Discussions By Condition: I cannot get a diagnosis.

Help Me Please, multiple symptoms worsening, life in jeopardy

Posted In: I cannot get a diagnosis. 26 Replies
  • Posted By: needhelpnow999
  • January 18, 2009
  • 03:54 AM

To begin, I'm a 21 male, for the past two years, I have been experiencing debilitating worrisome symptoms that keep getting worse not matter what I do to try to cure them, they have reached a point where I am no longer able to function at all, and I can't go on living like this much longer, its too difficult, I know people that are heroin addicts that feel substantialy than I do. Prior to the onset I had always been healthy and active, except some mild depression in the past which subsided with excercise, and my mother has MS. I have always been intelligent, which is why I'm at this point, where I know my body is trying to tell me something severe is going on, and no doctor is going to tell me otherwise, and that whatever it is, I need immediate help. It hasn't responded to anything so far, I'm pleading for help with this, I would be willing to pay anyone 1,000 dollars just to be able to read through this, and correctly diagnosis what I have, so I can then get the specific tests I know I need done, so I can get on a path to curing myself. Before I continue from the year plus of reading and internet surfing I have done on this, I am 99% sure, it is a auto-immune disorder, and/ or central nervous system disease, anywhere from undianosed lyme, to MS, Celiac, or even Neuro Syphillis. I will first list my current symptoms, then afterwards list how my symptoms progressed over time, and what treamtents I had, how I responded, and what tests have been done.

My current major symptoms,
1) Physical symptoms - severe neck, upper back, lower back, spinal nerve pain and ligament and muscle tightening (especially my neck muscles tightening, mainly the trapezius muscle, because I feel sharp nots between my shoulder blades as well.) The worst pain can be felt point on the base of neck, between shoulder blades, and areas of the lower back on and near base of ribs and spine. My jaw and facial muscles also tighten sporadically, the same way the trapezius tightens up the muscles in the back of my neck. Joints throught my body randomly pop and crack with ordinary movement, shoulders, knees, wrists, but several times daily i feel the urge to violently crack my neck from side to side, different parts of my spine along my back, which causes that temporary shooting pain down my arms, and spinal cord, and feels better for about 2 seconds, before hurting again, for about 6 months I would have to twitch my neck almost every 20 seconds, for minimal relief, that has since gone away somewhat . My hands also feel light sometimes, and besides that, i don't really feel pain or soreness in other parts of my body, like my legs and arms, it seems to be centred along the spine, and central nervous system. I also get acne on my back, chest, and face, which ive had for about 4 years now, but the past few months my back and chest and forehead have exhibited several very tiny non red bumps, and have not gone away.

2) Brain/ Central Nervous/ Mental Sypmtoms - Since the onset of the physical symptoms two years ago, which at first I was convinced was a pinched nerve, made me ignore other symptoms, which have been now getting progressively worse, till I have reached this point where I am no longer able to function, and have me feel worse than a heroin addict say going through withdrawal to paint a picture, which sadly is very accurate. Since the onsnet of this disease two years ago, my short term memory and my memory of the last two years has been awful, but ironically I am still able to recite 110 digits of Pi, which I learned 8 years ago. I have absolutely no physical or mental energy (not reduced like depression), I have to struggle to get myself to do the smallest tasks such as getting out of my bed, operating a tv remote, or showering, I am able to push myself to walk or even play basketball or do other daily tasks, but it is very difficult, even shopping at walmart is very difficult as I can barely focus to pay the cashier correctly, and it shouldnt be, and it is about to reach its end if I can't improve. Drinking caffeine, increasing my calorie intake, taking a multi-vitamin, magnesium, eating a balanced diet, and taking adderal xr, have absolutely no help or effect. My visionary focus is awful, my vision is not blurry, but periphreal is now terrible, and mainly the way my vision sends signals to my brain feels off. I am not able to focus my brain on anything, talking to someone, television, even on 30 mg of adderal xr, I'm barely able to type this. MAINLY, SINCE THE ONSET, I FEEL LIKE A DIFFERENT PERSON, MY BRAIN IS NOT PROCESSING INFORMATION THE SAME WAY IT DID FOR 19 YEARS OF MY LIFE, I LOOK IN THE MIRROR I LOOK THE SAME, BUT INSIDE I FEEL LIKE A