Discussions By Condition: I cannot get a diagnosis.

HELP!!! Doctors don't know what's wrong.

Posted In: I cannot get a diagnosis. 24 Replies
  • Posted By: emilymay8603
  • April 9, 2007
  • 07:56 PM

May 2006- started having uncontrollable diarrhea everyday, abdominal pain, and vaginal bleeding.

July 2006- went to primary doctor, and OBGYN. Had a pelvic ultrasound. Both doctors did not know why I was bleeding.

September 2006- Had an I.U.D put in. The OBGYN said the I.U.D could make me bleed for up to 1 year.

Around October or November, I changed my Primary doctor. I told him about the diarrhea. I got a blood test, which came back normal. He said I probably have I.B.S. Over a period of months my doctor prescribed several medications, which only made my stomach pains worse.

February 2007- I got a new OBGYN, which said I was probably still bleeding because of my I.U.D.

In the beginning of March I stopped bleeding, and started having bad vaginal discharge.

March 8th- I went to my primary doctor, I was having abdominal pain, and pain when I went to the bathroom. He prescribed me antibiotics and said I probably have a UTI.

March 10th 2007- I got really nauseas, and I started having bad stabbing pain in my lower abdomin. Fever of around 100.0.

March 12th 2007- I went to the emergency room. E.R said I have Pelvic Inflammatory disease. I was prescribed antibiotics.

I took all antibiotics as prescribed. But continued to have the same symptoms.

Around March 29th 2007- I had be having bad abdominal pain and I was still nauseas I wet back to my primary doctor and told him I am still feeling horrible. He said I probably have Bacterial Vaginitis. He prescribed me antibiotics.

April 3rd 2007- I went to a different emergency room. They did a Pelvic cat scan, pelvic exam, and blood tests. They said they cannot find anything but a small cyst on my left ovary, that shouldn't be causing any symptoms.

I have had a mild fever, bad headaches 24 hours a day, nausea 24 hours a day and bad stabbing pains that come and go for over a month. My tongue is now all white, which I think might be from all the antibiotics I am so frustrated, I cry everyday. I have barley been able to leave the house for all this time. I cannot go shopping, because when I stand for too long I get really light headed, and I feel like I am about to throw up. And Intercourse hurts really badly.

I am 22 years old, I have been married for over 6 years, we have 3 kids. I have no other medical conditions. I do have a hernia, that hasn't caused me any problems.

Any help would be so amazing. Thank you so very much!

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24 Replies:

