Discussions By Condition: I cannot get a diagnosis.

Help - I really need a diagnosis - this is debilitating

Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: latejuly
  • October 25, 2008
  • 04:16 PM

If you had been sick for five years with the symptoms now so debilitating you can't work or go to school or socialize. The doctors know there is something wrong with you but they aren't sure, they have thought crohn's, addisons' or carcinoid tumor. They've done a CT, two colonscopies and endoscopes. I've been to specialists they all agree something is wrong but they can't find anything obvious. any guesses would be appreciated as my doctor and i are both researching together - we think the issue might be in the small bowel but we are not sure.

The symptoms are:
-weight loss (35lbs)
-stomach pain from solar plexus curves around to belly button (all on the right side)
-b12 deficiency (intermittent)
-anemia (intermittent)
-boils and canqer soars

I have low blood pressure 80/60 - the anemia is off and on. Most of the times its good other times it bottoms out. My thyroid levels are normal so is my ACTH and other hormones. I find it hard to eat.

I also get flushing, it feels like my head is on fire (but no fever) and I get really bad sweats for no reason at random times (I'm 100 lbs right now)

I have been tested negative for celiac (and have no reaction to gluten) and have had colonscopies which are negative for tumors or cancer. I have tried to see if its allergy related and I am not lactose intolerant (though I prefer not to eat dairy). It's not lyme disease either. I'm negative for parasites and bacterial infections.

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