To begin, I'm a 21 male, for the past two years, I have been experiencing debilitating worrisome symptoms that keep getting worse not matter what I do to try to cure them, they have reached a point where I am no longer able to function at all, and I can't go on living like this much longer, its too difficult, I know people that are heroin addicts that feel substantialy than I do. Prior to the onset I had always been healthy and active, except some mild depression in the past which subsided with excercise, and my mother has MS. I have always been intelligent, which is why I'm at this point, where I know my body is trying to tell me something severe is going on, and no doctor is going to tell me otherwise, and that whatever it is, I need immediate help. It hasn't responded to anything so far, I'm pleading for help with this, I would be willing to pay anyone 1,000 dollars just to be able to read through this, and correctly diagnosis what I have, so I can then get the specific tests I know I need done, so I can get on a path to curing myself. Before I continue from the year plus of reading and internet surfing I have done on this, I am 99% sure, it is a auto-immune disorder, and/ or central nervous system disease, anywhere from undianosed lyme, to MS, Celiac, or even Neuro Syphillis. I will first list my current symptoms, then afterwards list how my symptoms progressed over time, and what treamtents I had, how I responded, and what tests have been done.
My current major symptoms,
1) Physical symptoms - severe neck, upper back, lower back, spinal nerve pain and ligament and muscle tightening (especially my neck muscles tightening, mainly the trapezius muscle, because I feel sharp nots between my shoulder blades as well.) The worst pain can be felt point on the base of neck, between shoulder blades, and areas of the lower back on and near base of ribs and spine. My jaw and facial muscles also tighten sporadically, the same way the trapezius tightens up the muscles in the back of my neck. Joints throught my body randomly pop and crack with ordinary movement, shoulders, knees, wrists, but several times daily i feel the urge to violently crack my neck from side to side, different parts of my spine along my back, which causes that temporary shooting pain down my arms, and spinal cord, and feels better for about 2 seconds, before hurting again, for about 6 months I would have to twitch my neck almost every 20 seconds, for minimal relief, that has since gone away somewhat . My hands also feel light sometimes, and besides that, i don't really feel pain or soreness in other parts of my body, like my legs and arms, it seems to be centred along the spine, and central nervous system. I also get acne on my back, chest, and face, which ive had for about 4 years now, but the past few months my back and chest and forehead have exhibited several very tiny non red bumps, and have not gone away.
2) Brain/ Central Nervous/ Mental Sypmtoms - Since the onset of the physical symptoms two years ago, which at first I was convinced was a pinched nerve, made me ignore other symptoms, which have been now getting progressively worse, till I have reached this point where I am no longer able to function, and have me feel worse than a heroin addict say going through withdrawal to paint a picture, which sadly is very accurate. Since the onsnet of this disease two years ago, my short term memory and my memory of the last two years has been awful, but ironically I am still able to recite 110 digits of Pi, which I learned 8 years ago. I have absolutely no physical or mental energy (not reduced like depression), I have to struggle to get myself to do the smallest tasks such as getting out of my bed, operating a tv remote, or showering, I am able to push myself to walk or even play basketball or do other daily tasks, but it is very difficult, even shopping at walmart is very difficult as I can barely focus to pay the cashier correctly, and it shouldnt be, and it is about to reach its end if I can't improve. Drinking caffeine, increasing my calorie intake, taking a multi-vitamin, magnesium, eating a balanced diet, and taking adderal xr, have absolutely no help or effect. My visionary focus is awful, my vision is not blurry, but periphreal is now terrible, and mainly the way my vision sends signals to my brain feels off. I am not able to focus my brain on anything, talking to someone, television, even on 30 mg of adderal xr, I'm barely able to type this. MAINLY, SINCE THE ONSET, I FEEL LIKE A DIFFERENT PERSON, MY BRAIN IS NOT PROCESSING INFORMATION THE SAME WAY IT DID FOR 19 YEARS OF MY LIFE, I LOOK IN THE MIRROR I LOOK THE SAME, BUT INSIDE I FEEL LIKE A CHANGED PERSON, I CAN'T STRESS ENOUGH THAT I KNOW AND FEEL SOMETHING IS OFF WITH HOW MY BRAIN IS PROCESSING INFORMATION, WHETHER IS MY SIGHT, HEARING, TASTE, ECT. THERE ALL THERE STILL , BUT FEEL VERY OFF AND IT SCARES ME EVERYDAY. I AM NOT GETTING THE TRADITIONAL HEADACHES, BUT MY BRAIN IS LIKE PULSATING, WHICH I CAN FEEL BY PUTTING MY FINGERS ON THE PART OF MY FACE ON THE OUTSIDE OF MY EYES. IN THE PAST TWO YEARS, I CAN'T REMEMBER DREAMING OR HAVING A NIGHTMARE MORE THAN A FEW TIMES, AND PAST FEW MONTHS I HAVEN'T AT ALL. AS STATED, I HAVE REMEMBER WHAT IT WAS LIKE TO BE HEALTHY FOR 19 YEARS, AND THIS CONDITION HAS GOTTEN SO BAD I AM NO LONGER ABLE TO FUNCTION AT ALL, AND THIS IS NO JOKE ANYMORE, I CANNOT PHYSICALLY OR MENTALLY GO ON LIVING LIKE THIS, IT JUST IS NOT POSSIBLE, IT IS DRIVING ME VERY RAPIDLY TO PHYSCOSIS , SUCH AS NEURO-SYPHILLIS WOULD.
