I have been trying to get diagnosed for 4 years now. started with no menstrual cycle, after 5 months dr. ran hormone panel and diagnosed me with PCOS...low estrogen, no libido. Excessive gas, bloating and distention. Had CT scan, coloscopy, all tested OK. This year my Endo. confirmed what I always believed which was that I did NOT have PCOS, she didn't believe it based on old blood work and new confirmed it 100%. I have very low LH levels and again estrogen low. I work out 6 days a week, heavy weight lifting, running etc....eat VERY clean healthy diet and cannot lose weight or build muscle. I have muscle pain in legs, like a tingle or achy feeling. not associated with muscle pain from working out. Endo. tested for pituitary problem, came back negative. Memory loss, lack of concentration both also bad.
I am currently dealing with GI Dr. who is going to test for bacteria overgrowth and celiac.
Fustrated 35 year old woman :)