Discussions By Condition: I cannot get a diagnosis.

Help I can not seem to get a diagnosis!

Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: seekingsam
  • July 10, 2007
  • 01:43 AM

:confused: Please someone if you can help I would be deeply in debit. I am 31 and I have been having headaches for about 8 years. Through this year I having other symptoms had a kidney stone and ended up wearing a stent for about a month i have since had kidney spasms repeated kidney infections, lower adominal pain in right side, confusion, right leg pain numbness and tingling all the way down into right foot. I call them episodes it starts with confusion, shortness of breath, upper back pain, then feels like someone has there hands around my throat(kinda heavyness or I want to pull at my shirt collar cause it feels to tight,but its not), then tingling in face then diarrehea head begins to itch, the more I scratch the more knots pop up on my scalp and forehead, occasionaly I start wheezing. I have recently been diagnosised with hypothiroidisum, and stenosis( they explained it like this the main artery above rt kidney closing off for some reason they cant find why) this is how they found my thyroid level to be off by checking my cholestorl) it seems that this has been the story all along they go looking for one thing and end up finding something else. Have other symptoms to many to remeber off hand but I am keeping a journal. All seem to come and go and it seems to be spaced like a vicious cycle........... Please Help I feel as though I am going crazy. Somedays I question my sanity and other I am certian I have some rare something no one has heard of yet. I know the pain I feel is real I just wish I had some reason for it so my friends and family that dont experience this pain first hand they only see what i go through Know that I am not crazy or being a baby about everything............. Thanks for any feed back good or bad atleast I have gotten someones attention Thanks and God Bless........

