Discussions By Condition: I cannot get a diagnosis.

HELP! My Teenager has been SICK for 4 years!

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: Anonymous
  • January 25, 2010
  • 05:56 PM

Although I am an RN with 20 years under my belt, I cant seem to help my own daughter. I am up against a wall, as she has been SICK, SICK, SICK, for 10 PLUS years, now. In the beginning it was episodes that only lasted a few minutes...but it has progressed to daily episodes, some laasting for a few weeks at a time. I myself sometimes believe it to be Neuro-Cardiogenic Syncope, or NMS, but I have been dismissed and ignored by numerous physicians for so long......not going there.

Anyway, here's the list of symptoms-though she does have a number of them, these seem to be the ones that are most frequent......

1. Nausea. By this I mean every single day, sometimes for days at a time.

2. Tachycardia-when she feels "sick" or "weak" as she calls it, her heart rate increases to well over 140, once it was 188. This I have verified with the use of MY own personal Sat monitor AND an 4 ECG's in the ER-while again "going in" for having passed out.

3. Severe exhaustion. I mean she has literally been in the bed, or close to the bed for 6 months.

4. Excessive thirst (they have ruled out Diabetes Mellitus, but NOT D. Insipidus as all the physicians wont due any work up for that citing "not enough symptoms to warrant a work up".

5. 3-7 Periods a month....which I believe may just be a side effect of whatever it is that she has (though I could easily be wrong).

6. Motion sickness-if we go anywhere in a vehicle, we have to plan accordingly-you know, if the trip lasts more than say 20-30 minutes as she will become very ill with the syncope, nausea and weakness.

7. Weakness-just plain generalized weakness 24/7.

Yes, I have jumped up and down in the Dr office may times, but they just tell me "ah, it'll pass", as if she's faking it. She graduated last June and has literally been out of commission since. She does NOTHING and goes NO WHERE, ever.......period.

ANY suggestions at this point are more than welcome!

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4 Replies:

  • I agree with your thoughts of NCS, or NMS. Very sharp diagnosiing skills, there nursy nurse
    Anonymous 42789 Replies
    • January 25, 2010
    • 09:57 PM
    • 0
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  • Hi.Isnt that doctor negligence?Cant you like sue someone or at least threaten to sue someone because i know i would.To know that someone has symptoms but not be willing to do tests to me is outright negligence.There seems to be so many stories of people saying the same things ie:that doctors are dismissing them or trying to send them to psychiatrists or trying to make out that they are a hypochondriac or lying.If the public doesnt do anything file lawsuits or go to the media it will just keep happening.Anyway,do you have the copy of her lab results?What tests were out of ranges or still in the ranges but towards the upper ends?As you probably know yourself,reference ranges are usually too wide & change from lab to lab so being in the range doesnt necessarily exclude a person from having an illness.Has yoru daughter been checked for bacterial infections?When you say she has 3-7 periods a month-what do you mean by that?Did you mean menstrual periods or was that a typo?Although I am an RN with 20 years under my belt, I cant seem to help my own daughter. I am up against a wall, as she has been SICK, SICK, SICK, for 10 PLUS years, now. In the beginning it was episodes that only lasted a few minutes...but it has progressed to daily episodes, some laasting for a few weeks at a time. I myself sometimes believe it to be Neuro-Cardiogenic Syncope, or NMS, but I have been dismissed and ignored by numerous physicians for so long......not going there.Anyway, here's the list of symptoms-though she does have a number of them, these seem to be the ones that are most frequent......1. Nausea. By this I mean every single day, sometimes for days at a time.2. Tachycardia-when she feels "sick" or "weak" as she calls it, her heart rate increases to well over 140, once it was 188. This I have verified with the use of MY own personal Sat monitor AND an 4 ECG's in the ER-while again "going in" for having passed out.3. Severe exhaustion. I mean she has literally been in the bed, or close to the bed for 6 months.4. Excessive thirst (they have ruled out Diabetes Mellitus, but NOT D. Insipidus as all the physicians wont due any work up for that citing "not enough symptoms to warrant a work up".5. 3-7 Periods a month....which I believe may just be a side effect of whatever it is that she has (though I could easily be wrong).6. Motion sickness-if we go anywhere in a vehicle, we have to plan accordingly-you know, if the trip lasts more than say 20-30 minutes as she will become very ill with the syncope, nausea and weakness.7. Weakness-just plain generalized weakness 24/7.Yes, I have jumped up and down in the Dr office may times, but they just tell me "ah, it'll pass", as if she's faking it. She graduated last June and has literally been out of commission since. She does NOTHING and goes NO WHERE, ever.......period.ANY suggestions at this point are more than welcome!
    Anonymous 42789 Replies
    • January 26, 2010
    • 09:30 AM
    • 0
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  • Hi, I am very sorry to hear about your daughter. I can imagine how frustrated you are about this. I have no medical training only a suggestion. In my experience there are some tests that doctors cannot do unless the patient specifically asks for them. I would suggest that you start researching the symptoms and find how to diagnosis the problem. Then when you visit the doctor tell him I believe it may be this and I want you to test my B12 absorption for example. Hopefully it helps, like I said I don't have any medical training. I feel for you and your daughter. Good luck.Although I am an RN with 20 years under my belt, I cant seem to help my own daughter. I am up against a wall, as she has been SICK, SICK, SICK, for 10 PLUS years, now. In the beginning it was episodes that only lasted a few minutes...but it has progressed to daily episodes, some laasting for a few weeks at a time. I myself sometimes believe it to be Neuro-Cardiogenic Syncope, or NMS, but I have been dismissed and ignored by numerous physicians for so long......not going there.Anyway, here's the list of symptoms-though she does have a number of them, these seem to be the ones that are most frequent......1. Nausea. By this I mean every single day, sometimes for days at a time.2. Tachycardia-when she feels "sick" or "weak" as she calls it, her heart rate increases to well over 140, once it was 188. This I have verified with the use of MY own personal Sat monitor AND an 4 ECG's in the ER-while again "going in" for having passed out.3. Severe exhaustion. I mean she has literally been in the bed, or close to the bed for 6 months.4. Excessive thirst (they have ruled out Diabetes Mellitus, but NOT D. Insipidus as all the physicians wont due any work up for that citing "not enough symptoms to warrant a work up".5. 3-7 Periods a month....which I believe may just be a side effect of whatever it is that she has (though I could easily be wrong).6. Motion sickness-if we go anywhere in a vehicle, we have to plan accordingly-you know, if the trip lasts more than say 20-30 minutes as she will become very ill with the syncope, nausea and weakness.7. Weakness-just plain generalized weakness 24/7.Yes, I have jumped up and down in the Dr office may times, but they just tell me "ah, it'll pass", as if she's faking it. She graduated last June and has literally been out of commission since. She does NOTHING and goes NO WHERE, ever.......period.ANY suggestions at this point are more than welcome!
    Anonymous 42789 Replies
    • January 26, 2010
    • 03:27 PM
    • 0
    Flag this Response
  • Hi, I am very sorry to hear about your daughter. I can imagine how frustrated you are about this. I have no medical training only a suggestion. In my experience there are some tests that doctors cannot do unless the patient specifically asks for them. I would suggest that you start researching the symptoms and find how to diagnosis the problem. Then when you visit the doctor tell him I believe it may be this and I want you to test my B12 absorption for example. Hopefully it helps, like I said I don't have any medical training. I feel for you and your daughter. Good luck.A lot of the symptoms you mention would fit an adrenal gland disease.
    Anonymous 42789 Replies
    • January 28, 2010
    • 02:48 AM
    • 0
    Flag this Response
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