My now 15 yo. daughter developed a flu like illness in Sept (spring) last year- as did I. I went on Tami flu she was allergic to it. I got better very quickly where as she did not. She had a fever - light sensitivity- headache and started sleeping 23 hrs. a day. I rushed her to a hospital on approx. day 6 the dr ordered blood test and screened for glandular fever(mono). All negative blood tests were good. Her background is that she suffers from and intellectual disability and was only mildly affected. Her cognitive function was at around 80-70 %. Now she is non verbal, confused, dazed, hallucinating, mottled skin, red bags under her eyes, laughing uncontrollably, crying uncontrollably, showers up to 8 times a day --- ** EXTREMLY BAD HEADACHES** joint pains aggressive, light sensitive, noise sensitive, depressed, highly anxious, no eye contact, stiff neck. Head CT and MRI all clear. Blood tests seem to be ok - ESR was 11 - not high. Lumbar puncture done many months after initial virus showed a little elevated spinal fluid pressure - spinal fluid all clear. Neuro have seen her -- ruled out everything???? Rheumatologist - NOT INTERESTED !!! She seems to have pain flare ups so some days are a little better than others. All the Drs. are putting it down to her " autism" BUT she is a different person and doesn't know how to fake any symptoms. We are lost !! Peadiatricians are watching her but also not interested. She does not attend school anymore I look after her full time . The drs are pushing for psych drugs which we are trialling BUT it is much MORE than just psych !! If anyone can help with some feedback I would love to hear from you !!!! KReply Follow This Thread Stop Following This Thread Flag this Discussion
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