CHANGED PERSON, I CAN'T STRESS ENOUGH THAT I KNOW AND FEEL SOMETHING IS OFF WITH HOW MY BRAIN IS PROCESSING INFORMATION, WHETHER IS MY SIGHT, HEARING, TASTE, ECT. THERE ALL THERE STILL , BUT FEEL VERY OFF AND IT SCARES ME EVERYDAY. I AM NOT GETTING THE TRADITIONAL HEADACHES, BUT MY BRAIN IS LIKE PULSATING, WHICH I CAN FEEL BY PUTTING MY FINGERS ON THE PART OF MY FACE ON THE OUTSIDE OF MY EYES. IN THE PAST TWO YEARS, I CAN'T REMEMBER DREAMING OR HAVING A NIGHTMARE MORE THAN A FEW TIMES, AND PAST FEW MONTHS I HAVEN'T AT ALL. AS STATED, I HAVE REMEMBER WHAT IT WAS LIKE TO BE HEALTHY FOR 19 YEARS, AND THIS CONDITION HAS GOTTEN SO BAD I AM NO LONGER ABLE TO FUNCTION AT ALL, AND THIS IS NO JOKE ANYMORE, I CANNOT PHYSICALLY OR MENTALLY GO ON LIVING LIKE THIS, IT JUST IS NOT POSSIBLE, IT IS DRIVING ME VERY RAPIDLY TO PHYSCOSIS , SUCH AS NEURO-SYPHILLIS WOULD.

I do experience some sypmtoms of depression such as ignoring hygiene, but I have done plenty to rule that out, as well as other causes, and I am now 100 percent I have some sort of auto-immune disease or central nervous system disease. In the past two years, I have been to chiropractors, acupuncurists, massage therapist, spine specialist, done yoga, ect., having been convinced my doctor is was just minor disc herniation, which pretty much tricked me into ignoring the progressive worsening of my real symptoms, mainly because at first my neck pain issue happened to be the first symptoms i recognized, before the others began to worsen. I know my body, I used to wrestle and do jui-jitsu, only ever having a mild spranked ankle, never broken a bone, never anything major except a hernia operation at birth, the physical symptoms i were experiencing and still are, were and are extremely awful and painful, but it is a disease that is causing them, not a minor disc issue.

I am now getting sick of typing so I will try to finish and I may have missed symptoms, and again they may be of 1 or more conditions, I have have several blood tests done, for lyme, lupis, hiv, ect. Everything comes back normal, nothing out of ordinary, im 5-9 170 healty height weight, normal blood pressure cholestoral, and I've been taking a multi-vitamin, magnesium, omega 3/6, calcium, and making sure I'm eating fruits and foods that allow me to rule out a vitamin deficency. I know that lyme tests and other tick tests can miss it from readin on this site, and I do have a lot of those symptoms, but I live in Massachusetts where lyme tick bites are common, and I've had two tests, I think one was run by the state lab of Massachusetts, so I don't see how they'd miss it. MRI's, and xrays, and cat scans, of my brain, and spinal cord, showed only very minor or even really no disc hernation at all, brain was normal. I don't have a fever like mengigitis would cause, and I dont think I've had a cold for the flu for about 6 months because my immune system is at least working somehwat from all the vitamins Ive taken in. I've tried with wut little mental/ physical energy I have to excercise, and playing basketball or jogging I ironically don't get out of breath, but my brain just drains sort of and makes it impossible to continue. Last week I was convinced my posture was the cause of my problem all along, but my chiro said it was fine, and that was when I gave up, as I've tried everything to rule out depression, adhd, vitamin deficencies, disc issues, everything I could as the cause of my symptoms, and I realized it is out of my hands and has been all along, I foolisly lived with this pain trying to deny it was something more out of fear, and its gotten to me where I feel exponentially worse than a heroin addict or a bed-ridden 800 pound morbidly obese human. Even donation money to charity, doing good deeds to help my karma, has had no help in any way. I gave up drinking alcohol completely, I haven't smoked marijuana in 6 months, done no other drugs, and I even smoke less ciggarrettes, hoping it would help, but it keeps geting worse. (Also only took up those 4 hobbies in the first place about a year ago, to see if they would help with my back and neck nerve pain)

I've made it clear to every doctor, and emergency room I've been to about how severe my symptoms were getting and now are, and each time, they run there mininimal tests which have clearly missed what I have, and even showing my suicidal thoughts I am kicked out of the hospital. If you need any more information, from me , please let me know, and I'll respond back in the forum as I see myself being able to push myself for maybe 2-4 more weeks longer with this, with what little left I have left. From reading this I hope someone can help diagnose what auto-immune disease or central nervous disease I have, or a list of possible one's so I can have those tests run immediately, and hopefully get better. Again 1,000 dollars to anyone who can diagnose it, or if not, I'll go to the hospital again.

