Discussions By Condition: I cannot get a diagnosis.

help!!!! my kidney hurts

Posted In: I cannot get a diagnosis. 10 Replies
  • Posted By: Anonymous
  • January 18, 2007
  • 11:36 AM

hi,
i am a 30year old woman and since the age of 18 i have been suffering from pain in my kidneys.
this started when my twins were 1year old, i was taken to hospital in agony, i spent ten days in there and left with no diagnosis. since this epesode i have been back and forth to the doctors and in and out of hospital that much that they feel more like home than home does.
two years ago i was finaly refered to a kidney specialist as i was now suffering from extremly high blood pressure (tablets are now taken for this)
after several tests i was told that my left kidney is half the size it should be and badly scared and damaged (they dont know why) and my right one had a small cyst but not to worry about it as you can live with one kidney.
since this time i have been to the doctors 100's of times (yet again in agony) only to be given more antibiotics and pain killers.
over christmas i have been to the doctors four times and taken into hospital for 3 nights, i have nearly allways got protien in my urine but this time there was also blood, my blood tests showed there is inflamation somewhere in my body but they didn't know where. yet again they gave me a load of antibiotics and sent me home (undiagnosed)
the doctors keep giving me antibiotics but at the same time telling me there is no sign of an infection.
so far in this the doctors have suspected IBS, APENDIX, BLOOD CLOT, LUNG INFECTIONS, GAS, STOMACH ULCER AND A PULLED MUSCLE OHHHHHH and several urine infections,
i am waiting on the results of a stomach ulcer at the moment (from my last stint)
i asked the doctor recently about what the specialist said in his report about my kidneys as i am not entirely sure, his words were "they just dont know"
i am at the end of my tether with all this.
i am fed up with spending night after night crawling around the bedroom in agony and nothing reliving the pain, it is absolute agony at times, i am constantly aware of my kidneys as every day for the last 8months to 1year my right one as ached all day/night long, i can cope with this as i have learned how to, it's the blows of feeling like someone has there hand deep inside squeezing the air out of my kidney.
Private bit: i havn't been able to have sex in months as every time we try, it feels like something is going to burst inside, (extreem pressure)
it used to be one side or the other but now they play me up at the same time, im so tired of all this but my doctor still has no answers,
can any one help me on what to do next?
from a desperate soul.

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10 Replies:

