Although I was diagnoised with Lupus just over a year ago I have deliberately chosen the "I cannot get a diagnosis forum" for a reason. My symptoms are joint pain (which also includes pain in my right thigh), numbness and tingling in my hands (mostly at night), skin problems, mouth ulcers, dry mouth, dry eyes, extreme fatigue, swollen glands in my neck particularly the saliva glands. I also have bowel problems (pain and diarrhoea sometimes bleeding) and pain around my right rib and back area. I see a Connective Tissue registrar for my Lupus and up until this Tuesday the diagnosis was SLE.
However, on Tuesday I attended only to find my doctor had moved on and I had a new one. All of a sudden the diagnosis has changed. He has said I have Carpel Tunnel in one wrist and has injected it, he has said the pain in one elbow is Golfers elbow and given me a support and also said I have Fibromyalgia and mild SLE.
I see an Oral Surgeon for the mouth problems and they think I have Sjorgren's Syndrome, but when they done blood tests they found I have raised iron so are investigating that now and have arranged a partoid Sialogram for the jaw pain. I am also being seen in the Gastro department for my bowel problems and Dermatology for my skin problems. Each department has their own set of notes and all have different opinions and in the meantime I feel awful and feel like I am getting nowhere. I feel that all these problems are connected to one illness but what? If only they would all talk to each other!!!! Has anyone got any advice or idea what the problem could be or am I just unlucky enough to have lots of problems. Sorry this is so long winded but it's difficult to explain it all in a nutshell........any help or advice would be welcome.
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