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  • i have had kinda similar condition since april, started with pain in both eyes, then weakness, sweats, shortness of breath, awful headaches, throat burning and sometimes feeling throat closing in, a feeling of nerve endings exposed raw inside the gullet when swallowing hot or cold drink, pain in kidneys and sometimes in heart, tingling and sometimes numbness in my feet and hands, tingling and numbness in my face below nose. Headache was actually not a regular headache but some pain right in the middle of my head somewhere right between the ears, and it was pushing into the back of both eyes, into both ears, causing sometimes dizziness and ringing in the ears, and sometimes I was losing balance. so i went to see an eye doctor first he looked at the retina and says you have a brain tumor (!), sends me to neurologist, he does MRI, tons of tests and all of them don’t show any disease so he says this is intracranial hypertension of unknown reason, take diuretics. but then i accidentally noticed with my tongue a pea size lump in my mouth in the palate. It wasn’t painful at all but lump is a lump, what if it was the reason? So I asked the doctors, they say it's nothing but i insisted and they sent me to an ENT (why not to dentist I don’t understand) who almost laughed at me and said this is nothing serious just a minor salivary gland inflammation, just rinse it. So I went to seek second opinion, you americans are big on this. GWU clinic! Professor! And he couldn’t even see the lump! Anyway, I went back to my country and went to see an oral surgeon, he looked at it and says this is an abscess and we’ll open it right away, so he cut it open and says there is lot of pus inside and it’s been sitting there for a long time it encapsulated and the bone next to it started dissolving – ostitis? – bone gone bad. So basically the pus was coming from the badly treated root canal in one of the upper teeth and developed an abscess which was not acute and it didn't even bother me, not even even bad smell like bad teeth can give, and it encapsulated but was still sitting there, getting bigger, pushing on the nerves inside the head, intoxicating the body as a whole, giving all those symptoms (i was also getting lots of pus pimples on my face - at 47 years old! and i never had them before). The doctor cleaned the pus out – curettage? – and gave me massive antibiotic treatment for two weeks and I already feel better now, at least the feeling of pressure in the eyes is gone and there is no ringing in the ears anymore. So, check your teeth and roots or ears or find some other source of chronic infection in the body – repeated kidney infection means that infection comes from somewhere else through the kidneys all the time, and teeth are the most common place for chronic infection. Right lower abdominal pain can be chronic appendicitis, check it too . yeah, they questioned my sanity too, and even gave me antidepressants – I say those doctors failed big time in their diagnostic skills not to see a palate full of pus because of bad root canal job. Good luck to you and be persistent, doctors are not interested in getting you healthy, they only want their money that’s all
    Anonymous 42789 Replies Flag this Response
  • Have you seen a good endocrinologist for your thyroid? That's where I'd start, along with someone to take care of that kidney for you. I feel of lot of diet changes might help your situation. Start looking into macrobiotics and more fresh, organic foods and juices.
    Monsterlove 2921 Replies Flag this Response
  • :confused: Please someone if you can help I would be deeply in debit. I am 31 and I have been having headaches for about 8 years. Through this year I having other symptoms had a kidney stone and ended up wearing a stent for about a month i have since had kidney spasms repeated kidney infections, lower adominal pain in right side, confusion, right leg pain numbness and tingling all the way down into right foot. I call them episodes it starts with confusion, shortness of breath, upper back pain, then feels like someone has there hands around my throat(kinda heavyness or I want to pull at my shirt collar cause it feels to tight,but its not), then tingling in face then diarrehea head begins to itch, the more I scratch the more knots pop up on my scalp and forehead, occasionaly I start wheezing. I have recently been diagnosised with hypothiroidisum, and stenosis( they explained it like this the main artery above rt kidney closing off for some reason they cant find why) this is how they found my thyroid level to be off by checking my cholestorl) it seems that this has been the story all along they go looking for one thing and end up finding something else. Have other symptoms to many to remeber off hand but I am keeping a journal. All seem to come and go and it seems to be spaced like a vicious cycle........... Please Help I feel as though I am going crazy. Somedays I question my sanity and other I am certian I have some rare something no one has heard of yet. I know the pain I feel is real I just wish I had some reason for it so my friends and family that dont experience this pain first hand they only see what i go through Know that I am not crazy or being a baby about everything............. Thanks for any feed back good or bad atleast I have gotten someones attention Thanks and God Bless........i have had kinda similar condition since april, started with pain in both eyes, then weakness, sweats, shortness of breath, awful headaches, throat burning and sometimes feeling throat closing in, a feeling of nerve endings exposed raw inside the gullet when swallowing hot or cold drink, pain in kidneys and sometimes in heart, tingling and sometimes numbness in my feet and hands, tingling and numbness in my face below nose. Headache was actually not a regular headache but some pain right in the middle of my head somewhere right between the ears, and it was pushing into the back of both eyes, into both ears, causing sometimes dizziness and ringing in the ears, and sometimes I was losing balance. so i went to see an eye doctor first he looked at the retina and says you have a brain tumor (!), sends me to neurologist, he does MRI, tons of tests and all of them don’t show any disease so he says this is intracranial hypertension of unknown reason, take diuretics. but then i accidentally noticed with my tongue a lump of a pea size in my mouth in the palate. It wasn’t painful at all but lump is a lump, what if it was the reason? So I asked the doctors, they say it's nothing but i insisted and they sent me to an ENT (why not to dentist I don’t understand) who almost laughed at me and said this is nothing serious just a minor salivary gland inflammation, just rinse it. So I went to seek second opinion, you americans are big on this. GWU clinic! Professor! And he couldn’t even see the lump! Anyway, I went back to my country and went to see an oral surgeon, he looked at it and says this is an abscess and we’ll open it right away, so he cut it open and says there is lot of pus inside and it’s been sitting there for a long time it encapsulated and the bone next to it started dissolving – ostitis? – bone gone bad. So basically the pus was coming from the badly treated root canal in one of the upper teeth and developed an abscess which was not acute and it didn't even bother me, not even even bad smelllike bad teeth can develop, and it encapsulated but was still sitting there, getting bigger, pushing on the nerves inside the head, intoxicating the body as a whole, giving all those symptoms (i was also getting lots of pus pimples on my face - at 47 years old! and i never had them before). The doctor cleaned the pus out – curettage? – and gave me massive antibiotic treatment for two weeks and I already feel better now, at least the feeling of pressure in the eyes is gone and there is no ringing in the ears anymore. So, check your teeth and roots or find some other source of chronic infection in the body – repeated kidney infection means that infection comes from somewhere else through the kidneys all the time. Right lower abdominal pain can be chronic appendicitis, check it . yeah, they questioned my sanity too, and even gave me antidepressants – I say those doctors failed big time in their diagnostic skills not to see a palate full of pus because of bad root canal job. Good luck to you and be persistent, doctors are not interested in getting you healthy, they only want their money that’s all
    Anonymous 42789 Replies Flag this Response
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