  • I would suggest you go to a homeopath. I had thrush and other vaginal problems for over three years, had blood tests and other tests for all that time, had swabs, examinations, scans, everything you can imagine and no relief. I had antibiotics which gave me oral thrush and more. It was a terrible time. This all started just before I got married, so you can imagine how great our sex life was for the first years of marriage... not!I was so depressed I wanted to die! And frustrated cause doctors kept saying there was nothing wrong with me! I finally went to a homeopath who spent 2 hours with me on our first consultation, (as opposed to the 10 -15 mins my doctors gave me each time) and she gave me some drops to take for a few weeks, and a strong dose of something to take once off in her presence. The next day the thrush was gone and I've had minimal recurrence, the mid month bleeding is gone and has never recurred and the other problems have pretty much cleared up. Whenever I have thrush now, I apply a couple of drops of this stuff she gave me (all herbal - Australian Bush Flower Essence, I believe it is, but I'm not sure which one) and it goes away instantaneously, I'm not joking. I know many doctors poopoo homeopathy, but as far as I'm concerned she did for me in 24 hours what they couldn't in 3 years. In my opinion they were just after the money, whereas the homeopath just wanted to help me get my life back. I'd recommend it.
    Anonymous 42789 Replies Flag this Response
  • Please have the white on your tongue cultured. It sounds like a candida infection. If you look up the symptoms of candidiasis you can see how devastating it can be. When you take antibiotics for any long period of time they damage your body's ability to fight off infections. The natural organisms in the intestinal tract are destroyed. You need acidophilus to build that back up again. This also happened to me--I was ill for a long period of time and my immune system was lowered. I now have candida, a foot fungus and conjunctivitis. My problems range from GI dysfunction, swallowing problems, facial numbness and blood sugar problems. If you do not want to take prescription drugs go to a naturopath and get capricin for the yeast and maybe garlic to boost your immunity.
    Anonymous 42789 Replies Flag this Response
  • Emily, I'd say its time to stop letting the doctors "assume" they know what's wrong with you, because your symptoms are quite significant. Seriously consider getting a CT and an MRI of the affected area; ultrasound is hardly as useful and the doctors might totally be missing what the real problem is. The issue with your tongue- it could be bacterial overgrowth from eating junk food, but most likely it's thrush, a fungal infection. It's common in people who have compromised immune systems or, like you, who have been on antibiotics for extended periods of time. Excessive use of antibiotics can also create internal fungal infections and colitis, as well as create significant forms of resistant bacteria. These doctors need to STOP giving you junk to try and disguise your problems and actually do some WORK to get to the bottom of what is causing them. "You probably have" or "it must be" is hardly an actual diagnosis, just an assumption. I would seriously get the MRI and CT done, and then see a major university-affiliated OBGYN and GI specialist, as well as an doctor of Internal Medicine (internist). Sorry- can't BELIEVE you've seen so many doctors and specialists and they've done absolutely nothing for you with these kinds of symptoms, except give you antibiotics...they need to do some real work and testing and get to the bottom of this already!
    Anonymous 42789 Replies Flag this Response
  • Thank you so much for your reply. I have an appointment to see my primary doctor on Thursday. He'll probably think I'm making something out of nothing, like he always does.
    emilymay8603 37 Replies Flag this Response
  • Have you tried going to a GI specialist? It may be more helpful than going to your primary care doctor.
    Missy2007 1 Replies Flag this Response
  • I had a ct scan at my last E.R visit. They said all they could find was the ovarian cyst. I have an appointment to see a GI in may.
    emilymay8603 37 Replies Flag this Response
  • do you still have the IUD? Is it copper or Mirena (hormones)...either way if you still have it inside you GET IT OUT! This can be causing a lot of your symptoms. What antibiotics were you prescribed? Please keep in mind that some have horrible side effects in addition to causing your intestinal flora to be out of whack. Your doctors sound horrible.:confused: Please find a naturopath, Doctor of Oriental Medicine, or NAET practitioner to help get you back in balance. You are very young and after having 3 kids so young you are probably quite depleted. Candida overload is for sure a problem, visit www.wholeapproach.com or www.candidasupport.org for info on this. Most docs don't deal with candida, and if they do Western antifungal meds are very toxic - please don't take them if you can help it. By the way, the best treatment I have found for thrush and candida overload is a product called Threelac - this is very helpful and effective! Best wishesDOM
    acuann 3080 Replies Flag this Response
  • The IUD is the mirena. I've been trying to get it taken out, but I can't see the obgyn until April 27th. I've had my primary doctor and my insurance call the OBGYN and that is the soonest appointment I can get. As for the antibotics I can only find 2 which are :Doxycycline Hyclate 100mg, and Cipro 500mg.
    emilymay8603 37 Replies Flag this Response
  • Emily= Don't worry if your Primairy thinks you're making something out of nothing. Judging by your symptoms I'd hardly say it's "nothing". Sounds more like s/he just doesn't want to spend time researching what could be causing it. Also, don't necessairly believe their comments about dismissing drug interactions. I've encountered doctors who don't even KNOW about some of the side-effects or allergic reactions to the very drugs they perscribe.
    Anonymous 42789 Replies Flag this Response
  • That is ridiculous - wow, can you get another gyno? I would not go back to the original one if possible. How they could possibly let you continue on the mirena with PID is beyond me - it is totally contraindicated, and can be the cause of PID. Did you tell them you are having severe side effects? They might work you in sooner. I believe a lot of your symptoms after 2006 could be directly caused by the mirena! Please google this drug or look it up on the following website I list below. Doctors are the LAST to think about drug side effects, especially hormonal birth control. Please do your research on this, and before you take another antibiotic, look it up on www.drugs.com to know ALL the side effects. Cipro is very strong and can cause pseudomembranous colitis - look this up. Please get the best quality probiotic you can afford, and take it daily. A probiotic will have several strains of beneficial bacteria that will help rebuild your intestines and therefore rebuild your immune system. You can find one at any healthfood store, or try www.vitacost.com for good prices. Jarrow is a good brand. As for your bleeding and nausea, have you looked into endometriosis? I hesitate to ask if they tested for this - it's hard to diagnose, and the docs you have now sound incompetent. Best wishesDOM
    acuann 3080 Replies Flag this Response
