Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • April 19, 2011
  • 09:15 PM

my son has now for a year and half been suffering . It all stared out with pain in his lower back, then the pain went into his legs feet and left arm. At this time he was diagnosed with sponydolisis in L5. He started having urine infections. The doctors found no connection to his spondyolisis. He had an oraldianmic test down that showed he has urinary anomaly nos - detrussor sphincter dysynergia. At this time his tsh was above normal with elevated anti thyroid peroxid.He had a nerve biopsy down for small fiber disease that came back positive but now there a question if the biopsy is right or not, something to do with the coloring. When he stands his legs feet and arms from the elbows down turn purple and sometimes almost black and at this point his pulse becomes jumpy from slow to fast then faster then slow and so on until he slowly shakes his legs and arms . Sometimes it takes up to an hour for his pulse to settle down. Today he has already severe pain in his body and cannot walk properly because of severe pain in hip joints. He walks with the use of a cruch. Any ideas would be helpful.

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