Discussions By Condition: I cannot get a diagnosis.

help i think something is wrong!

Posted In: I cannot get a diagnosis. 18 Replies
  • Posted By: Anonymous
  • February 20, 2007
  • 02:07 AM

I am having some very strange symptoms, most i've had for 5+ years. Rash, dizziness, tiredness, fatigue, constant headache, hair loss, high iron levels and since yesterday i've noticed a tingling sensation in my right foot and ocasionally in both my hands, yesterday i also developed a severe stomache ace and when i woke up this morning i still have it. I have a stange lump underneath the base of my right middle finger which i'm getting an ultrasound on tomorrow. Please help it's driving me crazy i know something is wrong here!
any advice would be appreciated :)

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18 Replies:

  • By the way I'm 17 years old
    Anonymous 42789 Replies
    • February 20, 2007
    • 03:07 AM
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  • i also forgot to mention i get frequent blood noses for no reason and they are usually hard to stop and bleed very heavily
    Anonymous 42789 Replies
    • February 20, 2007
    • 06:47 AM
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  • explain "rash" .when are you dizzy?which part of your head is the pain located? do you literally mean"constant"?
    Anonymous 42789 Replies
    • February 20, 2007
    • 07:24 AM
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  • well i've had the rash for about 8 years, it comes and goes, usually comes on at night, sometimes hurts and i get it all over my body except my face, by the morning the rash is still there but is faded. I get headaches every day and i have to take panadol all the time- usually twice a day, the pain is at the back of my neck and all over my head. I get dizzy when i stand up and when i'm walking around, i get so dizzy i have to hold on to something so i don't fall.
    Anonymous 42789 Replies
    • February 20, 2007
    • 11:53 AM
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  • i still have the stomache ache, it isn't going away but has got a little better
    Anonymous 42789 Replies
    • February 22, 2007
    • 08:53 AM
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  • Have you had a Ferritin blood test...wondering if dont have hemochromatosis.There is also a genetic test - but no having the responsible gene does not rule out the possibility of a hemochromatosis case.Get your iron binding capacity checked.
    Anonymous 42789 Replies
    • February 22, 2007
    • 11:24 AM
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  • my ferritin iron levels are high
    Anonymous 42789 Replies
    • February 22, 2007
    • 01:01 PM
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  • for the past two nights i have been extra trouble sleeping due to excessive sweating and it isn't hot at the moment... weird
    Anonymous 42789 Replies
    • February 22, 2007
    • 01:39 PM
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  • Night sweating, headaches, and rashes makes me think of the Lyme disease coinfections. Babesia, borrellia and there are many more. You may not have had the traditional bulls eye rash, when you first got bit. Lyme messes with the whole body when gone on undetected, could have deplete, minerals and such from all your organs, like thyroid that will lead to hair loss. Find a rheumotologist , beware, lyme dosen't always show up in the blood test, so the clinical symptoms are important to tell the doc. Hope you get your answer soon so you can feel better. Check out www.lymenet.org.
    Anonymous 42789 Replies
    • February 22, 2007
    • 02:12 PM
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  • sounds like hemochromatosis to me, as well. Get to the doc and get a blood test.
    Anonymous 42789 Replies
    • February 23, 2007
    • 00:00 AM
    • 0
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  • Night sweating, headaches, and rashes makes me think of the Lyme disease coinfections. Babesia, borrellia and there are many more. You may not have had the traditional bulls eye rash, when you first got bit. Lyme messes with the whole body when gone on undetected, could have deplete, minerals and such from all your organs, like thyroid that will lead to hair loss. Find a rheumotologist , beware, lyme dosen't always show up in the blood test, so the clinical symptoms are important to tell the doc. Hope you get your answer soon so you can feel better. Check out www.lymenet.org.thanks for your reply... last time i went to the docs which was last week i told him about my symptoms and he didn't seem worried at all i think he thinks i'm just a hypchondriac just like my parents think.
    Anonymous 42789 Replies
    • February 23, 2007
    • 01:59 AM
    • 0
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  • sounds like hemochromatosis to me, as well. Get to the doc and get a blood test.my blood tests were normal except for the high iron and ferritin levels... he wasn't worried at all...
    Anonymous 42789 Replies
    • February 23, 2007
    • 02:00 AM
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  • Have your doctor check for polycythaemia it is a disorder where you have increased red blood cells (when they said you iron was high it was probably your hematocrit which is increased rbc's) your symptoms fit headaches dyspnea, pruritis, bleeding, nightsweats, and abdominal pain. Polycythaemia rubra vera is the primary form and is a myeloproliferative disease. then there are secondary forms that are caused by other things like smoking, tumors, pulmonary disease, or even high altitude and stress to name a few. It is unlikely to be hemachromatosis at your age (from hemacromatosis serum ferritin levels do not begin to increase untill about 30 years old).
    Anonymous 42789 Replies
    • February 23, 2007
    • 08:27 PM
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  • I am having some very strange symptoms, most i've had for 5+ years. Rash, dizziness, tiredness, fatigue, constant headache, hair loss, high iron levels and since yesterday i've noticed a tingling sensation in my right foot and ocasionally in both my hands, yesterday i also developed a severe stomache ace and when i woke up this morning i still have it. I have a stange lump underneath the base of my right middle finger which i'm getting an ultrasound on tomorrow. Please help it's driving me crazy i know something is wrong here!any advice would be appreciated :)you might want to have a specialist take a look at your kidneys, it could be kidney disease, although you are pretty young, well, no harm in trying, and take it easy.
    Anonymous 42789 Replies
    • February 23, 2007
    • 11:56 PM
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  • Have your doctor check for polycythaemia it is a disorder where you have increased red blood cells (when they said you iron was high it was probably your hematocrit which is increased rbc's) your symptoms fit headaches dyspnea, pruritis, bleeding, nightsweats, and abdominal pain. Polycythaemia rubra vera is the primary form and is a myeloproliferative disease. then there are secondary forms that are caused by other things like smoking, tumors, pulmonary disease, or even high altitude and stress to name a few. It is unlikely to be hemachromatosis at your age (from hemacromatosis serum ferritin levels do not begin to increase untill about 30 years old).he hasn't checked for anything besides a blood test
    Anonymous 42789 Replies
    • February 24, 2007
    • 06:56 AM
    • 0
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  • Have your doctor check for polycythaemia it is a disorder where you have increased red blood cells (when they said you iron was high it was probably your hematocrit which is increased rbc's) your symptoms fit headaches dyspnea, pruritis, bleeding, nightsweats, and abdominal pain. Polycythaemia rubra vera is the primary form and is a myeloproliferative disease. then there are secondary forms that are caused by other things like smoking, tumors, pulmonary disease, or even high altitude and stress to name a few. It is unlikely to be hemachromatosis at your age (from hemacromatosis serum ferritin levels do not begin to increase untill about 30 years old).polycythaemia is cancer?!
    Anonymous 42789 Replies
    • February 24, 2007
    • 07:30 AM
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  • I woke up this morning and my WHOLE body is in pain for no apparent reason
    Anonymous 42789 Replies
    • February 25, 2007
    • 02:17 AM
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  • i am going to the docs tomorrow to get a cyst removed so i may tell him again about my symptoms
    Anonymous 42789 Replies
    • February 25, 2007
    • 03:00 AM
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