Discussions By Condition: I cannot get a diagnosis.

Hemoptysis (spitting & coughing blood)

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: mommyd
  • September 13, 2007
  • 10:35 PM

I have an 18 yr old daughter that started spitting & coughing blood at the end of January this year. Her other symptoms were fatigue, chest tightness, cold like & flu like symptoms, fever, & rash. On the first day they found a she had a pneumomediastinum which just disappeared in a couple of days. She was in 3 hospitals & saw numerous doctors from January to March. The tests that they performed were chest CTs, chest Xrays, bronchoscopies, bromide test, TB test, bloodwork(CANCA, PANCA, antiglum), urine, CT angiogram, upper GI endoscopy, & nasopharyngoscopy. No one could find anything. One of the last doctors said it may just go away & we will never know what it was. Well it went away in March & now it is back. It is not as severe but this was the first day. If anyone has any ideas comments are welcomed. I am not ready to go back to the doctor without some action plan on my own.

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7 Replies:

  • One cause of pneumomediastinum is when increased pressure within the lungs or airways ruptures the air sacs or airways, allowing air to escape into surrounding structures. Such pressure can be caused by excessive coughing, sneezing, vomiting or repeated Valsalva maneuvers (bearing down to increase abdominal pressure, such as during childbirth or defecation). So, sometimes it's the coughing that causes the pneumo...now, why does she cough. Or, is she straining too much for bowel movements and needs a stool softener?
    rad-skw 1605 Replies
    • September 14, 2007
    • 10:14 AM
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  • We know that the pneumomediastinum came from the forceful coughing of blood. She doesn't have any problems with bowel movements. She coughs because she chokes on the blood as it comes up. Sometimes she coughs it up or we can just be sitting there talking & she asks for a tissue because she feels it coming up her throat. This last time she felt sick to her stomach, started running a fever, & then later she started coughing up blood & then it tapered off within 20 minutes. Today she feels like she was never sick.
    mommyd 3 Replies
    • September 14, 2007
    • 11:41 AM
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  • Hello mommyd..I am mommy cat. I have been in this forum for some months.I came here desperate, sick with symptoms similar to your daughters. Someone recommended NAET/Bioset therapy. I went. It works. It will help your daughter with her cold and flu like sx, fever, chest tightness, fatigue and many other issues as well as her apparent "flare ups"...been there, done that. Try this treatement first, save yourself and your daughter a lot of grief. You should also consider Oil of Oregano as a natural antibiotic for her.Drinking alot of water daily will also help. Sincerely,mommy cat:)
    mommy cat 1654 Replies
    • September 15, 2007
    • 00:31 AM
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  • Sorry I didn't catch the "spitting up" part. Could it be from her G.I. tract? Maybe she needs a barium swallow (upper GI). Esophageal varices?
    rad-skw 1605 Replies
    • September 15, 2007
    • 08:53 AM
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  • Thanks for the reply guys.To mommy cat: Thanks for the advice do you think it is allergies? She doesn't get any other symptom unless she is preparing to spit up the blood. Is that the reason you recommended the therapy?To rad-skw: She had the upper GI endoscopy & I believe the barium swallow if I can recall. She has had sooo many test I cannot remember all of them. I ordered all of her medical records from everyone, so they are coming in now. So far I have about 75 pages. I am expecting over 300 more. She has had a CT sinus & lung biopsy. Of course everything came out clear.
    Anonymous 42789 Replies
    • September 15, 2007
    • 00:57 PM
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  • I know that some parents don't want to hear this, vut there may be some drugs involved in your daughters "situation," so please talk honestly to her and ask her if she might have tried any thing, maybe she felt peer pressure. Get her tested and good luck.
    Anonymous 42789 Replies
    • September 15, 2007
    • 08:58 PM
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  • Thanks for the idea of getting her tested for drugs. We did that even though we knew it wasn't it & they came back negative too. The doctors looked up her nose as well to see if there had been any signs of her sniffing things & nothing there. I even cleaned & organized her whole room & car when she was in the hospital the first time while my husband was with her & did not find anything. She refuses to hang around people of the sort, never would go to the parties she was invited to, & if she did find out they were using quickly stopped seeing them as friends. She even stopped hanging around this one person because my daughter said "she loves drama too much & I (my daughter) don't have time for it". For her senior prom we gave her a curfew of 2 AM & she was home before midnight. She cheered all her life, ran cross-country & track, so she knows about keeping her body sacred.
    mommyd 3 Replies
    • September 16, 2007
    • 05:49 PM
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