Discussions By Condition: I cannot get a diagnosis.

HELP! Please. Medical Mystery

Posted In: I cannot get a diagnosis. 39 Replies
  • Posted By: MikeWildcats
  • January 13, 2007
  • 07:34 AM

Hello All.
So Ihave a laundry list of symptoms and wrong diagnosis or at least I still feel absolutely awful someone please help. Here's my story: I'm 28 years old and male for starters. Ok so I have random stomach pains and malaise and headaches for years now along with generally not feeling well at all. I've had my gall bladder removed two years ago because it was scarred badly. I've also had an irregular heart beat and been hospitalized twice with atrial fibrillation. Then this past September I felt so generally bad I couldn't function any more. I've since had a worse case of the stuff as above as well as numbness in my hands and feet, intermittant diahrea and malabsorption issues, sweating from my hands, feet, and armpits profusely, intolerance to any physical activity, chest pain, difficulty concentrating, joint pain and muscle twitches. Through the myriad of tests I've had so far also I've intermittantly had an abnormal liver enzyme count once, high glucose level once and a something off once with some sort of thyroid test. My doc also diagnosed me in Sept. with Mitral Valve Prolapse and Celiac Disease. The problem is that he based this on a single biopsy of my intestine which showed damage and an antibody test that came back negative for Celiac. I know that you can still have Celiac with a negative antibody test but I have been eating a strict gluten free diet since Sept. and I still feel just as awful. I've been eating only brown rice and beans for two weeks now and still feel awful. He says that perhaps it's psychosomatic but I'm not buying it. Someone please help! It's ruining my life!

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39 Replies:

