I'm a 23 year old female. About 5-6 years ago I started feeling tired all the time. I went to my dr and of course had all the psych evaluations and was tested for mono and thyroid function. They decided I was depressed and anxious and so I've been treated for depression and anxiety this whole time. I've tried multiple antidepressants and it never seems to help the fatigue. It's slowly getting worse. The last couple of years I've been so tired that I developed neurological symptoms as well. I'm off balance and feel like I might fall going down stairs or down slopes. I mix up words, and can't think of other words. Also, I work as a patient rep at a dr's office, and when I take down patient's numbers I have trouble making my hand write down what my brain hears. I used to get all A's in school easily, but school's a struggle now because I'm so tired and my brain has a hard time retaining anything. My GPA after college was embarrasing. I also have episodes where it feels like my brain shuts off for a second.
In college I started taking dance. I had a horrible pain in my hip, and my doctor said it was tendonitis. After a few weeks, it went away. However, recently I've had a couple times where my left hip or knee will hurt so bad I limp. My shoulder hurt once too. Every time my doctor just says it's tendonitis. I don't know if this is a symptom, or if it's just because when I'm at home I lay in bed a lot. I try to exercise, and I have a pretty active job.
Please help! I've seen 2 PCP's, 2 sleep specialists, 1 neurologist, 1 neurologist/sleep specialist, and I'm scheduled to see a geneticist soon (even though he said he didn't think he could help me). I've had multiple blood tests that include ANA, Rheumatoid arthritis, CBC, thyroid, cortisol, and vitamin B12 all normal. I've had 4 normal overnight sleep studies. And one normal MSLT. I had a normal actigraphy study that shows I get an average of about 9 hrs a night of sleep. I also had a normal sleep-deprived EEG. The only abnormal tests I've had were another MSLT where my sleep latency showed hypersomnia but no REM sleep during naps. I've also had an abnormal vitamin d blood test where I had a deficiency. I've been taking vitamins for that, and I guess it helps a little bit, but not really that noticeably. I've also recently had an MRI of the brain that showed 12-15 unspecific foci in T2 that were a/b 8 mm. My neurologist/sleep specialist said it's not a brain tumor and she doesn't think it's ms, but I didn't quite get a clear answer of what it might be. I haven't had any trauma in my life or really any bad virsuses besides mono. I also don't have a history of headaches. Maybe an autoimmune disease?
Another weird piece of the puzzle is that my estranged maternal grandfather just died and I have letters he wrote to my mom a while ago. He wrote about being tired all the time and that it started the same age my fatigue started. He said that his entire life he could not function without ritalin. Could this be a genetic disorder?
So far my doctors are kind of at a loss, and I don't know where else to turn. My insurance won't cover the mayo clinic. Right now I'm taking Welbutrin (150 mg) and Ritalin (20 mg) every day, and I'm still tired. Although, there's a noticable difference when I'm not taking the meds. I'm even more tired. The meds definitely help with cognative stuff.
I've tried sleeping pills at night to see if that makes a difference and it didn't. My doctors tried prescribing nuvigil and provigil but since there's no diagnoses, my insurance company has denied it about 5 times. I've tried adderall but it made my heart race. I've tried exercising a lot, and that just makes me even more exhausted.
It seems like over the last 5 years it's getting worse and worse. I'm afraid I'll just keep going down hill. I don't want it to keep going that way. Please help!!!!!