Hi, I'm looking for anyone who can help me find help for my mom. She's 55 yrs old and up until 3 years ago has only been in the hospital to give birth. No medical problems her whole life but had to be given an emergency blood transfusion in 2006 her HB level was 3.0. We were told that she should have been in a coma but she was functioning and walking around not really "feeling sick". Since then she had been prescribed prednisone and her doctors have been trying to get her condition diagnosed. Lupus and RA have been ruled out so they're calling it autoimmune hemolytic anemia. She has been on prednisone at levels from 60-25mg but the side effects have been horrendous. She can no longer function properly, extremely fatigued (HB levelled at 10.7), joint pains, hair loss. She has been steadily declining and no one can give a definitive answer. Can anyone help? These are her original symptoms.- dark colored fingernails (very quick growing), no armpit hair, scabs in her scalp, stunted hair growth (overall), bleeding in the joints, pain on right side of face, skin rash, incontenence, cool to touch but internal fever and chills.
They are recommending she gets off prednisone and have prescribed Imuran. If anyone can offer some advice or recommend a specialist I would appreciate it. We live in NJ. HELP HELP HELP!!!!
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