm really calm and relaxed. It's enough of a twitch to make a couch move on carpet.
Horrifying, vampiric looking, dark circles around my eyes. I woke up one morning and it looked like I had a couple of black eyes. That only happens every once in a while too, usually when my throat starts to pain me a bit more.
Lost weight. 15 pounds from 170 to 155. All muscle it seems.
Lots of noise from my stomach. Probably related to the gas.
Ear pain/tinnitus
Facial swelling. Really it seems to only be in the morning. After a shower, some food, and a smoke all's well.
Mild pain in upper left chest. Feels like some pressure, it only hurts when I inhale, and it really only happens right after I eat.
Cold clammy hands and feet. They're cold, and they sweat.

I've had my own theories which range from a lacerated windpipe to lupus. I am extraordinarily open to suggestions. Going to the doctor again probably won't help until I either have a better idea of what's going on myself, or if some severe complication pops up. HALP!

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7 Replies:

  • I also forgot to mention that I have seen a doctor on numerous occasions, resulting in vastly different relpies. One doctor said I had psychosis, and another doctor thinks it's muscular.Neither seems likely, as I do not really lose track of things, and that I have tried to stretch my shoulder/back/neck muscles a bit, and those are still perfectly flexible and normal.Blood tests, normalCT scan, normaltemp. 1.5 degrees below 98.6Chest X-ray, normalPersonally, lacerated windpipe tickles my fancy.
    Anonymous 42789 Replies Flag this Response
  • Barium swallow normal.The reason lacerated windpipe/broken windpipe gets my juices flowing is that I do, in fact, have to adjust and push up on it from time to time in order to feel as though I am swallowing and breathing correctly.
    Anonymous 42789 Replies Flag this Response
  • OK ... So what's your Blood test? Any abnormalities? Abdominal pain? Diarrhea? Increased temperature? Where you live? Did you travel somewhere? Perhaps tapeworms (sarcasm) Or maybe you have lack of B vitamins
    Anonymous 42789 Replies Flag this Response
  • Sorry about the lack of info, I realized that I was missing all that information, and tried to post a reply shortly after I posted the OP.Blood work was 'normal' as of 1 week ago. I probably should ask them what exactly was tested for.CT Scan 'nothing visibly wrong'Barium swallow, same as CT scanChest X-Ray, nothing, but that was done 4 months ago.I live in Anchorage, AK, and I really haven't been in a different climate for the duration of the symptoms.Nope, no travel.No constipation, but for the first couple of days of strep throat (which I am sure was the cause of all of this) I was nearly incapable of swallowing, and that kind of threw off my cycle, but it seems to have self-righted, since now I go once a day, usually around the same time, and everything feels normal when I go.As for the B vitamins, I can't be sure.Yes, my answers are very well thought out.No, it's definitely not a mental condition, however much it may be angering me.More on the backstory:The reason I kept track of everything like that was because shortly after I began my Z-pack (strep treatment) I started having a lot of trouble swallowing, and breathing on the side I would lay on to sleep. I even told a few people about what I believed to be happening and words I liken to 'sepsis' 'psychosis' and 'death' came out of their mouths.Very upsetting to say the least. No doubt that kind of stress could be contributing to my poor sleep. In spite of that fact, I am certain there is a real injury to my throat, which has not been found, and at this rate, will not be found until serious infection, cancer, or death set in.The reason I posted here was to see if there could be a symptom or illness causing these symptoms, that I am missing.
    Anonymous 42789 Replies Flag this Response
  • And that's a yes on the abdominal pain.
    Anonymous 42789 Replies Flag this Response
  • I'm 19, and other than a broken pelvis at 14, I've never had a real health problem in my life.SymptomsStiff/painful throat, I.E. it hurts when I nod, shake my head, turn my head and lift heavy objects.Tense jawStrange sleeping habits. Usually, when I slept, I woke up feeling rested an renewed, but now I awake feeling groggy and excessively tired.Fatigue. I go to sleep at midnight, I wake up at 10 AM, and am ready for bed again at 10 PM.Pure white snotThick, almost foamy looking, mucus from the back of my throat.Insomnia. This only happens if i happen to be especially tired. I feel like I'm 'asleep' but I can still hear a lot of what's going on around me, and even instantly respond to something that is said. Usually it's while I'm trying to sleep, like when it's time for bed at night, or when I feel like a little extra sleep in the morning. It's like being somewhere between dreaming and awake.Lots of gas. I mean a lot. Only every once in a while. I'll let loose a 5 second monster, and then a minute later another one comparable to the first. No foul odor though.Full body twitch. Again, it's only every once in a while, and it's usually when I'm really calm and relaxed. It's enough of a twitch to make a couch move on carpet.Horrifying, vampiric looking, dark circles around my eyes. I woke up one morning and it looked like I had a couple of black eyes. That only happens every once in a while too, usually when my throat starts to pain me a bit more.Lost weight. 15 pounds from 170 to 155. All muscle it seems.Lots of noise from my stomach. Probably related to the gas.Ear pain/tinnitusFacial swelling. Really it seems to only be in the morning. After a shower, some food, and a smoke all's well.Mild pain in upper left chest. Feels like some pressure, it only hurts when I inhale, and it really only happens right after I eat.Cold clammy hands and feet. They're cold, and they sweat.I've had my own theories which range from a lacerated windpipe to lupus. I am extraordinarily open to suggestions. Going to the doctor again probably won't help until I either have a better idea of what's going on myself, or if some severe complication pops up. HALP!It's been a struggle to reply to my own post.Tried 3 times to add in that:CT scan: normalBlood work: normalChest xray: normalBA Swallow: normalIn spite of so many negative (or positive?) results, my symptoms have yet to calm. Pain ranges on a 1-10 scale 1 being not bugging me really and 10 being i can't concentrate on anything else, from 1-7. Usually the pain is at it's worst after I do a little heavy lifting. Just strikes me as odd that that would still hurt after 4 months.
    Anonymous 42789 Replies Flag this Response
  • OK ... So what's your Blood test? Any abnormalities? Abdominal pain? Diarrhea? Increased temperature? Where you live? Did you travel somewhere? Perhaps tapeworms (sarcasm) Or maybe you have lack of B vitaminsBeen trying to respond for about 12 hours. Tried 3 times. Here's the fourth attempt.A little abdominal pain. Decreased temp.Anchorage, AK.Nope. Haven't really been anywhere out of the ordinary.Don't now about the B vitamins.
    Anonymous 42789 Replies Flag this Response
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