Discussions By Condition: I cannot get a diagnosis.

help me.. rash? cholinergic urticaria?

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • June 5, 2008
  • 09:53 AM


i am a 17 year old male.

i have had this rash for 2 years now. get it when i get hot, exercise, flustered type thing by anything (like embarrassed etc), can get it when my skin gets too cold aswell (like on a cold day or from a cold wind).
my hands seem to have poor circulation and are usually colder then other peoples.

i have been to the doctors (who didn't help and just said it was heat rash and would go away), tried a anti histamine which didn't do anything, tried some chinese medicine and acupuncture which didn't do anything either. then my friend got the same type of rash and went to a naturopath and went on a wheat free diet which cured him.

so i went to a naturopath, she said that one problem it could be is because of an unbalance because i used to get tonsillitis a lot and therefore had a lot of antibiotics. was on some pills to re-establish a balance in my stomach and some homeopathy. after a few months this wasnt helping and i ran out of the pills and drops.

i had done some research and mentioned to the naturopath about a gluten free diet, she sorta said that it wouldn't hurt but probably isn't the problem. i decided that i would try a gluten free diet.

i have been on the diet for about 5 weeks. i noticed some improvement in the first few weeks, and actually sweated while playing basketball for the first time in ages. but i haven't noticed a dramatic improvement and the winter weather is making it worse aswell.
i haven't been fully strict on the diet and have had some stuff here and there that contains gluten. but i havent really exercised much lately because i hate getting the rash. would exercising more regularly help?

i am a really fit teenager dispite having this rash and it annoys me when people without any medical conditions take exercise for granted. i would do anything to be able to live life without this rash, be able to feel sweat pour down my face like it used to.

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    Anonymous 42789 Replies Flag this Response
  • well after reading a bit. i live in australia, although i have gotten some ticks in the past, its probably unlikely to be lyme as i read its common to the northern hemisphere. here are some articles related to my problem. http://www.ncbi.nlm.nih.gov/pubmed/18333501?ordinalpos=2&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSumhttp://www.ncbi.nlm.nih.gov/pubmed/17272959?dopt=AbstractPlushttp://linkinghub.elsevier.com/retrieve/pii/S0091674905013527http://allergies.about.com/od/urticariahives/a/cholinergic.htmhttp://www.ncbi.nlm.nih.gov/pubmed/7520273?ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_DiscoveryPanel.Pubmed_Discovery_RA&linkpos=3&log$=relatedarticles&logdbfrom=pubmedhttp://en.wikipedia.org/wiki/Cholinergic_urticariait can also be known as exercise induced urticariai am thinking about kicking in the diet. considering it has been a 6 weeks and no real improvement. or should i try a gluten and casein free diet?should i try and get to an allergist to try and get tested and then medications, although i hate modern western medicine which treats the symptoms and not the actually problem, although it would probably be awesome to finally exercise without getting a bad rash. even if it means taking a pill or something.maybe somehow i could arrange for tests like the sweat tests and immunotherapy as in this article:http://www.ncbi.nlm.nih.gov/pubmed/17272959?dopt=AbstractPlus
    Anonymous 42789 Replies Flag this Response
  • If you decide to have testing for celiac disease (gluten intolerance) *don't* stop eating thngs with gluten in them. The test will come back a false negative. Also, it's not simple to eat a gluten free diet. Many products without wheat listed in the ingredients are cross-contaminated because they;'e milled with equipment used to process wheat and gluten. Also, toothpaste, mouthwash and lipstick may contain gluten.
    aquila 1263 Replies Flag this Response
  • Might be a good idea to fully do what the docs recommended before writing it off. At least then you can go back and say it didn't work, which goes further with them than "i think you're wrong" ;)
    chromegirl666 101 Replies Flag this Response
  • Hello,I also have suffered with cholinergic urticaria for several years now. I get itchy and time I get hot, stressed, or anything else that would normally cause me to sweat.I just try to manage it to the best of my abilities. Most medicines or antihistamines were useless for me. So I just try to avoid breakouts as much as possible. I also found that diet can have some impact, and I am still somewhat experimenting with that.I have a blog/forum also for people who have CU to come together and share treatments and so forth. It is http://www.heathives.com/ and http://www.heathives.com/forumI hope everyone gets better with their CU
    Anonymous 42789 Replies
    • September 5, 2008
    • 11:53 AM
    • 0
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