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26 Replies:

  • i noted that many of your spots of pain correspond with the fibromyalgia tender points... so maybe this is your issue. Those with fibromyalgia often have other issues too eg short term memory issue.. trouble focusing on things and they tire much more easily than a normal person. http://www.prohealth.com/fibromyalgia/basics.cfm?anchorid=24&#-24 i suggest for you to go and see someone who specialises in fibromyalgia and be tested for this.
    taniaaust1 2267 Replies
    • January 19, 2009
    • 00:01 PM
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  • A free site tells how to test and relieve symptoms of Fibromyalgia. Use over the counter meds combined with special tricks and tips. www.FibroFix.com Nothing for sale. Just a free site by a Fibro who uses the same method.
    Anne at FibroFix.com 9 Replies
    • January 19, 2009
    • 06:06 PM
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  • I would like to encourage you not to offer any money here. There is a very skilful neurologist at this site, dr Cottle. I hope he’ll see your post. I am keeping my fingers crossed for you. And by the way, it’s not “all in your head”. Please, don’t give up. :)
    Felsen 510 Replies
    • January 19, 2009
    • 10:21 PM
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  • Ok, I'm going to give you some advice that will help you. I was in the same position as you. I had the same muscle/spine issues/depression. First of all unless you have lots of money to spend, no doctors going to help you much. There are a lot of them out there that will take advantage of you in your state because they just care about the money and your symptoms are too vague, not really signs of anything serious yet. Ok. First things first. Get off all the vitamins/drugs you are taking now. The only ones that will help are the right ones. If you are not sure what you have then taking random pills will only make things worse. I believe you have an irritated liver and possibly kidney issues. For the liver: You need to learn to relax... Go outside for 2 mile walks. Your muscles need fresh air. Sunlight. Elliminate alcohol, caffeine, dairy and spicy foods from you diet. Try to eat more raw vegetables and fruits. Fish (sardines). Natural red meat. Trail mix. Give it time. Quit smoking. What is happening is your liver is depleted of minerals and vitamins due to bad eating habits, alcohol, caffeine, sugar... So you feel sick and weak...Elliminate those foods and eat better and give it time, you will feel worse before you feel better. Kidneys: Try potassium supplement. Will help muscles. But most importantly: Elliminate alcohol, caffeine (also chocolate), dairy, spicy foods, try to quit smoking, get fresh air. Give it time. Be patient.
    Paulppaul 25 Replies
    • January 20, 2009
    • 00:20 AM
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  • Jeeze I just posted and then it erased. Well here is what I said. Some advice: Doctors will try and take advantage of you in your state so watch out, your symptoms are too vague for a definitive diagnosis. But here's what I think. You are having liver issues. You need to cut out the junk. Get rid of all you pills. Only the right ones work and you don't know which ones are right. Elliminate: Alcohol, caffeine, dairy, spicy foods for a while. Give it time and you will feel better. Quit smoking also if you can. Go for 2 mile walks everyday outside. You need to relax and get your mind off you troubles. Ok now try potassium. That is all stick with it and you will do better. Remember lots of raw fruits and vegetabls. Fish (sardines) and natural red meat. Trail mix. Stay away from the doctors!!! If you have posture issues, exercise you neck, get on all fours and move you neck up and down 30 times. Then get on your back and move you neck up and down. Then on your side, side to side. This will strengthen you neck. You need to strengthen not pop.