I do experience some sypmtoms of depression such as ignoring hygiene, but I have done plenty to rule that out, as well as other causes, and I am now 100 percent I have some sort of auto-immune disease or central nervous system disease. In the past two years, I have been to chiropractors, acupuncurists, massage therapist, spine specialist, done yoga, ect., having been convinced my doctor is was just minor disc herniation, which pretty much tricked me into ignoring the progressive worsening of my real symptoms, mainly because at first my neck pain issue happened to be the first symptoms i recognized, before the others began to worsen. I know my body, I used to wrestle and do jui-jitsu, only ever having a mild spranked ankle, never broken a bone, never anything major except a hernia operation at birth, the physical symptoms i were experiencing and still are, were and are extremely awful and painful, but it is a disease that is causing them, not a minor disc issue.
I am now getting sick of typing so I will try to finish and I may have missed symptoms, and again they may be of 1 or more conditions, I have have several blood tests done, for lyme, lupis, hiv, ect. Everything comes back normal, nothing out of ordinary, im 5-9 170 healty height weight, normal blood pressure cholestoral, and I've been taking a multi-vitamin, magnesium, omega 3/6, calcium, and making sure I'm eating fruits and foods that allow me to rule out a vitamin deficency. I know that lyme tests and other tick tests can miss it from readin on this site, and I do have a lot of those symptoms, but I live in Massachusetts where lyme tick bites are common, and I've had two tests, I think one was run by the state lab of Massachusetts, so I don't see how they'd miss it. MRI's, and xrays, and cat scans, of my brain, and spinal cord, showed only very minor or even really no disc hernation at all, brain was normal. I don't have a fever like mengigitis would cause, and I dont think I've had a cold for the flu for about 6 months because my immune system is at least working somehwat from all the vitamins Ive taken in. I've tried with wut little mental/ physical energy I have to excercise, and playing basketball or jogging I ironically don't get out of breath, but my brain just drains sort of and makes it impossible to continue. Last week I was convinced my posture was the cause of my problem all along, but my chiro said it was fine, and that was when I gave up, as I've tried everything to rule out depression, adhd, vitamin deficencies, disc issues, everything I could as the cause of my symptoms, and I realized it is out of my hands and has been all along, I foolisly lived with this pain trying to deny it was something more out of fear, and its gotten to me where I feel exponentially worse than a heroin addict or a bed-ridden 800 pound morbidly obese human. Even donation money to charity, doing good deeds to help my karma, has had no help in any way. I gave up drinking alcohol completely, I haven't smoked marijuana in 6 months, done no other drugs, and I even smoke less ciggarrettes, hoping it would help, but it keeps geting worse. (Also only took up those 4 hobbies in the first place about a year ago, to see if they would help with my back and neck nerve pain)
I've made it clear to every doctor, and emergency room I've been to about how severe my symptoms were getting and now are, and each time, they run there mininimal tests which have clearly missed what I have, and even showing my suicidal thoughts I am kicked out of the hospital. If you need any more information, from me , please let me know, and I'll respond back in the forum as I see myself being able to push myself for maybe 2-4 more weeks longer with this, with what little left I have left. From reading this I hope someone can help diagnose what auto-immune disease or central nervous disease I have, or a list of possible one's so I can have those tests run immediately, and hopefully get better. Again 1,000 dollars to anyone who can diagnose it, or if not, I'll go to the hospital again.
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