Discussions By Condition: I cannot get a diagnosis.

Help diagnose me!

Posted In: I cannot get a diagnosis. 15 Replies
  • Posted By: Anonymous
  • April 3, 2010
  • 07:01 PM

Background:
29 yo Male
overweight but not obese
no allergies/medical condx (other than exercise-induced asthma but haven't used my puffer in years)


Story:
About 3+ weeks ago, I started to feel run down like I was fighting off a flu. Became very fatigued, weak, and started to feel dizzy and unbalanced when I walked (feel a bit better lying down). Saw family Dr (haven't been in a couple years, as I've felt fine until recently), he ordered some tests (blood profile/ferritin/mono/ C-Reactive Protein/Thyroid) and told me it was probably a "low-grade subclinical depression". Bear in mind that this dr. tells everybody that they are depressed or anxious (sister was even institutionalized for a month because she thought she was going crazy, ended up being a thyroid issue that SHOWED UP on blood tests he ordered but he ignored them).

A couple days later, I started to have episodes of feeling extremely light-headed like I was drunk or high (don't do drugs and drink MAYBE avg. 1-2 glasses of wine a month) and I was slurring my words, forgetting words, confused, dizzy, etc. Also felt needles and pins in my arms and legs and numb in my lips. Finally, called our provincial nurse line and they told me to go to the ER in case it was a stroke/TIA. I took some chewable asprin and went to the ER even though I hate hospitals. BP was a little high, they took an ECG (normal) and eventually sent me home; the ER nurse said based on the ECG it probably wasn't life-threatening and to go see my family dr the next day. Nobody even examined me or did a neuro exam.

I went to my family Dr again. Without asking me any questions or anything, he started to talk to me about depression/anxiety and gave me a questionnaire. The thing is I have NO signs of depression--no feelings of hopelessness, I can laugh easily (and joked around with the dr), no anxiety either, no suicidal thoughts, no loss of pleasure, no external stressors either. I feel that my doc is trying to pigeon hole me into this diagnosis and he didn't ask me ONCE if I felt depressed or listened to my symptoms. I'm worried that he's basing his diagnosis on assumptions because of some mental issues that my sister had. I don't really trust him 100% either because he is ALWAYS trying to blame symptoms on stress/anxiety/depression and he misdiagnosed my father's severe back pain 6 years ago as "probably just a torn ligament" and he ended up having terminal kidney cancer and died 6 months later.

Symptoms:
-dizzy
-fatigue
-muscle weakness
-cognitive issues (brain fog?): forgetting words, slurred speech, feeling "drunk"
-light headed
-tingling or pins/needles in extremities and numb lips
-muscle pains and "sunburn" sensation on parts of my skin
-sore throat
-NO temperature, cough, rash, etc.
-all blood tests mentioned above came back negative/normal

My thoughts:
-just a weird virus?
-fibromyalgia?
- possible (but unlikely) Multiple Sclerosis?
-pinched nerve?

Can anybody help me figure this out? I'm going to get a second opinion and talk to my Naturopath because he's awesome and will actually spend time with me and listen and try things.

Thanks so much for taking the time to read this!