  • I called my insurance this morning, and I am going to a different obgyn on the 17th to get the iud taken out. I don't think they have tested for endometriosis. I was thinking that's what I have too. I will go today and get the probiotics. Thanks for the great advice!
    emilymay8603 37 Replies Flag this Response
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  • I took my mirena IUD it was causing many many health problems that were impossible to figure out. Skin problems, infections that wouldn't go away, pain in abdomen and back, trouble sleeping, depression, and not feeling myself. Very sad, and very controlled, by the bloating and irritable bowels.it isn't a fix to every problem, and i did bleed intensely with a lot of pain after having it out for 5 days. i felt horrible, but then I started to lose bloating in my face, not having irritable bowels, feeling a bit more energy, not too much more, but all over sense of calm. Peace.I won't use that IUD again ever.Elisa
    Anonymous 42789 Replies Flag this Response
  • check this out www.ahummingbirdsguide.com see how many sx you have...best of luck...mommy cat
    mommy cat 1654 Replies Flag this Response
  • On saturday I got my IUD taken out. I still feel very nauseas 24 hours a day. I haven't been able to really go anywhere since the beginning of March. I can barely clean the house. If I stand up for more than about 10 minutes I start feeling really dizzy and even more nauseas. I feel like I am car sick all the time, and when I am in a car I feel worse. I can't watch certain things on t.v, any type of fast motion makes me sick, for example watching cars race around a track, or watching someone playing a video game. Also I still have a low fever than comes and goes throughout the day. I not sure if I mentioned it before but my lymph nodes in the middle of my neck under my chin are swollen. When I saw my primary doctor 2 weeks ago he said they were probably swollen because of the thrush I had/have.
    emilymay8603 37 Replies Flag this Response
  • You still sound like you have an infection of some sort. Have they checked your gallbladder or liver enzyme levels? Are you able to keep food down? Are you drinking lots of water? You are most likely dehydrated, and could also be hypoglycemic and/or anemic. Get some fresh raw ginger and make this into a tea (steep for 10 minutes) - it is a Chinese herbal therapy for nausea and works great. Do you still have diarrhea or loose stools? How is your urination? Any vaginal discharge - has the bleeding continued? Do you have any sweating? Chills? There is something very wrong here, and I hope you find out - please keep us posted and wish I could be of more help.Best wishesDOM
    acuann 3080 Replies Flag this Response
  • Thank for your advice acuann. I don't think they have checked my gallbladder or liver enzyme levels. I am able to keep food down, it's weird, I totally feel like I need to throw up, but I never do. I do have diarrhea everyday, throught out the day. I do have vaginal discharge that is grey in color. The obgyn I saw on Saturday said he saw no signs of infection while taking the iud out. I am bleeding again very heavily, which is a dark purple color. (sorry if I gross anyone out) No sweating. The only time I get the chills is when my fever gets really bad. I have an Epigastric Hernia. Could that be causeing any of these problems? In another thread I asked if you doctors could see if I had endometriosis through a pelvic Intravenous contrast study.( A CT scan where they put contrast fluid in your IV) And also if you could see an ectopic pregnancy through one of those scans?
    emilymay8603 37 Replies Flag this Response
  • ......urination is fine.
    emilymay8603 37 Replies Flag this Response
  • Emilymae...I have siome of the same sx...PLEASE go to www.ahummingbirdsguide.com or google Myalgic Encephalomyelitis...TRUST ME...All of your symptoms are there...I know...I have the same problems as well as hundreds of people on this site....went to my dr. today with this info and even he is overwhelmed with the amount of detailed, correct information I had for him regarding my illness, symptoms of ME and I even told him about this site...Honey, if you look at other threads, especially where I have posted, you will find hundreds of people with the same or similar sx yo your own...please note I have already heard from several people in several states who have similar symptoms and they are all taking info to dr.s Is it just a coincidence that so many people are having similar sx, no one can get a diagnosis...I'm a nurse...PLEASE check out the symptoms page on the site above and let me know if you think it may be a possibility...mommy cat
    Anonymous 42789 Replies Flag this Response
  • I don't think I have M.E. I really only have one of the symptoms. Here's what another site I found said: From Wikipedia, the free encyclopedia Myalgic Encephalomyelitis (M.E.), pronounced , is also known as Post-Viral Fatigue Syndrome (PVFS) (ICD10 - G93.3) and affects the central nervous system (CNS), immune, and many other systems and organs. M.E. is also frequently called Chronic Fatigue Syndrome (CFS) as the diagnostic criteria defined by the american Centers for Disease Control and Prevention (CDC) in 1994 for CFS also encompass most of the criteria used for M.E. However, many consider the CDC defined CFS (CDC-CFS) to encompass a large group of syndromes of potentially multiple etiologies. In the United Kingdom, Canada and other Commonwealth nations the term CFS tends to refer to the criteria definied by Sharpe at al in 1991 (known as the Oxford criteria or Oxford-CFS) which are much more loosely definied than CDC-CFS. Please see: Chronic Fatigue Syndrome which also contains a lot of information relevant to M.E.. Currently there is no simple diagnostic test for M.E. which is a diagnosis of exclusion. However, M.E. has many unique biological traits and an inexpensive and effective diagnostic test is the focus of much research. Typical symptoms include: extreme debilitating fatigue, post exertional malase, pain, muscle weakness, poor memory and concentration, orthostatic intolerance, digestive disturbances, hypersensitivity and immune system weakness. Symptoms range from mild to life-threateningly severe. All types of people at all ages are affected. In many cases, onset is linked to a viral infection. Other triggers may include an operation or an accident, although some people experience a slow, insidious onset. ME is an almost premanent illness with only a 5% recovery rate within the first two years and a declining recovery rate there after.
    emilymay8603 37 Replies Flag this Response
  • Emily...the following is a list of some ME symptoms...diarrhea, abdominal pain, irregular periods/bleeding, nausea, fever, even low grade 100.0, bacterial vaginosis(as secondary infection) headaches, fungal infections of the mouth(oral thrush), lightheadedness...I know because I have the majority of your symptoms and many more...Please reconsider the ME site...To L on home page is sx page...at end of first paragraph on sx page is a summary of symptoms...yours are all there..I'm trying to help...I found a Dr. yesterday for the first time in 7 mos that took me seriously and is doing immune testing of my blood in order to diagnose it...I already have 2 test...low potassium and elevated lymphocytes that correalte with ME...best of luck...God Bless you and your family...mommy cat
    mommy cat 1654 Replies Flag this Response
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