:eek: My name is sofi and I have been ill for about 7 years. In 2000 I got a fibrorsis tumor by my right jaw. My mouth was clamped shut. I lived off of liquids and baby food for 7 months. Finally a doctor said it was benign and put me on steriods(prednisone). After a few years I was tapered off. Then in 2003 i got really ill again. I would throw up 4-5 a day and had NO appiette. I lost alot of weight and everything smelled like bleach and dry ramen noodles.(how werid is that.)I had horrible back pain. After many test and finally a ct scan, doctors found that my left kidney failed and my right kidney grew to make up for the left. After a few sugerys in 2004 i was put on steriods again. I thought I was getting better but have been feeling worse. I am now 27 and lost my entire young adulthood in the hospitals and dcotors office.
I just came off prednisone in oct 2006. I have no appeitte, my bowels get loose very quickly, very fatique, dizzy spells and loss of balance. My legs feel like jello. Lost my sex drive, can't focus or consintrat. I gag when I brush my teeth. I blech all the time and my eye is red. I feel sick it is hard to get out of bed. some nights i can't sleep. I can't even climb a flight of stairs. I feel like my body is falling apart.
I have done my test and going to many doctors. So far all I know is that I have aniema(which I take meds for) and a high sed rate. The doctor thinks some type of connective tissues disorder. I want my life back. I pray to God to grant me and everyone suffering with good health. Ameen.
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