Discussions By Condition: I cannot get a diagnosis.

help me my hair is falling out and i'm falling apart

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: nicoki
  • November 29, 2006
  • 01:03 AM

my hair has been coming out in larger than normal clumps since around summer, i went to the doctors once and at the time she said it wasnt phoriasis which i ocasionally get and took for a thyroid test (clear). my head is itchy sometimes and i can pick tiny tiny beads from the dry skin on my head is this to with it or is it my phoriasis. please try an help because its getting worse and noticable, i dont want to go bald im only 20... a 20yr old bald girl that cant be me :(

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  • Hey Nicoki, I'm not sure how much I'll be able to help, but I wanted to post because if nothing else, I've been where you are in the past, and I know how hard it can be. I have an autoimmune disease called Alopecia Areata that causes my hair to fall out, and at the age of 12 I had lost about 50% of my hair (and my school wouldn't let me wear a hat to school, ***n them), so I know how hard it can be. I've re-grown all of my hair and re-lost portions of it in the 13 years since then, and I'm once again in the phase of losing tons and tons of hair every day (the shower has become quite a trial), and I'm just waiting to see if the Alopecia spots are going to form again. I have made the decision that if it ever gets as bad as when I was 12 again, I'll just shave my head. Trying to hide it is worse than just living as a bald 25 year old woman, IMO. See if you can get your exact thyroid numbers from your doctor, and the lab ranges for what is "normal" for those tests. Most doctors aren't up on the most recent research on thyroid disease, and so may dismiss your numbers as normal even though groups like the American Association of Clinical Endocrinologists (AACE, www.aace.com ) would recommend treating you. Hypothyroidism (TSH above 3.0 according to the AACE, or above 5.0 according to most labs -- guess who I trust!) can also cause you to lose hair, so it would be worth finding out your specific thyroid numbers, and fighting for treatment if you have to. As far as the hair loss itself, have you noticed any pattern to it? Does it seem to be from all over, or from just one area? Do you have any areas that are completely bald? (Alopecia Areata, for instance, creates perfectly round, perfectly smooth bald patches.) Are your eyebrows, eyelashes, or body hair effect at all? My personal experience has been that getting hair loss diagnosed is a long, long process, usually taking at least six months from when I notice the increase in hair loss to when I can tell if it's from the Alopecia or from the thyroid disease that I also have. But keeping track of how long you've been experiencing extra hair loss, and any patterns you see in it could help your doctor diagnose you sometime next year. And try not to itch your scalp, if at all possible. Wear a hat if you have to, to stop yourself. When I was younger I used to itch my Alopecia spots so bad they would bleed, which would mean that I couldn't always get the treatment for it. If you stop itching your scalp entirely and you're still noticing the tiny balls of dry skin (like on your pillow in the morning, or on the inside of your hat), then that would be a pattern you could mention to your doctor. Anyhow, not sure if any of this helped or not, but I did want to let you know you aren't alone. *Hugs* ~Ryot
    Anonymous 42789 Replies
    • November 29, 2006
    • 02:46 AM
    • 0
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