i am a 30year old woman and since the age of 18 i have been suffering from pain in my kidneys.
this started when my twins were 1year old, i was taken to hospital in agony, i spent ten days in there and left with no diagnosis. since this epesode i have been back and forth to the doctors and in and out of hospital that much that they feel more like home than home does.
two years ago i was finaly refered to a kidney specialist as i was now suffering from extremly high blood pressure (tablets are now taken for this)
after several tests i was told that my left kidney is half the size it should be and badly scared and damaged (they dont know why) and my right one had a small cyst but not to worry about it as you can live with one kidney.
since this time i have been to the doctors 100's of times (yet again in agony) only to be given more antibiotics and pain killers.
over christmas i have been to the doctors four times and taken into hospital for 3 nights, i have nearly allways got protien in my urine but this time there was also blood, my blood tests showed there is inflamation somewhere in my body but they didn't know where. yet again they gave me a load of antibiotics and sent me home (undiagnosed)
the doctors keep giving me antibiotics but at the same time telling me there is no sign of an infection.
so far in this the doctors have suspected IBS, APENDIX, BLOOD CLOT, LUNG INFECTIONS, GAS, STOMACH ULCER AND A PULLED MUSCLE OHHHHHH and several urine infections,
i am waiting on the results of a stomach ulcer at the moment (from my last stint)
i asked the doctor recently about what the specialist said in his report about my kidneys as i am not entirely sure, his words were "they just dont know"
i am at the end of my tether with all this.
i am fed up with spending night after night crawling around the bedroom in agony and nothing reliving the pain, it is absolute agony at times, i am constantly aware of my kidneys as every day for the last 8months to 1year my right one as ached all day/night long, i can cope with this as i have learned how to, it's the blows of feeling like someone has there hand deep inside squeezing the air out of my kidney.
Private bit: i havn't been able to have sex in months as every time we try, it feels like something is going to burst inside, (extreem pressure)
it used to be one side or the other but now they play me up at the same time, im so tired of all this but my doctor still has no answers,
can any one help me on what to do next?
from a desperate soul.