    Paulppaul 25 Replies
    • January 20, 2009
    • 00:38 AM
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  • Okay, I've read your posting and I think it's probably wisest to initially approach you with questions since you've apparently done a good deal of research and have formed some opinions. So let's start with why you specifically feel that you're suffering from MS, Celiac Sprue, Lyme disease or neurosyphilis, together with the steps you've take to rule out clinical depression? While you're putting together a response, let me share with you that absolutely nothing is hopeless and it's very critical for you to realize that when you begin feeling this way, it's simply because you've exhausted the reaches of alternatives known to you. So it's important for you to take a step back and follow along with me so that we can clear up some misconceptions and help you get moving in the right direction for a change. I also want you to know that physical symptoms can and do exist in the total absence of physical disease and it's critical for you to understand how and why such symptoms occur. Once we've corresponded a bit, I'll tell you precisely why each of your symptoms is occurring and what you can do about it. First, however, we have to overcome a barrier that has placed you in the position of feeling so hopeless. So take whatever time you need to put together your response to my questions and we'll proceed from that point forward. I will also tell you that you're going to be fine and I fully understand what it taking place, so take a breath and relax a bit. Incidentally, I would echo the wise words of Felsen and suggest that you don't offer money on the forum. The most accurate knowledge exists in the absence of motive. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 20, 2009
    • 01:10 AM
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  • Repair your body with a nutritional supplement that will make a difference in your life.
    lovemykids2 28 Replies
    • January 20, 2009
    • 01:29 AM
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  • There is no nutritional panacea for all illnesses.You don't seem to get that fact.
    richard wayne2b 1232 Replies
    • January 20, 2009
    • 01:57 PM
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  • If you read my message you would see that I have taken several different vitamins and supplements and have shown no improvement. Right now I decided to get the anti-biotic doxycycline, first time ive been on an anti-biotic. I may try taking penicilin, or another anti-biotic, to see if it may take of w/e this may be, without even diagnosing it, which know one can seem to do. To respond to J Cottle, I do hope that I am going to be okay, and if you do know why I seem to be having these chronic symptoms and what I can do about it, obviously you would be a life-saver to me, I did as you as a friend and contact, to be able to correspond.
    needhelpnow999 1 Replies
    • January 20, 2009
    • 02:47 PM
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  • Okay, sorry for the delay. Let's talk a little bit about your symptoms and I want to preface the discussion by again stating that physical symptoms can arise in the complete absence of physical disease. It's important to realize that whenever anxiety or depression exists at certain levels for extended periods, the capacity exists for these disorders to produce physical phenomenon that are oftentimes misinterpreted as signs of disease, a characterization that we term as somatoform. It is considered to be chronic rather than situational and the most common response by patients who are experiencing somatoform is something to the effect of "but I don't feel anxious or depressed . . . I know what those things feel like and I'm not anxious or unhappy!" Realize that somatoform can be viewed as a logical next step in the body's response to situational depression or anxiety. Muscle tension is one of the earliest manifestations and it should interest you to know that the trapezius and rhomboid are the most prominent muscles affected by stress-associated muscle tension. The knots that you feel, which may be extremely tender when pressed, are trigger points composed of muscle tissue that produces myofascial pain, sometimes to referred areas other than the site of tenderness at the trigger point. Many people affected by somatoform complain that their tendons in general feel too short and they experience pain if they extend their arms or legs, also complaining that it feels like the cervical joints in the neck are grinding and sometimes popping when they turn their head. Realize that muscle tension at the level of the trapezius can produce mild compression features that reduce range of motion. Sensory disturbances are also quite common and electrical shock sensations, parasthesias or numbness and skin crawling sensations are but just a few of the manifestations described by persons suffering from somatoform. The symptoms are extremely real and are produced by inappropriate feedback from various sensory functions within the nervous system. Sometimes people experience odd or pungent odors in the absence of an obvious source, or they may experience auditory, visual or tactile disturbances as well. Since these phenomenon don't appear to be associated with a known underlying cause, they typically are the source of concern that serious illness is present. With regard to remote and recent memory, it's important to note that clinical depression can induce features of cognitive dysfunction to such an elaborate degree that it's often called pseudo-dementia due to its ability to interfere with cognitive function, in particular short-term memory. The reason that recent memory is affected is that information received either visually or by auditory means must be attended to in order for the visual cortex or in the case of auditory information, Heschel's gyri, to be capable of processing the information. In other words, a person has to pay attention to salient information in order