Discussions By Condition: I cannot get a diagnosis.

Hello To Everyone

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: jeri49
  • August 17, 2011
  • 06:18 AM

Hi,I am new here,and I am also looking for HELP,don't know where else to turn either,Just to tell the truth I can't take anymore. I am just going to my best tell my story.I foun't out Carcinoid Tumor in small intestines on iluem. Sure went threw H~~~~ to fine that out,Dr after Dr thought i was just crazy . And after 3 years of being sick,they told me at the Mayo Clinic I had cancer,but just did'nt know where and it was called Carcinoid because My Chromagram level was 958, So I had MRIs,Cat scans, Colonoscopics, Octreosan,None of the test showed nothing expect a shadow in my small intestines,They said most people show in the Octreosan,but mine did not,said something about some people did'nt have septrics ,something like that and it would not show.But I will say this to ANYONE,after all the hardtest,pucked on and on and did'nt fine nothing and alot of money,THEY will have to go in and look around Laborsocpic........ So I agreed to be opened up,it was in my small intestines on my ileum,so took a good portion of my small bowel out since it was my ileum,everything goes threw you ,you can't hold any nutrients. I am a very small woman,5ft,105,But if I take a drink of water are a bite of food,I get big enough to deleivery a Baby, This is every day,can't take anymore. Go to a wedding or out to eat,Wham,I am coming out of my clothes ,stomach is so huge,have again went to dr after dr that think i am crazy again. My cga last time was 32 and setrontion 190. So I don't know anymore. Does anyone else swell LIKE THIS.I am deserapte. I am going to try my best to attach a picture for all of you. Thanks so much for reading and God Bless. well you most not can put a picture on here,you can beleive your eyes. Thanks again.

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4 Replies:

  • Hi.. Ive no idea if you have a problem I have or not (you cant if just having water alone makes you big) ... but my weight EXPLODES (to amounts that people think are impossible) when I eat carbs. I can just once try to eat like a normal person and that explodes my weight and I get bigger overnight. It turned out I have hyperinsulinemia (which interesting isnt meant to cause people symptoms according to places like the mayo site) but in my case it does.. and when I have carbs, I hence get issues including sudden weight gain (along with other symptoms too). I was lucky to find out my issue was due to eatting carbs due to an excellent specialist who sees many patients due to unusual issues with carbs and manages to fix them where all others have failed. So consider if you could have a carbohydrate issue or not. Carbohydrate issue may also cause wind and bloating.
    taniaaust1 2,267 Replies
    • August 19, 2011
    • 09:22 AM
    • 0
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  • Thank You for your reply ! I am new here,I will ask my doctor about this,anything is possible. I don't gain weight,I just get big like a balloon,if i eat anything or drink. Then if I go without eating for aday I will go back down like my normal self (flat stomach). I am trying to learn how to attach a picture,but says to big. will try again later.Thanks for your reply.
    jeri49 2 Replies
    • August 20, 2011
    • 06:47 AM
    • 0
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  • Maybe adding probiotics to every meal would help? Good luck!
    Felsen 510 Replies
    • August 20, 2011
    • 04:45 PM
    • 0
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  • I do take Prob and Take Creon with every meal. Here is a picture after I eat anything and i have a small stomach its just so unreal. I also take B 12 shots and the B dots under my tongue,Potassium,because it bottoms out,D,E, boost drinks to get nutrient to my body. Maybe everything runs threw me so fast my stomach dont have time to rest anymore. Does anyone with Carcinoid do this after surgey ? Its be going on 5 years this Jan 4th since I had surgery and noone can answer why when i even drink water it does this,don't even have to be food. Thanks
    jeri49 2 Replies
    • August 23, 2011
    • 05:12 AM
    • 0
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