  • Also I have had hypertension since I was 21 and have been taking toprol and lisinipril for my heart rhythym and high blood pressure.
    MikeWildcats 6 Replies
    • January 13, 2007
    • 07:39 AM
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  • are you taking a natural multi-vitamin? are you taking anything to heal the damage from the celiac disease? are you eating fruits and veggies and fish and lamb, etc besides just rice and beans? Gluten free doesnt mean starving yourself...you need nutrition after years of malnutrition.
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:22 AM
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  • I am taking a centrum multivitamin which should be gluten free a vitamin B supplement a supplement to help with healing intestines and enzymes to aid in digestion. I am not trying to starve myself and had been eating more completely but it just hurts too bad right now.
    MikeWildcats 6 Replies
    • January 13, 2007
    • 08:26 AM
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  • you also need to give your liver a break somehow...seee if there's anyway to cut back on meds...also go to health food store and look for vitamin supplement designed to improve liver function...you might also consider naturopathic options at this point...you cant take any more medicine and dont drink any alcohol or take tylenol or naproxen, etc
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:26 AM
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  • take a natural vitamin that says it is specifically gluten free...whole foods loves helping gluten free customers....ask for manager...the smallest amount of gluten cozs the reaction...it is not based on quantity.
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:30 AM
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  • I'll give that a try I just dunno if Celiac is right and if it is what can I do to start being able to function again.
    MikeWildcats 6 Replies
    • January 13, 2007
    • 08:31 AM
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  • iopsy is the gold standard diagnosis for celiac....if you biopsied celiac - you're celiac.......be *extremely* careful about what you swallow...check everything....celiac.org is a great site to help...there is alot of support out there
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:37 AM
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  • also be very careful eating out.....check into restaurants that have gluten free menus - i know Outback has one...also pf chang's...you have to be careful with restaurant kitchens as there are a lot of unknown ingredients that are in the dishes
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:39 AM
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  • Thanks. I've been extremely careful to the point of new dishes, toothpaste, checking my girlfriend's lipstick etc.... but I just can't seem to feel better?:(
    MikeWildcats 6 Replies
    • January 13, 2007
    • 08:43 AM
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  • http://www.drcranton.com/elimination_diet.htmTry that. And, by all means, stay gluten-free.
    Anonymous 42789 Replies
    • January 13, 2007
    • 08:53 AM
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  • ;) Hello There; So, This is what i would do, it involves three separate items # 1; Made by Source Naturals, Mega-One, this is a cold pressed multi-vitamin. # 2; Made by Natures Way, Efa-Gold Flax Oil, High Potency: 1300 M.G. # 3; Fresh Wheat Grass Liquid; 2 shots are equivelent to 4lb's of fresh vegetables. The benifits are unbelievable. Good Luck. As Always In His Service.:)
    hogndog 426 Replies
    • January 13, 2007
    • 08:58 AM
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  • http://www.drcranton.com/elimination_diet.htm Try that. And, by all means, stay gluten-free. Thanks again I'll give that diet a shot and hopefully it will do the trick!
    MikeWildcats 6 Replies
    • January 13, 2007
    • 09:10 AM
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  • ;) Your quite welcome; By the way, all of these agents will not & do not harm the body. Ta-Ta, for now.:D
    hogndog 426 Replies
    • January 13, 2007
    • 09:21 AM
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  • Check for Candida and food allergies.
    Anonymous 42789 Replies
    • January 13, 2007
    • 04:54 PM
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  • ONE THING TO DO -- FIND A BETTER VITAMIN THAN CENTRUM!!! LOOK AT A LIST OF MULTIVITAMINS AND CENTRUM IS AT THE BOTTOM!!! I USED TO WORK FOR A WELLNESS COMPANY AND WE GOT LISTS OF SCIENTIFIC STUDIES. CENTRUM IS VERY DIFFICULT TO BREAK DOWN AND USUALLY THE ABSORPTION RATE IS QUITE LOW. BY THE TIME YOU ARE GETTING ANY NUTRITIONAL VALUE- IT'S ALREADY IN THE TOILET!!! :eek: I DON'T WANT TO SUGGEST ONE THING OR ANOTHER- JUST DO YOUR HOMEWORK AND FIND THE ONE THAT IS RIGHT FOR YOU. WHOLE FOODS IS PROBABLY A GOOD PLACE TO START. OR TALK TO NATURAPATH/ACUPUNCTURIST. I'VE BEEN DOING MASSAGE FOR 14 YEARS NOW AND AM CURRENTLY STUDYING TO BE AN ACUPUNCTURIST (DOCTOR OF ORIENTAL MEDICINE). THERE ARE MANY HERBS ALSO THAT CAN HELP TO RESTORE BALANCE IN YOUR BODY. CELIAC DISEASE IS VERY ******n YOUR BODY AND IN MANY CASES TAKES YEARS TO BE PROPERLY DIAGNOSED- IF EVER. STICK TO YOUR RESTRICTIVE DIET REGARDING CELIACS- BUT ALSO BE SURE TO GET ALL THE SUPPLEMENTS YOU NEED IN OTHER AREAS. IN CHINESE MEDICINE, WE TREAT FOR THAT BY STRENGHTENING SPLEEN/STOMACH AND WEI QI. WHICH IN ENGLISH MEANS YOUR BODYS ABILITY TO ASSIMILATE NUTRITION AND WEI QI (IMMUNE DEFENSE). HAVE THEY CHECKED YOUR STOMACH'S "INTRINSIC FACTOR"?? THIS IS A GLYCOPROTEIN THAT FACILITATES THE VITAL B-12 ABSORPTION IN THE INTESTINES. PLUS IN YOUR MULTIVITAMIN THERE ARE "FAT SOLUBLE VITAMINS" PRESENT, YOUR STRICT DIET DOES NOT ALLOW THESE TO BE UTILIZED DUE TO THE FACT THAT THEY NEED OTHER FATS OR "LIPIDS" TO BREAK THEM DOWN. LOOK UP MALAPSORPTION. BY NOT BEING ABLE TO BE BROKEN DOWN FOR USE, WHETHER ITS BECAUSE YOU ARE FASTING, TOO LOW ON FATS, ETC. IT CAN INVALIDATE THE WHOLE PILL!!! YOU PROBABLY NEED A SUPPLEMENT TAILORED TO THE NEEDS OF A CELIAC PATIENT!!! NOT MUCH MANUVERING ROOM- BUT WITH PROPER ATTENTION AND DILIGENCE IN FINDING OUT WHAT WORKS AND WHAT DOESN'T- YOU SHOULD BE FINE.:p
    1111healer 106 Replies
    • January 13, 2007
    • 05:38 PM
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  • :D Hello Unregistered; I have the information that you seek!; You will find it @ http://www.candidafree.net./index.htm Have fun & Good Luck, As Always In His Service.
    hogndog 426 Replies
    • January 13, 2007
    • 05:46 PM
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  • It is possible that the rice or beans you're eating are the true culprits. If they are pre-packaged it could be one of the additives or flavorings in them. Although Celiac is the only food intolerence that's really medically recognized (and that's kind of a joke because of how rarely its considered and how bad the testing is), the same reactions have been seen as resulting from soy, milk, corn, potato, rice, and all manner of spices and flavorings.
    Azaral 152 Replies
    • January 13, 2007
    • 05:58 PM
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  • It is possible that the rice or beans you're eating are the true culprits. If they are pre-packaged it could be one of the additives or flavorings in them. Although Celiac is the only food intolerence that's really medically recognized (and that's kind of a joke because of how rarely its considered and how bad the testing is), the same reactions have been seen as resulting from soy, milk, corn, potato, rice, and all manner of spices and flavorings.I agree with you- rice and beans are very acidic to the stomach.I also agree with the person who said that CENTRUM is not the best vitamin.I used the beyondhealth vitamin. It is natural, toxin free, gluten free, etc.It stinks because it is not candy coated- but I can feel the benefits. I paid $85 plus shipping but I just know that I will be saving so much more because I won't be getting sick and I won't be paying visits to the ER.I started doing the Cranton diet months back ( so sweet somebody posted the link)- it has helped me so much! It is kinda like being born again, because you have to start to grow a taste for new and rare foods but don't be discourage.The truth is that white rice, wheat, pastas, boxed cereals and other "make believe good foods" are empty calories. Even if they have being "enriched"- they are still poor sources of nutrients.Instead of bread, rice, and pasta, I cook taro, yucca, yams, steam cabbage etc. I already started adding basil, powdered mustard, and rosmary to my foods-I also enjoy making turkey broth with cabbage and green collards and carrots...I do food combination, so I don't mix starches with protein in the same meal.To the Cranton diet- I eliminated the nuts and the cooking oils, except for Olive. I replaced the nuts with seeds. I do eat lots of garlic, onion and lime juice as they benefit the body in so many ways. I also rotate foods- in case I have a leaky gut. I do think I had one and that it is getting better.Good Luck!
    Anonymous 42789 Replies
    • January 13, 2007
    • 06:27 PM
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  • :D Hello There; I've found a web site you may be interested in, It's @; http://www.dynamicgreens.com/?gclid=CMCF9sj2y4kCFShCY Good Luck & let me know what you think. As Always, In His Service.;)
    hogndog 426 Replies
    • January 13, 2007
    • 06:42 PM
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  • there are cheaper sources for high quality natural multi-vitamins.....try michaelshealth.com
    Anonymous 42789 Replies
    • January 13, 2007
    • 06:45 PM
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