My husband has been sick and getting sicker for about 4 years now. I should preface this by saying he has had migraines since the age of 7. but 4 years ago he started having weakness in his legs, this progressed to weakness in his arms and extremities. He has also had fatigue, occasional incontinence, slurring of speach, night tremors, muscle spasms, and lately we have added violent shivering attacks. He says its like he is cold from the inside out. Funny thing is his body is very hot during these attacks, and the room temperature is comfortable. His respiration increases into the 30s and his pulse is rapid. then he falls into a deep sleep.
The symptoms used to come and go with weeks of normalcy. Now we are luck to get a day without symptoms.
He has had an MRI which show lesions, however the doctors say they are not MS lesions. So for now MS has been ruled out.
Our problem is everytime we almost get to an answer we lose our health coverage and then have to start all over again when we get new coverage. I am terrified we are running out of time. His family and a lot of the medical personell think I may exaggerate. but they dont sit with him, they don't see what I see day in and day out. I am at my wits end, please somebody, help.