Discussions By Condition: I cannot get a diagnosis.

Hello and HELP!

Posted In: I cannot get a diagnosis. 14 Replies
  • Posted By: justant
  • November 29, 2010
  • 08:07 PM

Hello. I'm a new user here (can hardly find my way round the site yet). I would be extremely grateful if I can get some thoughts and advice on a problem I'm having.

For a looong time now (over 12 months) I've had this skin condition intermittently. Doctors I've seen seem to think it's eczema. Following this conclusion (wrong?) I've tried a LOT of antifungal creams like miconazole (daktarin and daktacort), hydrocortisone 1%, emmolients like oilatum and diprobase, etc. The thing is I've been on these creams, most notably the miconazole, for a very long time now. For the last 2 months alone I've been on miconazole religiously. The best that can be said is that the symtoms are suppressed sometimes BUT it never clears. Ever. WHY? There always seems to be at least some itching and tingling sensations. I've seen a dermatologist but as there was no visible rash at the time, she said she couldn't do a skin biopsy.

Now these itchings are around my groin area, including the groin itself and my inner thighs mostly. It sometimes spreads to other areas though, like when I concentrate the creams on particular itchy areas, it seems like another area (like my lower leg) starts to itch. It's like there's some invisible organisms inside my body that just seems to move around and never die. As this as gone on for a long time, I've also noticed some naughty traits of this 'thing'. One time when the itching was terrible, I was prescribed daktacort and started using it. It help to reduce the (manic) itching a lot. I was glad. Along the way though, my tube finished and it took me about 5 days to get a new one. The itching came back BIGTIME and when I started the new tube of daktacort again, there was no effect! It was the 'thing' had gotten immune to daktacort. The itching was terrible and would particularly burn when water touched it, like in the shower.

As some of the creams I've used contain steroids which I'm told can lead to dryness of the skin, I was told to apply aqueous cream 30 mins after the topical cream. This also sometimes brought about increased itchiness and pain.

Later other creams would supress it, and so on and so forth but there would be still some slight itching or 'tingling'. It just never seems to go. Mostly round the groin area. Right now I'm not even sure (there's no rash now) if the 'tingling' is not as a result of using these creams too long or if its the 'thing'.

The latest now is the doctor has told me not to use any cream for a week to see if a rash comes up.

Oh, and believe me there's nothing wrong with my personal hygiene.

So ideally PLEASE I'd like to know:

Does anyone have a clue what this might be?

Do fungal skin infections never get cured?

Can there be infection without a visible rash and the skin looking seemingly normal but with itching? How is the exact problem diagnosed then?

can some fungal infections (if indeed that's what it is) become resistant to creams, maybe when interrupted?

Does anyone have a clue what this might be?

Can you 'overuse' antifungal topical creams?

Why won't this thing just go?

Does anyone have a clue what this might be??

Can a biopsy be done if there's no rash?

Please any information or ideas will be welcome. I'm looking forward to hearing from anyone with some info or even questions.

THANKS

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14 Replies:

