Discussions By Condition: I cannot get a diagnosis.

Help?! Muscle spasticity

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: samara
  • March 25, 2011
  • 09:00 PM

I am 19 years old and last year I started walking on my toes. I didn't know what was wrong but i couldnt get my heels to touch the floor. After a few months i went to the doctor and they said its probably nothing but we will send you to the neurologist anyway. So the neurologist looks at me and says, after mris and an emg, 'your tendon shrunk you need surgery' and sent me to an orthopedic doctor. The orthopedic dr said 'I dont want to do surgery just yet lets try physical therapy and possibly botox for her muscles' the physical therapist said 'we cant do anything because she has to much muscle tone because her muscles are spastic lets try to get her on baclofen' after a fight with the neurologist (who didnt think i needed it) I was finally put on baclofen. The baclofen helped and I almost can touch my heels to the floor but I still need surgery for the little bit of space left. The orthopedic doctor wants to find out what caused the muscles to be spastic to begin with. The neurologist said that we did all the tests we could and its probably because you were toe walking. I don't see how toe walking can cause spasticity and I wasnt toe walking before it all happened. Could someone help me!

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1 Replies:

  • You need to see another neurologist. That was a lazy answer from him/her and someone who has little investigative interest. My partner has serious health issues and we have seen several neurologist, some just don;t bother to care if it is a situation that they have not come across before or there is a saying, "don't look for zebras" Any medical professional knows this expression. they are trained to look for horse not zebra's...zebra's are exotic and rare. In other words, you may be a zebra, but your neurologist wants to make you a horse.Keep looking and find someone who knows that something is wrong!
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