Discussions By Condition: I cannot get a diagnosis.

Help!

Posted In: I cannot get a diagnosis. 5 Replies
  • Posted By: Anonymous
  • December 29, 2009
  • 01:47 AM

I am young and have been suffering for about a year in chronic and progressing pain. It started off as pelvic pain and painful urination. Now I get very severe pelvic pain, it feels like my bladder is burning and exploding inside of me. I have been getting very bad incontinence, sometimes only from urgency and other times my bladder just leaks when I am walking. It is very stressful as sometimes I cant even leave the house from the pain. Sometimes I urinate 10-20 times a day and others only once. I have had many many UTI tests that have all been negative, STI tests have been negative, Paps have been fine, have had a cystoscopy and a colonoscopy both showed normal. I am booked to get a laproscopy done. I have also had 2 pelvic ultrasounds and a renal one. There is tissue like mucus that I find in my urine also. I am very desperate for answers as I havent found any help yet, have seen many many doctors and have been put on many medications that havent helped in the slightest. HELP!

Reply Flag this Discussion

5 Replies:

  • I am young and have been suffering for about a year in chronic and progressing pain. It started off as pelvic pain and painful urination. Now I get very severe pelvic pain, it feels like my bladder is burning and exploding inside of me. I have been getting very bad incontinence, sometimes only from urgency and other times my bladder just leaks when I am walking. It is very stressful as sometimes I cant even leave the house from the pain. Sometimes I urinate 10-20 times a day and others only once. I have had many many UTI tests that have all been negative, STI tests have been negative, Paps have been fine, have had a cystoscopy and a colonoscopy both showed normal. I am booked to get a laproscopy done. I have also had 2 pelvic ultrasounds and a renal one. There is tissue like mucus that I find in my urine also. I am very desperate for answers as I havent found any help yet, have seen many many doctors and have been put on many medications that havent helped in the slightest. HELP!Have you been to a urologist, they can actually look in your bladder to see what is going on inside or maybe have pelvic CT, I had a fibroid cycst on my uterous that was pushing on my bladder in such a way I could not void, an ultrasound and the dr looking in my bladder found it. Good Luck
    Anonymous 42789 Replies
    • December 29, 2009
    • 08:53 PM
    • 0
    Flag this Response
  • Did this happen after sex? If so, I would pursue more std testing to include herpes 2. You can also try a few acupuncture treatments for ultimate relief.
    Monsterlove 2921 Replies
    • December 29, 2009
    • 11:34 PM
    • 0
    Flag this Response
  • I am young and have been suffering for about a year in chronic and progressing pain. It started off as pelvic pain and painful urination. Now I get very severe pelvic pain, it feels like my bladder is burning and exploding inside of me. I have been getting very bad incontinence, sometimes only from urgency and other times my bladder just leaks when I am walking. It is very stressful as sometimes I cant even leave the house from the pain. Sometimes I urinate 10-20 times a day and others only once. I have had many many UTI tests that have all been negative, STI tests have been negative, Paps have been fine, have had a cystoscopy and a colonoscopy both showed normal. I am booked to get a laproscopy done. I have also had 2 pelvic ultrasounds and a renal one. There is tissue like mucus that I find in my urine also. I am very desperate for answers as I havent found any help yet, have seen many many doctors and have been put on many medications that havent helped in the slightest. HELP!Hi.Have you had an Urinalysis and what were the results?Have they considered Interstitial Cystitis(not regular cystitis)?Also Pylonephritis,Non-specific Urethritis,Trigonitis,Urethral Stricture,cystocele, and urethral diverticulum?Have you recently taken antibiotics or any other medications?Do you have any abnormalities in your stools like mucus,constipation,diarrhea,black stools,pale stools,poo coming out in droplets,tarry sticky stools,undigested food etc?Is there any blood in the urine or any other discolouring?
    Anonymous 42789 Replies
    • December 30, 2009
    • 07:38 PM
    • 0
    Flag this Response
  • Hi.Have you had an Urinalysis and what were the results?Have they considered Interstitial Cystitis(not regular cystitis)?Also Pylonephritis,Non-specific Urethritis,Trigonitis,Urethral Stricture,cystocele, and urethral diverticulum?Have you recently taken antibiotics or any other medications?Do you have any abnormalities in your stools like mucus,constipation,diarrhea,black stools,pale stools,poo coming out in droplets,tarry sticky stools,undigested food etc?Is there any blood in the urine or any other discolouring?No it didnt happen right after intercourse and I've been checked for all STD's. I have seen a urologist thats where I got the cystoscopy(they look in your bladder) done. Urinalysis results are all negative, ive had tonnes done. They have been putting me on and off many meds. No cysts or fibroids found in ultrasounds
    Anonymous 42789 Replies
    • December 30, 2009
    • 09:06 PM
    • 0
    Flag this Response
  • Hi.Have you had an Urinalysis and what were the results?Have they considered Interstitial Cystitis(not regular cystitis)?Also Pylonephritis,Non-specific Urethritis,Trigonitis,Urethral Stricture,cystocele, and urethral diverticulum?Have you recently taken antibiotics or any other medications?Do you have any abnormalities in your stools like mucus,constipation,diarrhea,black stools,pale stools,poo coming out in droplets,tarry sticky stools,undigested food etc?Is there any blood in the urine or any other discolouring?Also my kidneys are fine I have seen a kidney specialist.
    Anonymous 42789 Replies
    • December 30, 2009
    • 09:08 PM
    • 0
    Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.