Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 0 Replies
  • Posted By: Anonymous
  • November 10, 2008
  • 02:03 AM

Im 16 years old and I’ve fought symptoms for 11 years and new ones keep coming. It started with neck pain when I was five, then I went deaf in kindergarten(I was lip reading) due to fluid in my ears, I also had constant ear infections...when I got tubes put in my hearing came back. Then in garde two my neck froze in an upward position and mysteriously went down. Then I had constant strep infections and had to get my tonsils removed. After that I had non-stop bladder infections. The whole time I have had symptoms that continue to get worse including constant pain, racing heart rate, numbness, mood swings, weakness, sleeping difficultly, my legs feel like jello, I get shooting pain in my face, incontinence, low blood pressure, low body temperature, headaches, freezing hands, sun sensitivity and a strange feeling like when you wake up from surgery. I have been to urologists, arthritis clinic, neurologists, physiologists many other doctors and have had basically every test in the book. My thyroid has gone back and forth between hypo and hyper but when I saw the endo he said it was likely due to meds. I asked my doctors wether it was all in my head and he still insists on running tests...HELP!

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