  • Any thoughts please?
    justant 4 Replies
    • November 30, 2010
    • 09:46 AM
    • 0
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  • Any thoughts please?Ask your doctor to do an ELISA test for strongyloides. He may want to do an O&P test, but it leaves strongyloides undetected in about 50% of cases.I know it sounds a bit crazy, but this parasite sometimes first manifests with skin problems, especially in the groin and lower back area.Here are a couple of articles I've found on this subject:http://emedicine.medscape.com/article/788652-overviewhttp://www.skinparasitesebook.com/Parasites.htmlYou can find a lot more by searching for "strongyloides dermatology".Most of the journal articles I've found suggest that this type of infection is only found in immuno-suppressed individuals. However, the evidence I've uncovered so far suggests that the problem is far more widespread than is currently acknowledged.
    Anonymous 42789 Replies
    • November 30, 2010
    • 05:28 PM
    • 0
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  • Ask your doctor to do an ELISA test for strongyloides. He may want to do an O&P test, but it leaves strongyloides undetected in about 50% of cases. I know it sounds a bit crazy, but this parasite sometimes first manifests with skin problems, especially in the groin and lower back area. Here are a couple of articles I've found on this subject: http://emedicine.medscape.com/article/788652-overview http://www.skinparasitesebook.com/Parasites.html You can find a lot more by searching for "strongyloides dermatology". Most of the journal articles I've found suggest that this type of infection is only found in immuno-suppressed individuals. However, the evidence I've uncovered so far suggests that the problem is far more widespread than is currently acknowledged. Thank you very much for your reply. I will talk to my doctor about this. I have also read from some of the sites you suggested about 'strongyloidses'. Let me add here that I don't seem to suffer any other physical symptoms, eg exhaustion, illness, etc. It's just seems to be the itching, which sometimes is really bad and sore and other times is quite mild but never seems to actually clear. It's also always been around (and on) my groin and inner thighs. A few times my palms and legs feel itchy too. Seems like a very stubborn skin infection that is not being remedied by the various topical creams i've tried such as miconazole.
    justant 4 Replies
    • November 30, 2010
    • 07:28 PM
    • 0
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  • Thank you very much for your reply. I will talk to my doctor about this. I have also read from some of the sites you suggested about 'strongyloidses'. Let me add here that I don't seem to suffer any other physical symptoms, eg exhaustion, illness, etc. It's just seems to be the itching, which sometimes is really bad and sore and other times is quite mild but never seems to actually clear. It's also always been around (and on) my groin and inner thighs. A few times my palms and legs feel itchy too. Seems like a very stubborn skin infection that is not being remedied by the various topical creams i've tried such as miconazole.You won't have all the symptoms until it's really bad. Mine first started with a bit of constipation, followed by diarrhea. I also have some areas on my skin with tiny raised bumps that are extremely itchy. I now have moderate to severe stomach pain all the time and most recently, my back has begun to hurt for no apparent reason. My point is that if you do have strongyloides, more symptoms will appear over time. Unfortunately, it seems that most doctors refuse to see the problem until major damage has been done. There are several case histories online where people have died and strongyloidiasis was diagnosed at autopsy.Best of luck to you.
    Anonymous 42789 Replies
    • November 30, 2010
    • 08:27 PM
    • 0
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  • ^^ Thanks. I've been doing some reading online about this. Could it be 'pruritus'? The symptoms and characteristics sound similar. Does anyone know more about 'pruritus'? And also, the best methods of treatment. Thanks a lot.
    Anonymous 42789 Replies
    • December 1, 2010
    • 10:18 AM
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  • You said the doctors seem to think it is eczema. Eczema is not a fungus or a parasite. If it is eczema, antifungal creams will not help, and are harmful.I suggest:Have a healthy diet and lifestyle. In particular, include a large proportion of fresh salads and fruit in your diet.See a herbalist. Herbs are effective for treating eczema.
    Anonymous 42789 Replies
    • December 2, 2010
    • 07:37 AM
    • 0
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  • Anybody know about pruritis and how it's treated? Might be it ^
    Anonymous 42789 Replies
    • December 2, 2010
    • 09:09 AM
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  • You said the doctors seem to think it is eczema. Eczema is not a fungus or a parasite. If it is eczema, antifungal creams will not help, and are harmful. I suggest: Have a healthy diet and lifestyle. In particular, include a large proportion of fresh salads and fruit in your diet. See a herbalist. Herbs are effective for treating eczema. Wow. This is the first time I'm hearing that antifungals won't treat eczema. I don't know why the docs have been prescribing 'antifungals' like canesten and miconazole when they think it's eczema though. Are you sure about that?
    justant 4 Replies
    • December 4, 2010
    • 04:03 PM
    • 0
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  • Anything on pruritis??
    Anonymous 42789 Replies
    • December 6, 2010
    • 07:52 PM
    • 0
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  • Wow. This is the first time I'm hearing that antifungals won't treat eczema. I don't know why the docs have been prescribing 'antifungals' like canesten and miconazole when they think it's eczema though. Are you sure about that?Eczema is not a fungal infection. I am sure about that.Eczema and psoriasis can be overcome using a healthy diet and lifestyle (including fresh salads and fruit), and using herbal medicine.I don't know what the doctors are thinking. Maybe they are not sure whether it is eczema or a fungal infection.Like you have discovered, these creams can reduce the symptoms. But when you stop using the creams, it comes back.
    Anonymous 42789 Replies
    • December 8, 2010
    • 04:09 AM
    • 0
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  • Hi,this sounds like it could really get in the way of you living your life, i hope you find relief. i know eczema can be related to allergies, have you discussed antihisamines with your doctor when the flares get bad? i have no idea if it would work. also make the doctor squeeze you in next visable flare up for a skin biopsy, thats the quickest way to a diagnosis and relief! (have they ruled out psoriasis?) my son has hyperkeratosis and has had rashes the doctor said were probably eczema. i will share with you what we have done to make him comfortable, and keep down flare ups. i have tried different OTC products and what works really well is aveeno baby cream for eczema (dark blue writing on the tube). any type of lotion sets his skin off, we can only use creams. we also only use aveeno creamy wash on him because any other baby wash sets off the rashing. they are expensive but worth it for visable results. they also make an oatmeal bath soak with mineral oil in it, i always keep some on hand and whenever anything starts to set it off i have him soak in that for 20-45 mins. this seems to control both issues really well, we have avoided using any steriod creams since the first diagnosis this way.the other big thing that matters is your laundry soap and fabric softener. use the free and clear or dreft baby detergents, get small bottles of different types, try them one at a time until you find yourself literally more comfortable in your skin.:) (remember to rewash bedding the day you switch detergents or you will skew the test)
    safyreshel 8 Replies
    • December 8, 2010
    • 09:28 AM
    • 0
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  • Wow thanks for sharing guys ^^. I eat well and exercise too (gym). This thing is quite stubborn though BUT i've been on antihistamines for a week now and it is really helping. Itching is seemingly gone. Does this mean the problem is gone, or is it just the itching the tablets are stopping? I'm currently waiting to do a skin scraping, though i don't know if they can actually do one with no visible rash. Is this possible (skin scraping) with no rash? Also ^ are there any creams/medications that can cure eczema? Cheers
    justant 4 Replies
    • December 9, 2010
    • 02:21 PM
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  • Ye Lamisil is very good for stubborn fungal infections. Better than miconazole.
    Anonymous 42789 Replies
    • December 13, 2010
    • 08:08 PM
    • 0
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  • Hey. Anyone know if lamisil helps and its possible side effects? I've just got the gel and want to know. Thanks
    Anonymous 42789 Replies
    • December 15, 2010
    • 08:26 PM
    • 0
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