for receptivity to be functional. So in the case where someone might be ruminating about all sorts of things or otherwise distracted, the cursory exposure to information is not salient and therefore processing is fragmented, seldom inducing memory formation. Common examples would be someone constantly forgetting what someone just said, or inability to recall what was just read, misplacing objects and in general experiencing the seeming inability to learn new information. Although it sounds very similar to features of neurological disease wherein the neural circuits are being disrupted or destroyed, the problem for people experiencing depression is that the information was not given sufficient attention and focus. People who can't recite what was just read often don't realize that their mind is wandering with ruminations and fleeting thoughts to the exent that the person is merely going through the familiar motions of reading, but not comprehending. Thus, they become scared when they can't remember any salient features of the material. So short-term memory requires a specific sequence of events in order for successful processing and memory formation to take place. Long-term memory and retrieval works entirely different and thus, is not affected by in the same manner. Strange feelings that you don't feel like yourself or that you seem closed off from the world or in a dream-like state has to do with blunting of the sensory network. Many people describe the sensation as though their body or the world around them somehow seems foreign to them. It's defined as derealization or depersonalization and common among persons with significant depression. Poor hygeine is also a common feature of depression and should not be viewed as apart from your other symptoms. The fact that a person's immune system can become mildly diminished in the presence of clinical depression has been well-researched and documented, exposing the affected individual to greater instance of both bacterial and viral invasion that sometimes appears to be chronic or relapsing in nature. The problem with your doctors constantly "missing" the diagnosis is based upon the premise that you're convinced physical disease is present and being overlooked. Tests constantly turn up negative not because they are missing anything, but rather because these tests are based strictly upon algorithms of true disease. In the absence of markers, the tests will invariably yield negative results because no disease is present. The problem at this juncture is that you must pause to consider whether the perspective being used to make determinations about whether you have an underlying physical illness or disease might be affected by the presence of clinical depression. In other words, if your judgment and rational logic normally used to formulate objective reasoning is being interfered with by the effects of depression, is it possible that your conclusions are therefore inaccurate? Are all these tests missing the diagnosis or is the subjective conclusion that disease is present flawed? I will tell you that as a physican with more than 40 years of experience, I've seen literally hundreds and hundreds of cases just like yours and the good thing to realize here is that your health is actually in no jeopardy whatsoever. You have mistakingly attributed the somatic features of depression to a serious underlying disease. Most importantly, you have to realize that clinical depression is not to be characterized as some sort of nasty mental illness. It can manifest in even the very best and brightest of people and has to do with imbalances in neurochemistry rather than any type of mental or emotional deficiency. So the key to making positive headway here is to seek a better understanding of how clinical depression can induce symptoms of physical illness and more importantly, taking steps to address the problem head-on with the intent to obtain solution. Realizing that you're a bright and resourceful individual establishes the basis for taking no less of a direction in overcoming the misconceptions that have developed thus far and establishing a proper course to regaining your former life. You will indeed be just fine. There is no actual underlying physical illness here, which represents a good headstart. Best regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 21, 2009
    • 02:01 AM
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  • There's one thing that has always baffled me and I'm sure a lot of people who are declared depressed also. What is depression? What makes me depressed? Is depression sadness or sadness, depression? It just seems so vague and peoples explainations of it are just, unsatisfying. Like it's just there to tell someone who no one can treat or diagnose. Like we're a lost cause. What causes depression? How come some people are more easily depressed than others?
    Paulppaul 25 Replies
    • January 21, 2009
    • 03:42 AM
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  • Test your Saliva pH as soon as you can. It is supposed to be 7.4 Lower numbers mean you are too acid - your entire "lymph" system. Costs very little to find out - get the pH test strip on a roll dispenser at health food stores. Call around to see who has it. About $13 and does hundreds of tests. Just wet it really good with saliva. The piece of test paper will change colors instantly. Compare it to the color chart on the dispenser. If you want to try something quick, cut out all acid foods. Chew some TUMS or put baking soda in your drinking water all day long. Unless you have another health problems that would make it unwise, try a little decongestant (be sure it Phenylephrine not something else), also some Guaifenesin (plain Mucinex or a house brand is fine). Drink water with it. Wipe some BenGay or other topical that has Camphor in it - on the back of your neck to down between your shoulder blades. That's where the arteries branch from larger to smaller. If you do have Fibromyalgia, this should make you feel 100% better almost immediately.