Reply Flag this Discussion

15 Replies:

  • You can have depression with out the usual signs. If the glandular balance is incorrect, you can actually have the opposite symptoms.BUT I am not saying your Doctor is right.The Doctor has to see a lot of people and has to deal with them as quickly as possible, and most people do fit into groups, so pigeon holeing does happen, but it is no disrespect to your Doctor, he has to balance patients VS time VS healed numbers.Also Internationally there tends to be a large number similar illness' in the same area, which correlate back to the type of people who live there.Reading your symptoms and thoughts, show your are thinking well.You may never know the real cause of your problems, because A.F., C.F.S., M.E., F.M., Lupus and many more all have similar start symptoms.You also might be on the verge of one of the above, so your system is starting to fail, but has not yet failed !Have a quick read of this web site, I am not suggesting it is your illness, but the essence of the recommendations work for many illness' and also help the body recover when it is under the weather.Keep an open mind and be logical about all posibilities !Perhaps you have 2 problems.Good luckTerry
    Anonymous 42789 Replies Flag this Response
  • Thanks Terry. I appreciate your reply, and you are right my doctor could be correct and I'm trying to keep an open mind. It just bothers me when he starts lecturing me before asking me any questions or does an exam and makes assumptions (like that I sleep all day--I do not---or that I am "self medicating" with pot--I don't do drugs). I got up the nerve yesterday to go to the local clinic for a 2nd opinion. The doctor there actually listened to me and spent time with me (and I showed up right as they were closing). He did a neurological exam, checked my eyes, etc. and took my history. I was totally honest with him, told him my doctor's opinion and told him basically everything I wrote above. He said that I will probably need a brain scan but he would order more tests in the meantime (which we both expect to be normal). This is what he ordered, if I remember correctly:-Sodium-Potassium-Vit. B12-Vit D-BUN-AST-Urine (can't remember which one, micro or macro but i think it said macro)-and maybe something else that I forgot.My symptoms have been progressing and I have had a few episodes of the lightheaded/spaced out/brain fog/speech troubles. I can't walk straight and I'm having tingling in my fingers, toes, and my lips feel numb still but I'm at least happy to have someone doing something to investigate. I'm having problems remembering stuff, getting confused as to where to put something or how to use it (i.e. putting sugar in the fridge), and having problems grasping items (like taking a can of soup off a shelf, for instance). I've also had to keep editing this post a thousand times because my fingers and my brain aren't working together right now lol.Like I said to the doc, maybe it's viral, maybe it's mental/nervous system, maybe it's a pinched nerve or something, I'm open to the possibilities--hopefully it's something simple like that. I just want to know what it is so I can deal with it. It's the not knowing what's going on part that is a little disconcerting. But I do want to note that I am by no means getting worked up or anxious over it (which is kind of weird because normally I would but I'm feeling very zen about it and I know that whatever it is, freaking out over it isn't going to help me out).Anyways, I'm rambling again. Thanks Terry for your insights and thanks to anybody else who wishes to respond and give their own insights :D
    anthro 10 Replies Flag this Response
  • Did anyone check you for diabetes?
    Monsterlove 2921 Replies Flag this Response
  • I've had fasting glucose done and I'm doing it again with the new doc. I presume that test could indicate diabetes?:confused: But I've never had the "drink the gross sugary drink" test lol.
    anthro 10 Replies Flag this Response
  • Any other thoughts?
    anthro 10 Replies Flag this Response
  • Shot blindly: Neurosyphilis I do not know ... maybe it's infection... Have you been tested for STDs?
    Anonymous 42789 Replies Flag this Response
  • Shot blindly: Neurosyphilis I do not know ... maybe it's infection... Have you been tested for STDs?Nope, def. not any STD's/STI's ;)
    anthro 10 Replies Flag this Response
  • Hi AnthroI don't know that this will help because you have some, what appear to be, more severe symptoms but initially I was struck by the dizzy, lightheaded symptoms. It reminded me of a bacterial infection. I got it from using a water bottle and not cleaning it for several days. Bacteria collects and grows around the top and gets ingested and it feels really strange - dizzy, lightheaded, head felt like it was a huge balloon but had difficulty holding it up, heavy arms.Anyway, a suggestion.
    Anonymous 42789 Replies Flag this Response
  • ... You may never know the real cause of your problems, because A.F., C.F.S., M.E., F.M., Lupus and many more all have similar start symptoms.You also might be on the verge of one of the above, so your system is starting to fail, but has not yet failed !Have a quick read of this web site, I am not suggesting it is your illness, but the essence of the recommendations work for many illness' and also help the body recover when it is under the weather.I appologise, I never gave the web site link -http://www.drlam.com/articles/adrenal_fatigue.aspRegardsTerry
    Anonymous 42789 Replies Flag this Response
  • Hi AnthroI don't know that this will help because you have some, what appear to be, more severe symptoms but initially I was struck by the dizzy, lightheaded symptoms. It reminded me of a bacterial infection. I got it from using a water bottle and not cleaning it for several days. Bacteria collects and grows around the top and gets ingested and it feels really strange - dizzy, lightheaded, head felt like it was a huge balloon but had difficulty holding it up, heavy arms.Anyway, a suggestion.Thanks for your reply! The doc's don't think it's an infection (although anything is possible), as I haven't had a temperature or any signs of fighting off anything (all blood tests normal, including tests that normally would indicate inflammation or infection).In doing more research, I'm actually seeing a lot in common between my symptoms and MS. Hopefully that's not the case, but I suppose there could be worse diagnoses to have. I'm trying to be zen about the whole thing, no point getting worked up until I have a dx right? :D I have had some issues with muscle spasms and vibrations lately and in the past along with the symptoms mentioned above.I went for further blood and urine tests today and if they all come back negative, then the next point will probably be a CT scan or MRI.
    anthro 10 Replies Flag this Response
