Discussions By Condition: I cannot get a diagnosis.

Help me... Addisons?

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: nitropv615
  • July 6, 2009
  • 03:38 PM

hello my problems started back in the spring of 2008. I had awful nausea and abdomonal pain. One diagnosis was that i had chrons disease because of the awful pain and a biopsy on my intestines that showed inflammation. After another look the dr.'s said it wasnt any IBD. After going through the pain for a lot longer one dr. told me he thought i had Addisons/Adrenal insufficancy because of a cort-stim test that didnt respond. The initial cortisol level was normal, i think 22, but it never responded to the cortisol shot. After that i was put on pregnisone and that didnt work so they up my dose to 5mg in the morning and 2.5 in the evening and i felt great. 0 problems. Then my dr. told me he didnt know anything about the adrenals and to get a second opinion. So i went, got a second opinion and he told me he didnt think i had any adrenal problems but couldnt explain why the steroids were helping. He switched me to cortisone because he thought it would be better. I didnt like that dr. He didnt seem like he knew very much so i got a third opinion who said he didnt think i had adrenal problems either but couldnt explain why the steriods were working either. Now he is trying to lower my dosages and ive been feeling like crap again with pain, nausea, ect. now i am on 25 mg of cortisone in the am and 12.5 in the evening. My other question is what is the normal dosage for cortisone? All my abdominal pain has been in the middle right below my belly button and ive had a tremor in my left hand. Anyone have any ideas about what could be wrong? or why the steriods are helping?

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  • also the dr. was the first to notice my tremors and this was after i was on reglan for about a month. Someone told me that that might still be a side effect of it even though i stopped taking it in january. When i feel really bad the tremors are worse.
    nitropv615 4 Replies Flag this Response
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