Discussions By Condition: I cannot get a diagnosis.

help!!! its been almost two years and no help

Posted In: I cannot get a diagnosis. 1 Replies
  • Posted By: holliday
  • January 8, 2007
  • 09:04 PM

my daughter will be 21 in feb. she has had kidney problems for 20 months now. they first came when she found out she was pregnant. they put the tubes thru her back into her kidneys to keep her kidneys flowing. they have did about 6 surgeries to remove the stones. well every 7-8 weeks the pain comes back. it comes out of no where. we have been to every single hospital and doctors around. we are now going to the cleveland clinic and no luck there either. she can'ty hold down a job either because of this and is missing college too. she has a 1 yr old child that i am taking care of alot of the time because of this pain. they have removed 9 kidney stones within a year.. and now they tell her she has about 6 more back!!! some of the doctors say its the stones causing the problems and other doctors say they dont see any stones and if it were stones it would nto cause her this type of pain. it starts on her right side on her kidney then moves around the front which at that point it is now running from her back to the front. sometimes she gets fevers with this but mostly severe pain and throwing up and bad head aches too. we are at a loss and don't know what to do.... right now she is at the ER for the cleveland clinic in cleveland ohio but as of right now they are not finding anything either. they always admit her for three to four days to get her on pain management. after about 7-9 days the pain just up and disappears and then she is back to her old self again. but then another 7 weeks pass and here we are again!!!! im all cried out and just don't know what to do. :mad:

:( again pain starts in the right kidney and wraps around to her front. does not go pass her belly button though to the other side............. throws up, fever and severe pain!! any help would be great...

heather holliday:(

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  • my daughter will be 21 in feb. she has had kidney problems for 20 months now. they first came when she found out she was pregnant. they put the tubes thru her back into her kidneys to keep her kidneys flowing. they have did about 6 surgeries to remove the stones. well every 7-8 weeks the pain comes back. it comes out of no where. we have been to every single hospital and doctors around. we are now going to the cleveland clinic and no luck there either. she can'ty hold down a job either because of this and is missing college too. she has a 1 yr old child that i am taking care of alot of the time because of this pain. they have removed 9 kidney stones within a year.. and now they tell her she has about 6 more back!!! some of the doctors say its the stones causing the problems and other doctors say they dont see any stones and if it were stones it would nto cause her this type of pain. it starts on her right side on her kidney then moves around the front which at that point it is now running from her back to the front. sometimes she gets fevers with this but mostly severe pain and throwing up and bad head aches too. we are at a loss and don't know what to do.... right now she is at the ER for the cleveland clinic in cleveland ohio but as of right now they are not finding anything either. they always admit her for three to four days to get her on pain management. after about 7-9 days the pain just up and disappears and then she is back to her old self again. but then another 7 weeks pass and here we are again!!!! im all cried out and just don't know what to do. :mad: :( again pain starts in the right kidney and wraps around to her front. does not go pass her belly button though to the other side............. throws up, fever and severe pain!! any help would be great... heather holliday:(Dear Heather~Oh my God, how terrified, sad and confused you must be!I replied to other posts on this site about these similar things...( I came here by accident, looking for a resolve to my own problems). May I start by asking you some questions?I would like to know if she had any problems urinating or defacating in the past? Constipation or diarehha? History of sexual, mental, or other physical abuse or major accidents? Genetic history of kidney, liver, pancreas, or intestinal problems- even appendicitus? Exposure to toxins- such as lead, bad food or water, radon, mold, or asbestos? Food or environmental allergies? Is she, or has she, been exposed to pets/ animals- she may have picked up something there- either from dander or fecal matter? Has she been bitten, scratched or does she have wounds or bruises that do not heal, or are slow to heal? Rashes?ANY change in environment- schools, homes, etc.- or changes WITHIN those environments- clothing, make-up, household cleansers, carpeting, old windows, etc. Do you live under power lines? Has her pituitary or thyroid been checked? Has she been diagnosed with any other infection- such as a urinary tract infection, STD's, E Coli? How is her sleep? Dreams- good or bad? Did she gain a lot of weight during pregnancy, &/ or was she overweight to begin with?The father...? Is he a source of help, or just more stress?I know this sounds like a myraid of questions, but one persons 'food' is another persons poison...it sounds like her kidney 'failure' may have been a long time coming...PLUS, being a mother as well as you are, I know you know our body goes through many changes during pregnancy, and that that condition can bring about many unknown or hidden factors that we may have been able to live with, or overlook, when we are not. I am soooo saddened for you and your daughter and grandchild...pregnancy, and a new baby is difficult enough to deal with under even the best of circumstances...Especially frustrating must be the conflicting diagnosis/ treatments. Here's some suggestions: Keep a journal of all these events, circumstances, onsets of things- I know, easier said than done. You may have to just make little notes, or carry around a tape recorder, and then transfer them to something more permanent later. SEE MORE SPECIALISTS- Has she had a CAT scat, MRI, or x-ray? Any abnormalites with the pancreas, liver, bladder, intestine, etc.? Get her to eat as well as she can- organic and whole foods- raw veggies, fruits, nuts- and have her eat frequently, but smaller meals- this may help alleviate the strain on the kidneys, and over-all digestive system- so she won't get as nauseated, vomit, or lose her appetite for food or life. Also, have her drink los of good waer, even if she doesn't feel like it.See a psychologist, BOTH of you. This type of trauma cannot be helping the situation any. How's your familial or friend support? Can anyone help with the baby and houshold duties, so you can focus on working and helping your daughter? As I have mentioned withint the other posts, although I am not a Jehovah's Witness, I have received invaluable support from them since I was 17-(I am 37 now). I am sure there is a local Kingdom Hall where you live...PLEASE visit them... they are truly a loving, truthful, and supportive group. Lastly, keep 'me' posted, I am VERY concerned for you, your daughter, and that precious baby! ( I hope he/ she is healthy). God bless you!
    Anonymous 42789 Replies
    • January 9, 2007
    • 02:29 AM
    • 0
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