Discussions By Condition: I cannot get a diagnosis.

Help! Undiagnosed and Scared

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: UndiagnosedLady
  • February 13, 2008
  • 09:09 PM

HI I LIVE IN TEXAS. HERE IS MY STORY.

Sometime in November, One day I went out with my boyfriend, my sister and her boyfriend. At night we went back to my sisters' house. It was raining and I was driving. My tires skid into a puddle of water and I got a flat tire and I crashed into a pole. As I ran into the pole I felt my head and neck moved back and forth with great force. I never did go to the doctor that night. After the accident I felt fine. Around two days later I had the worst migraine ever. My migraine lasted all day. I took Tylenol and it helped a little. I also put ice on my head. After a couple days I started getting throbbing headaches. It was less painful then the migraine I had. My headaches hurt so much that the front of my head felt tingly and became numb at times. With my headaches I also felt a strong pressure on my chest. I felt like it was difficult to breathe. My mom mentioned it was heartburn. While I felt this I would drive my car. For a couple of days I thought my car had a burning smell. I thought I smelt gas or something similar to it. While I was driving I felt like it was difficult to breath and my heart was beating really fast. I thought I was going to have a stroke. At times my hands became numb. I opened the windows but that didn't help. At times I also burped a lot and had a strange taste in my mouth. It tasted like gas. When I burped I tasted it and smelt it coming out from my mouthOne day I was at home and felt like I could not breathe. My parents took me to the clinic. The doctor and nurse checked my oxygen level and blood pressure. It looked normal. They also took an x-ray of my chest and an EKG. It all came back normal. I told the Dr. about the taste and smell of gas I had coming out of my mouth. I told them that I thought it might be carbon monoxide. He decided to do a blood test to see if it was a possibility. A week passed by and I got a call and my blood test came back normal. All I had was low potassium, but this was not anything major. I kept having the same symptoms. More weeks passed by.
I felt a little better until one day, my boyfriend and I were at my house getting ready to go out to eat Chinese food at a restaurant. I had a bad headache and I felt my chest pressing again. The inside of my chest felt cold. All at once I felt like a lot of tiny needles from the top of my head falling down until I felt the inside of my head completely empty and numb. It felt like a balloon floating.I felt like my head is going to fall off, so I held my head with my hand a couple of weeks.
A couple days later, I felt pain around my eyes, cheeks, ears, and nose. I also felt like something cold was dripping from the inside my head. I put on nasal spray bc I thought it was a sinus infection. The headaches got worse that I could not sleep at night. I decided to go back to the clinic and the Dr. gave me sleeping pills, Vicotin for the pain and he decided to give me a CAT scan to see if I had a sinus infection. I got blood drawn out to see if my thyroid was normal, to check my blood count, and for other tests. I took the pills and I felt less pain. I could sleep now at night. In about a week, I went back to the Dr. and he told me my CAT scan was normal. I told him I still have pain. I told him I felt like I had something thick and sharp, needlelike sensation, poking the back of my eyes and cheeks. It felt like something was pulling my eyes out. It was like wires were wrapped around my eyes. The Dr. told me he was going to do an MRI. I went to have my MRI done and I did not get my results until two weeks later. Mhurt horribly, painfully bad. I felt that I had something falling from the top of my head. It felt like head felt many sharp pins and needles, at once, were falling and piercing and cutting all the way through the inside of my eyes, nose, the sides of my ears and my tongue. When I felt this, it also had a burning sensation. It felt like the inside of my head was on fire. I had this feeling all day and all night. The pain was so bad I was shaking and could not stop crying. My head felt wobbly. I also felt like a lot of tiny needles were falling down from the top of my head. When this happened I felt the needles or whatever sensation it is giving me shocks or static, or electricity. I felt the shocks inside my head and also at the bottom of my feet. It felt so weird and painful.The Dr. told me my results came back normal. He sent me to have a urine test and I had a minor infection. He gave me pills for that. He also gave me Floxentine pills. I only took the pills the Dr. gave me for a couple of days because my stomach hurt a lot. I also lost my appetite. I hardly ate food. I also could not sleep during those days. I went back to the Dr. and he told me to stop taking all the medicine I was given. He gave me Nexium pills for my stomach. He also drew blood to see if I had any stomach problems. I started taking my pills and my stomach felt better and I could sleep at night now. Since then until now I have felt different sensations inside my head, but being completely numb and empty. My head has felt completely numb for around two months. Some days I felt like there were wires inside my head. I felt like there were pins and needles, I felt like my head was on fire. I felt like I had air or my head was cold inside. I had a sensation like wires were pulling my skull or my head out of my head. I had a sensation like water falling from the top of my head. It felt cold. I also had itching and tingly sensations inside my head. Almost everyday I have different sensations inside my head. Some days I would have ringing in my ears and my vision would see white spots for just a second.
Recently, my head feels like the numb sensation I mentioned. I am sometime still feeling like the sensation that something is falling from the inside of my head, sometimes a cold sensation. This sensation I have also felt in my neck and now I also feel my neck empty or numb. With this my neck hurts a lot. It feels like my head is heavy and wobbly and makes my neck and shoulder hurt. I felt pressure that was squeezing my whole head moving around and also squeezing the back of my neck. I felt so much pressure I felt light headed and nearly passed out. I also feel like my body feels heavy, like it is tired.
I already went to the Dr. and had a 2 hour EEG done and he said it came out normal. I also have a urine test. I have another severe bladder infection. All the Dr. gave me was Floxentine medicine and antibiotics for my infection. I only took these medicines for 3 days and then stopped them. I got diarrhea, abdominal cramps, and a fluttering swollen throat from the medicine. I feel dizzy all the time, even though I do not take any medicine. I have a lot of pain and pressure inside my head and around my neck and spine. My head feels like it wants to explode.
It is now February 08, 2008 and I feel worse. My head is so bad it feels like it is tearing apart inside. It feels like a balloon that is blowing up and up, to the sides and all around and suddenly it pops and water or something cold just falls to the back of my head. When this happens it feels like it is pulling my spinal cord or something close to it up and then down. I also feel my body shiver and at the same time the pressure is pulling my neck. I feel cold and then a lot of fire heat around it. I feel like I need to put something around my neck to hold it because my nerves around it hurt so badly. Every time this happens it feels like something is tearing the inside of my head more and more. I still feel like something is dripping cold from the top of my head to my neck. My eyes have a lot of pressure and they feel like they want to pop out. My body sometimes feels cold inside too.
JUST NEED ANY KIND OF INFORMATION TO GO TO ANY HOSPITAL ANYWHERE AROUND THE WORLD. WHAT TESTS SHOULD I TAKE.

