Hello, I have had these symptoms for years and they continually are getting worse. I am worried I am past the 'half way' point now.
Since I was 22, I started to get asmtha like symptoms. Doctors put me on singulair and an inhaler (although doing a full test for asthma showed nothing). Then I had an allergy test which showed nothing extreme. Finally the shortness of breath progressed to 'not feeling well' in general, dark circles under eyes, and a pinch in the chest. I was sent to a cardio Dr. and they ran a stress test - they said I was fine. I explained that I could get the pinch in my chest to go away and feel GREAT if I worked myself up for an extended period of time (cardio) but I would feel a great opening sension where the pinching was. I was then prescribed xanax b/c they believed it was anxiety. Shortly after this I had a swollen spot on the top of my foot. One Dr. said it was muscle related and I needed to buy $100 sneakers. I pushed and pushed with other Dr.'s, finally got a sonogram and they found it was a blood clot. It was superficial.
This has continued for almost a decade (I am 31 now). Finally blood tests have been taken and they found an elevated PTT count and an inhibitor that does not correct with mixing (he said something about immune issue). I am awaiting more test results (almost 1 month between!). I constantly am tired now, constantly and have had many more clots. The oncologist told me to start taking daily aspirin (small dose) which did help get ride of the obvious clots. I still dont 'feel well' at all, have dark circles under my eyes that vary during the day from GREAT in the morning to super dark in the afternoon. Whenever my eyes are really dark I usually feel my worst, the pinching, hard time concentrating, etc. The worst thing is feeling like I'm 'getting dumb'. Feeling like this constantly makes it hard for me to concentrate on things or make the gears turn to think like I used to. It is worse than feeling like I have cotton in my head.
Lastly I have muscle aches that mostly stay in my legs. My ankles are the worst and they are what get swollen spots (nothing ever large). The worst is top of my foot or hand where it is VERY small but obvious on the foot (by red raised spot). These aches do not have a great deal of swelling but sure feel like they should. It usually hurts worse in the AM when I wake up and try to walk.
The only other thing of significance is I had sinus surgery a few years back (when they beleived it was my sinuses causing all these issues) and also had a colonoscopy and endoscopy when they thought my chest pain/pinch had to do with that. They did put me on nexium (until insurance no longer covered and had to switch to aciphex). They found some light swelling and a hiatal hernia.
Please respond. Family history: Vasculitis, Leukemia, Cancer, Heart Disease, Lupus.
I have been fairly healthy (5'9" 180lbs) for quite some time. The only thing that helps me feel better is if I stay constantly on cardio and eat well (which is fine but c'mon!)
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