    Anne at FibroFix.com 9 Replies
    • January 21, 2009
    • 03:44 AM
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  • For me, this is depression, I grew up from a very young age depressed. I would cry and get depressed when my mother wasn't around. I've been clinically depressed all my life. I isolated myself from other people. I did everything known to man that says depression. I've never been diagnosed with anything growing up. In fact I was always healthy, good at school and sports. But I always isolated myself in depression. Why did I do this? Well I remember when I was just a baby crawling on the floor watching the flies fly around and was just in complete awe at life's beauty. When I was six I went out into the fields alone and sat next to a tree and was just in awe of my sixth birthday and the budding of the leaves on the tree. I felt so relaxed and in awe of living. So I went through life like this. It just felt great. Now here came people who ruined my fun. People acted like life is ***l. When my mom wanted me to clean something she would yell at me, when all she had to do was ask me nicely and give me time to do it. But people around me were bitter and so they crushed that feeling of awe and made life seem like work all the time. There is no such thing as enjoying life and working at it to people anymore. So I'm 26 and still in awe of life but I feel people around me don't feel that way anymore or never have and when they see me like that they think I'm weak, depressed or ignoring them but not everyone. They ruine the fun in life. It's like someone enjoying a beautiful sunset and then a person comes along and blocks out the sun and says, "What, why are you depressed?". And then you get mad at that person and you can never find peace and you become clinically depressed about the incident. So, I believe some people are just born more sensitive than others. This is for a reason. Nature made us this way so we are not sick or crippled, we are perfect. What we have to do is forgive and forget and find that beauty again and don't get distracted or let anyone distract you. Because when something comes along, guilt, drugs, caffeine, people and so forth that deadens your senses and makes you loose sight of that beauty. Making you feel helpless alone and Depressed. So, I say, what I said before. Get on a good diet and quit the drugs, don't interfere anymore with your body and the way nature made you. Look for the beauty in life and people and keep those beautiful things in mind. Also revisit those beauty things but remember things change and you need to stay focused on the things that are still beautiful, not the bad. Clean your body and mind clean and look for the beauty and you will be fine. There are people out there that will try to make you depressed, ignore them and when you start feeling agitated by them just stop and think, breathe and move on. Taking care or your body and mind will help you deal with these distrations better. A bad diet and drugs will make you even more sensitive and make it hard, just work on it little by little, there is always time to repair and come back. Check my last post.
    Paulppaul 25 Replies
    • January 21, 2009
    • 04:31 AM
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  • I understand exactly how you feel. It feels as if your brain has no function and sometimes your vision is so off nothing makes sense. Every muscle in your body hurts right? I think the first thing you need to do is find faith in ***********t. I'm not preaching but believe me when all else fails he doesn't. THen you should go get checked for Diabetes. Diabetes causes a lot of complications and if you have been diabetic for a while without knowing you could be suffering from neuropathy. Which is the worst pain sometimes. There are diabetics that can't even have a sheet on them because their skin hurts to bad. Second you need to make and appointment with a psychologist/pyschiatrist. Not for depression, but for Obessive compulsive disorder with hypochondria tendencies. Once you get all that done and everything comes back normal, seek a neurologist and pain management center. These people will put you on the right track. Insist that someone gets and MRI on you and test your spinal fluid for a least peace of mind. Most important thing you can do is DO NOT READ about disease, illnesses, sicknesses of any kind online, in books or anywhere else. This will only add to your issue. Self diagnosis can turn dangerous. I know I have been where you are and come to find out I have OCD. Treatment is important and Cymbalta can help with management of pain. I hope that this some how helps. God bless you.
    Anonymous 42789 Replies
    • January 21, 2009
    • 05:30 AM
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  • A. Your mother was a jackaxx. I had one like that. Do you have a high IQ? B. Have you tried SamE or 5-HTP. They are available over the counter and may make all the difference.