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6 Replies:

  • Yes i crashed into a utilty pole. After the accident my boyfriend called for help on his cellphone.
    UndiagnosedLady 2 Replies
    • February 14, 2008
    • 05:22 AM
    • 0
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  • Did you have your car checked to see if it is leaking? carbon monoxide?
    Anonymous 42789 Replies
    • February 14, 2008
    • 01:23 PM
    • 0
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  • Sounds like nerve damage. If you don't get answers, ask to see a pain specialist.
    aquila 1263 Replies
    • February 14, 2008
    • 01:58 PM
    • 0
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  • This sounds very much like occipital neuralgia to me, possibly trigerminal neuralgia as well. Find a nerve injury specialist whom you can discuss the issue--ask about trying a nerve block (injection near the occipital nerves).
    Anonymous 42789 Replies
    • February 14, 2008
    • 05:47 PM
    • 0
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  • Well, have you ever heard of "Shaken Baby Syndrome"? Look it up. My guess is you have a traumatic brain injury from the accident, along with severe whiplash. Also, part of the spinal cord has been traumatized and may have tiny unmeasurable rips. Whiplash and these soft tissue injuries cannot be measured in x-rays or tests due to the soft tissue. You need a neurologist who specializes in accidents/brain injuries and a "whiplash" specialist, which would be a special chiropractor, most likely, along with a pain management clinic. I'm sure your parents know to report this to their insurance carrier. You should get a settlement eventually under their car policy in addition to $5000 medical, which is nothing.
    Monsterlove 2921 Replies
    • February 14, 2008
    • 07:37 PM
    • 0
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  • Did you have your car checked to see if it is leaking? carbon monoxide? They did check the car and it was not leaking. I also sent it to a mechanic and he everthing was fine. It has no carbon monoxide.
    UndiagnosedLady 2 Replies
    • February 15, 2008
    • 00:21 AM
    • 0
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