Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • June 14, 2009
  • 09:12 PM


For years now, I've been suffering with really bad joint pain. I constantly feel the need to click my ankles and wrists, and when they do not click, it makes me incredibly uncomfortable. They are in near constant pain, as is my neck and back. The uncomfortable pain runs all the way up my spine to my neck. It is most painful in the morning, when my neck and spine will crack really loudly (which I understand to be something about air bubbles, but I'm not entirely certain?). If I walk or stand for too long, or am in one position for a long time, it becomes incredibly stiff and painful. I also get a lot of pain from the muscle next to my shoulder blade, which only feels better if applied pressure to. Something that seemed of interest to my doctor when I talked about my joint pain was the fact that my lower back gets very very hot when I am sitting, to the point in which I must switch the sides of the cushions I'm sitting on, or move positions. It is covered in sweat by the time I get up, although he didn't give me a reason for his interest.

On top of this, I have a very itchy scalp, as I have had for years. I always presumed I had psoriasis as my mother does, but I do not have the symptoms - it is not red, and rarely does it scab.

Now, for the last two or three years, I have been getting a mysterious lump on my right thigh (the opposite of the muscle in my shoulder that hurts). It appears every six months or so, and is very itchy and read. I have also marked down all the food I've eaten that day when I get it, and I never eat the same food, so I mark out an allergy. It also only seems to appear at night, usually when I'm quite warm. It's usually there for an hour, give or take, before it fades - it doesn't seem to fade any faster whether or whether not I take antihistamines.

I went last year for a blood test to check my rheumatoid factor, but it came back negative. I was then sent to physiotherapy (where the exercises were mostly unhelpful, and my appointments ended in January). My physiotherapist also pointed out the fact that I shake a lot, which I had not noticed before unless somebody pointed it out to them.

For the last year, for two years, I was also anemic, although I no longer am, since last November, though I'm not sure if that has anything to do with this. I was also underweight until last year April.

I really would like some help, since it is incredibly uncomfortable living with it, and means I cannot also participate in things I would like to. For background information, I am sixteen, living in London, England, though I'm not sure how relevant that is.

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