Discussions By Condition: I cannot get a diagnosis.

help me please going crazy mom

Posted In: I cannot get a diagnosis. 2 Replies
  • Posted By: Anonymous
  • December 7, 2009
  • 04:01 AM

I have a 20 year old daughter! she has had medical issues all her life! started at 8 months old,she had uti that caused her fever to get so high that she had a hearing loss! then about every 6 to 8 weeks cronic uti's. sometimes it would grow and show infections and sometimes not! this has gone on all her life. She has had her gallbladder removed and apendix! at 18 they had to do a histerictomy! she had endometriouses it got so bad after surgrey and more surgery they did a full historictomy! the endo ha spread to her diophram and bladder we were told she would never have children and if we didn't act she could possible be on a bag for her bladder because it was eating a hole in it.we have seen several councelers, to make sure it was not sycological! every doc said that they thought she diffinatly had something medicalo going on! and it had caused depression because the source hasn't been resolved. we thought that was it !!yea !! finally a light at the end of tunnel!!! wrong???? know she keeps having uti's again most of the time urine only shows blood and pus no infection but there have been times when so much blood you couln't tell it was urine! know! everytime bladder fills she looks 7 months preganant she has gained 30 lbs in 4 m0nths! we have haD CAT SCANS! BLOOD WORK! AND SONOGRAMS! WE KEEP GETTING TOSSED BACK AND FORTH FROM One SPECIALIST TO ANOTHER! SHE'S ON ANTIDPRESSANTS BECAUSE IT'S STRESSING HER OUT BEING SHUFFELED FROM One DOC TO ANOTHER ! IT'S DRIVING US CRAZY! ANY SUGGESTIONS?

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2 Replies:

  • I have a 20 year old daughter! she has had medical issues all her life! started at 8 months old,she had uti that caused her fever to get so high that she had a hearing loss! then about every 6 to 8 weeks cronic uti's. sometimes it would grow and show infections and sometimes not! this has gone on all her life. She has had her gallbladder removed and apendix! at 18 they had to do a histerictomy! she had endometriouses it got so bad after surgrey and more surgery they did a full historictomy! the endo ha spread to her diophram and bladder we were told she would never have children and if we didn't act she could possible be on a bag for her bladder because it was eating a hole in it.we have seen several councelers, to make sure it was not sycological! every doc said that they thought she diffinatly had something medicalo going on! and it had caused depression because the source hasn't been resolved. we thought that was it !!yea !! finally a light at the end of tunnel!!! wrong???? know she keeps having uti's again most of the time urine only shows blood and pus no infection but there have been times when so much blood you couln't tell it was urine! know! everytime bladder fills she looks 7 months preganant she has gained 30 lbs in 4 m0nths! we have haD CAT SCANS! BLOOD WORK! AND SONOGRAMS! WE KEEP GETTING TOSSED BACK AND FORTH FROM One SPECIALIST TO ANOTHER! SHE'S ON ANTIDPRESSANTS BECAUSE IT'S STRESSING HER OUT BEING SHUFFELED FROM One DOC TO ANOTHER ! IT'S DRIVING US CRAZY! ANY SUGGESTIONS?Did they do historictomy all well? What if they messed something up? It is unbelievable that all his is happening to one person. Doeas she has any problems with stomach or her intestinal?
    Clear-sky 76 Replies
    • December 8, 2009
    • 09:30 AM
    • 0
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  • Did they do historictomy all well? What if they messed something up? It is unbelievable that all his is happening to one person. Doeas she has any problems with stomach or her intestinal?Maybe speak to a Geneticicst. They know about the more rare type of conditions.
    Anonymous 42789 Replies
    • December 11, 2009
    • 05:33 PM
    • 0
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