I'm a 17 year old female and have had chronic intermittent back,flank, and stomach pain along with bands of darkened skin since I was 10. When it first happened I was in pain for about 3 months and ended up with a kidney infection, and my blood work came back with elevated AST and ALT in the 800-1000 range, but every doctor I saw brushed it off and said it was nothing. My pain continued off and on for shorter periods of time but the pain was manageable up until this past September,again with the symptoms of a UTI and crippling joint pain but my testing always came back negative for an infection and my AST hovered in the high 200-300's lasting until February (I missed the first semester of school because I couldn't get out of bed). I had been feeling better but the pain recently came back again.
I've been tested for dozens of diseases including celiac, lyme, catscratch fever, heavy metal poisoning, and auto-immune conditions as well as a full OB/GYN and urologic workup and don't have endometriosis, PCOS, or any kidney or bladder problems. I've been bounced around to at least 5 different specialists and they all say I don't fit their specialty.
The only testing that came back abnormal was a test for Porphyria that wasn't elevated enough to be called positive, and my most recent GI doctor said there's definitely nothing wrong with my liver (I'm not sure I believe him) and that I may have a radiculopathy so I need to see an orthopedist. I'm not really sure what to think or feel anymore, any suggestions or ideas are welcome.