    Anne at FibroFix.com 9 Replies
    • January 21, 2009
    • 10:57 PM
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  • Okay, I'm going to ask you kindly here not to hijack this thread. Your sidebar conversation is not in direct response to the original posting and if you have questions regarding depression or other topic, then please post it in a new thread. regards, J Cottle, MD
    JCottleMD 580 Replies
    • January 21, 2009
    • 11:28 PM
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  • Right now I decided to get the anti-biotic doxycycline, first time ive been on an anti-biotic. I may try taking penicilin, or another anti-biotic, to see if it may take of w/e this may be, without even diagnosing it, which know one can seem to do.. Now this to me dont seem like quite normal behaviour. I myself understand the desperation to get treatment if one has a severe or chronic illness which affects ones life and I know many in this same situation but they dont usually be trying different drugs for no reason at all! (without some kind of basis behind things about why the drug may work) What you are doing there thou with trialing drugs with no real reason why, expect that you arent well.... isnt a generally normal thing to be doing even among those who are chronically ill. I too think you should go and see a psychologist or a psychristriast for evalution.... those with hypochondria do feel things to the point where they do believe they have certain illnesses going on. It may be worth just getting an opinion there and get mental disorders being the cause of things ruled out. It's something which should be ruled out just like any other disorder....................... im wondering why you arent taking care of your hygeine?? can you give a reason why this is so? The problem with your doctors constantly "missing" the diagnosis is based upon the premise that you're convinced physical disease is present and being overlooked. Tests constantly turn up negative not because they are missing anything, but rather because these tests are based strictly upon algorithms of true disease. In the absence of markers, the tests will invariably yield negative results because no disease is present. I want to say to the original poster (Im not getting into debate about anyone over their comments and this isnt any form of personal attack) that yes doctors may miss diagnoses if the RIGHT tests arent done and that often does happen with some of the lesser understood illnesses. Often things will not be found due to the test which will give the missing link to things, not being done eg would diabetes be picked up if a doctor didnt think to do a diabetes test??? If the diabetic didnt get the right test.. that dont mean they dont have diabetes. (yeah i know.. silly example but it fits what im trying to say) Due to this i do believe it is important to research if one hasnt been given a diagnoses or one which seems very wrong... and push if one has to to get tests which are RELEVENT to the symptoms done. (one dont go having tests for things which dont fit at all!) But also be prepared to mentally rule out things if they dont fit your symptoms.... listen to those who know about the illnesses. If someone tells you you havent got a certain issue you think you have.. ask them for the reasons why and be prepared to use common sense when it comes to those answers. best luck get tests in all relevent areas.. this in your case i think includes psychological from the best experts (for that I suggest psychologist or psychriatrist as many doctors if they cant work out what is wrong.. will often just put things down to a psych. issue when it may not be.. so hence go to an expert on those issues to rule it out of not).
    taniaaust1 2267 Replies
    • January 22, 2009
    • 02:20 AM
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  • My mother has Spasmodic Torticollis and Fibromyalgia. You may have a combination of diagnoses going on. The Torticollis can cause severe pain in her neck and back and the pain regions can vary depending on the muscle groups involved in the neck and can radiate down the arms, back, and into the head. It also causes her head to involuntary shake, turn, or spasm painfully. For over 10 years she was told she was depressed and mentally unstable and that she was imagining the symptoms... blah, blah, blah... but was finally diagnosed 15 years ago by an intern of all people (but only because new grads are up to date on new research). She has a neurologist at the Mayo Clinic in Rochester, MN (one of the best for her condition) and has recently had surgery to help. I hope this helps you on the right path. You can look up the NSTA (Nat'l Spasmodic Torticollis Assoc.) for more info, too. Good Luck!
    ConcernedAuntie 1 Replies
    • January 22, 2009
    • 06:29 AM
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  • Paulppaul:What medical training have you had that allows you to tell this patient that he has an''irritated liver and possibly some kidney issues?"
    richard wayne2b 1232 Replies
    • January 23, 2009
    • 01:01 PM
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  • I feel the same way about cracking my whole body several times a day, sometimes it relieves the pain, sometimes I feel like it paralyzes me. What kind of medication are you on for the pain?
    MissAshley1988 1 Replies
    • February 5, 2009
    • 08:00 PM
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