  • Background:29 yo Maleoverweight but not obeseno allergies/medical condx (other than exercise-induced asthma but haven't used my puffer in years)Story:About 3+ weeks ago, I started to feel run down like I was fighting off a flu. Became very fatigued, weak, and started to feel dizzy and unbalanced when I walked (feel a bit better lying down). Saw family Dr (haven't been in a couple years, as I've felt fine until recently), he ordered some tests (blood profile/ferritin/mono/ C-Reactive Protein/Thyroid) and told me it was probably a "low-grade subclinical depression". Bear in mind that this dr. tells everybody that they are depressed or anxious (sister was even institutionalized for a month because she thought she was going crazy, ended up being a thyroid issue that SHOWED UP on blood tests he ordered but he ignored them). A couple days later, I started to have episodes of feeling extremely light-headed like I was drunk or high (don't do drugs and drink MAYBE avg. 1-2 glasses of wine a month) and I was slurring my words, forgetting words, confused, dizzy, etc. Also felt needles and pins in my arms and legs and numb in my lips. Finally, called our provincial nurse line and they told me to go to the ER in case it was a stroke/TIA. I took some chewable asprin and went to the ER even though I hate hospitals. BP was a little high, they took an ECG (normal) and eventually sent me home; the ER nurse said based on the ECG it probably wasn't life-threatening and to go see my family dr the next day. Nobody even examined me or did a neuro exam.I went to my family Dr again. Without asking me any questions or anything, he started to talk to me about depression/anxiety and gave me a questionnaire. The thing is I have NO signs of depression--no feelings of hopelessness, I can laugh easily (and joked around with the dr), no anxiety either, no suicidal thoughts, no loss of pleasure, no external stressors either. I feel that my doc is trying to pigeon hole me into this diagnosis and he didn't ask me ONCE if I felt depressed or listened to my symptoms. I'm worried that he's basing his diagnosis on assumptions because of some mental issues that my sister had. I don't really trust him 100% either because he is ALWAYS trying to blame symptoms on stress/anxiety/depression and he misdiagnosed my father's severe back pain 6 years ago as "probably just a torn ligament" and he ended up having terminal kidney cancer and died 6 months later.Symptoms:-dizzy-fatigue-muscle weakness-cognitive issues (brain fog?): forgetting words, slurred speech, feeling "drunk"-light headed-tingling or pins/needles in extremities and numb lips-muscle pains and "sunburn" sensation on parts of my skin-sore throat-NO temperature, cough, rash, etc.-all blood tests mentioned above came back negative/normalMy thoughts:-just a weird virus?-fibromyalgia?- possible (but unlikely) Multiple Sclerosis?-pinched nerve?Can anybody help me figure this out? I'm going to get a second opinion and talk to my Naturopath because he's awesome and will actually spend time with me and listen and try things. Thanks so much for taking the time to read this!I am wondering if your doctor has requested a lumbar spinal tap? I have the same symptoms and after two MRI's and finally a lumbar spinal tap ... was told it is a viral encephalitis. They still do not have any idea what has caused it but now they are talking about sending me to a disease specialist. I was first told I had viral labyrinthitis due to the vertigo and the vomiting. Once my head "cleared" then the other symptoms took over. Good luck and God bless you.
    Anonymous 42789 Replies Flag this Response
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  • I am wondering if your doctor has requested a lumbar spinal tap? I have the same symptoms and after two MRI's and finally a lumbar spinal tap ... was told it is a viral encephalitis. They still do not have any idea what has caused it but now they are talking about sending me to a disease specialist. I was first told I had viral labyrinthitis due to the vertigo and the vomiting. Once my head "cleared" then the other symptoms took over. Good luck and God bless you.Hi, thanks for the reply. I tried to reply last night but for some reason, it didn't work. I haven't had a lumbar done (yet) but I did go for a private MRI on Friday to rule out MS. I'm just waiting for my doc to receive the radiologist's report. I have looked at the images and everything looks more or less "normal" to my non-radiologist/non-doctor's eyes but who knows. At least I know there isn't any huge tumours or anything. I'll update this as soon as I hear back from the dr.Thanks!
    anthro 10 Replies Flag this Response
  • This may be a shot in the dark, but has any doctor tested for any vector-borne illnesses? The most common being Lyme Disease? The reason I ask is that my mother was actually diagnosed with mild M.S. and found out years later that she actually had chronic Lyme disease. I am by no means an expert but I know that Lyme disease can cause a variety of symptoms both physiological and neurological. (even including slurred speech and memory loss....etc.) Most textbooks will tell you that Lyme disease is a once and done sort of thing but there is growing evidence that some people have chronic problems for years after infection. It is in essence a bacterial infection. Maybe just something worth bringing up to your doctor.....good luck!
    Anonymous 42789 Replies Flag this Response
  • This may be a shot in the dark, but has any doctor tested for any vector-borne illnesses? The most common being Lyme Disease? The reason I ask is that my mother was actually diagnosed with mild M.S. and found out years later that she actually had chronic Lyme disease. I am by no means an expert but I know that Lyme disease can cause a variety of symptoms both physiological and neurological. (even including slurred speech and memory loss....etc.) Most textbooks will tell you that Lyme disease is a once and done sort of thing but there is growing evidence that some people have chronic problems for years after infection. It is in essence a bacterial infection. Maybe just something worth bringing up to your doctor.....good luck!Hi Jaxon1198, thanks for your reply! Although I don't know of any tick bites/bullseye rash/etc., I do know that if there are any MS-type lesions on my brain (which are very similar to Lyme lesions apparently), they will automatically test for Lyme and some autoimmune diseases as a differential. I'll definitely make sure that they test for that if anything comes back, although I have seen the MRI scans and they look totally normal to me (of course I'm not a radiologist lol). Thanks again for the tip! :)
    anthro 10 Replies Flag this Response
  • Just an update, I received my MRI report today--no findings of any lesions, masses, or abnormalities (thankfully) but I still have no idea what's wrong :confused:
    anthro 10 Replies Flag this Response
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