My irritation which turned into full fledge burning in my vagina, along with pain above my pubic bone, started in 1997. Once a year, twice a year, then after years, every day.
Have had every test in the book. Negative for interstitial cystitis, PID, etc. etc.
The only test that came back positive was for herpes, which I had never had any symptoms of, or never been diagnosed for before. The doctor also said that the test showed it off the charts. I have never had even a blister. That was way back in the early years of 2000. The doctor treated me with Valtrex, no response, then megadoses of Valtrex. No reduction of burning or pain. I also have chronic fatique and feeling totally awful. Doctor said it was my bodies response to pain.
Pain management clinic dosed me with pain killers, all the way up to methodone and lyrica. That was years ago.
Husband since injured and diabled. Moved to another state because of cost of living. I have no insurance. No doctor, so I am reducing my doses to get off meds. But the burning is so bad I can't sleep. Free health clinics don't even want to give me lyrica (too costly) and gabapentin never worked. Never really diagnosed, doctor wasn't even sure if the herpes had anything to do with this. PLEASE HELP someone, I'm desparate.
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