  • :) Good Morning; How awfull this must be, when i looked it over the first thing that came to mind was member here that deals with herbal medicine's. So i looked something up for you that may help. http://www.tibetanherbs.com/kidneysupport.html I really hope it helps you; As Always In His Service:)
    hogndog 426 Replies
    • January 18, 2007
    • 00:13 PM
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  • thanx hogndog, i will have a look and let you know, do you have any suggestions as to what might be the problem and how to get my doctor to listen and stop treeting me like an hipacondriact, thanx in advance
    Anonymous 42789 Replies
    • January 18, 2007
    • 07:19 PM
    • 0
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  • :D Why Yes I Do; Just go & find a different doctor! Specificly a health care professional that know's his stuff. Good Luck!;)
    hogndog 426 Replies
    • January 18, 2007
    • 08:22 PM
    • 0
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  • Hi, I am a 34 yr old female. I have had kidney problems my whole life. Infection after infection and so on. When I was about 8 or 9 I was diagnosed with kidney reflux. This was found after a numerous amount of testing. Basically, my ureters are deformed in my kidneys. This makes it so that all the urine does not leave the kidneys. Then it sits there and causes infection. When I was 25 and pregnant (no Doc ever told me not to get preg!) I went into kidney failure!! There was so much pressure that the urine backed up until my right kidney almost exploded! I was in surgery at 22 weeks preg on X-Mas eve 1997, The Urologist ordered a nephrostomy placement. (A bag that goes in kid to drain and hangs on outside of body) The goof doing my surgery, missed my kidney the 1st try and punctured my lung! Then tried a 2cd time and deflated my kidney where I had urine going through my blood stream. AND I WAS PREGNANT, awake and only Demorall for pain. Both my daughter and I should of died. 2 nights in ICU and then a diffrent Dr. tried and got the tube in correctly. To make a very long involved story shorter. My daughter is going to be 9 on Jan 23rd.!:) To this day, I have kidney pain. Sometimes so excrutiating it takes my breath away! I have been told by like 10 different Dr's that there is no such thing as kidney pain. That nobody can "feel" pain in their organs!!!! BULL@#^* Kidney pain is real. Sometimes like an ice pick has been stuck in it. I really sympathize with you. Please, 1st if you have not had kids yet, get this under control before you do. I suggest going to see a nephrologist. I cannot remember the name of the test I had done but they put a catheter in my uretha, filled my bladder all the way till full, then as you lay there on the table, you realease the fluid as they are filming with x-ray. This shows the trail of the urine. Mine would back up into my kidneys and all would not come out. Also for the past 10 years I have had about 15 kidney stomes which are massivly painfull. Even when you are not passing one. Sometimes I get attacks when I believe the stones are moving around and I have wished to die at times. I hope that you will be able to get this test done. or even get checked for kidney stones which can be just a CT scan. Good luck to you and do not EVER let anybody tell you that you can not feel pain in your kidney!!!! Take care
    miserableMOE 52 Replies
    • January 19, 2007
    • 00:59 AM
    • 0
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  • :) Hello There; go back to my previous post & try that; because like you i've been told the same thing by my doctor. He said it more likely to be a ruptured disk, as i do have a bad back. Do you believe in natural cures? because that's the site in my previous post. Good Luck!;)
    hogndog 426 Replies
    • January 19, 2007
    • 03:10 AM
    • 0
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  • hi all, thanx for your replies, i would have been on web sooner but i been back in hospital, AGAIN!!!!!! turns out its not stomach ulcer, my tests for this were negative, i left hospital this time with a supposed pulled muscle, mmmmmmmi have finaly got my kidney scan date through for the 29th of this month,miserablemoe, im not supprised your misserable, my god, i have stoped feeling sorry for my self as much after reading your story, you poor thing, although, im glad (not that you suffer) that there is someone that has felt this pain, at least i can now say to my self it isnt in my head afterall.i will let you know how i get on with my scan, until then take care all and thanx for your support xx
    Anonymous 42789 Replies
    • January 21, 2007
    • 06:23 PM
    • 0
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  • renal tubular acidosis?
    Anonymous 42789 Replies
    • January 21, 2007
    • 07:54 PM
    • 0
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  • hi all, i just wanted to post an update, well iv'e had loads of scans etc and found that my R kidney doesn't work full stop, and my L kidney in the last year has reduced to a 75% function rate, my left tube opening (to the bladder) has opened up from the should be aprox 2cm to a massive 5.6cms, this apparently naturally happens to help it cope with the extra pressure, the doctor states im in stage of 2/3 kidney disease, great, they still dont now whats causing it and dont know how to stop it iether, got more tests on the 19th april so i will re-post when i have a better idea, thanx to those who responded to my message and i hope your all doing well x
    Anonymous 42789 Replies Flag this Response
  • I myself have severe kidney pain! It started a little over 4 yrs ago a doctor cut my ureter in surgery and didn't say anything, 2 and a half wks later I should of been dead, Thank god half during for my brother who carried me into the doctor’s office and said look at her she is dying. By the way the doctor knew how sick i was My brother had called him daily and all he did was call in more medicine. I was admitted to the hospital after test was run they discovered my insides had filled with urine and i was lucky to be alive. They placed a nephrostomy tube in my right kidney, i had that in for 8 mths had 9 surgeries that followed, I had nurses taking care of me at home. I started getting infection one right after the other every 2-2 .1/2 wks they put me on cipro. This went on for 2 yrs straight I, kid u not. my urologist apologized to me saying they should of had me on a preventative antibiotic, so they did i took this antibiotic for 2 yrs straight and yes I did continue to get sick just not as often so they would add an additional antibiotic.. i have been off my antibiotic for about 3 mths and now I’m having all kinds of problems, gerd, ulcer and bad pain up under my right rib cage. ok I live with the constant pain in my kidney but if feels as if the pain is spreading up under my rib cage, Now when i had my nephrostomy in i had it back up on me a few times and this is what it felt like but the pain was way more intense to point where i couldn’t breath and now that I’m writing this i do have problems breathing at times (crazy how when you put it in writing it makes sense..lol) So yesterday I go get a ultrasound done and the tech said it looks flat, What does this mean? Anyone know? Now I’m thinking they may have to take that right kidney out. I didn’t mention I have urine reflex so the urine shoots back up in the kidney and this is also painful. Very painful so I live with this pain all the time I take nothing for it I have learned to tolerate it . So I feel your pain there is nothing more frusterating them the doctors not knowing whats going on. If they don't know then who does??
    crazymomv5 1 Replies Flag this Response
  • Get a body scan by a BioEnergy healer. You will be amazed
    Anonymous 42789 Replies
    • November 18, 2010
    • 03:43 AM
    • 0
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