Discussions By Condition: I cannot get a diagnosis.

Help with my daughter

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: Edenanggio
  • December 18, 2008
  • 02:44 AM

For the last 4 years my husband and I have been in and out of hospitals and doctors offices trying to figure out what is wrong with my 3 1/2 year old. Angelique was born at 29 weeks with a grade 4 brain bleed. The bleed resolved on it's own and we were told she would never walk, talk or eat solid foods because of the severity of damage the bleed had done to her brain. She proved them all wrong. She started walking and eating solid foods at 15 months and at 36 months started talking a little bit. She still does not really talk much. At 1 1/2 she was diagnosed with Cerebal Palsy. At the time the diagnosis fit but now it doesn't at all. Angelique has trouble walking, focusing, climbing stairs without using hands and feet and doing other normal day to day functions such as dressing herself at all or eating with utensils. She mimic's more then anything but has begun to somewhat talk in the past six months. She's very clumsy and unsure of her footing and falls often. She has not grown a single inch in 2 years. Her height at 18 months is the same now at 3 1/2. Her weight has remained the same as well. Her doctor see's no problem with this. I however do not think it's normal growth for a child this age to not grow AT ALL in 2 years. Most of her problems I believe lie in her early birth but the poor growth can not be explained by this. She grew slowly as a preemie should until 18 months when it stopped. Does anybody have any idea what this could be?

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  • It's hard to say over the internet. I imagine you have taken her to a developmental physician for advice..or....well, looks like you need a new doctor, acutally. You may need an endocrinologist to access the situation and a neurologist, too. You should contact your local school district and get them involved with pre-school classes, or if you are not confortable with the socializing, they can provide speech and occupational therapy and perhaps physical therapy, too. Your local school district is the best for the therapies and must provide them according to federal law. The rest is a delicate medical situation due to her preemie complications. Nutrition could be involved, and you would need to study nutrition like a scientist to help her thrive.
    Monsterlove 2921 Replies
    • December 18, 2008
    • 05:14 AM
    • 0
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