Discussions By Condition: I cannot get a diagnosis.

Heating Up and Cannot Cool Down

Posted In: I cannot get a diagnosis. 17 Replies
  • Posted By: omoplata
  • December 26, 2008
  • 09:52 PM

Hello Everyone,

I wanted to get your input about a health problem I am having. It has been going on for 4.5 months now and I have been discussing it on a few forums for the last 2 months. I am providing a summary of what I have posted on other forums thus far.


ORIGINAL POST PLACED ON ANOTHER FORUM:
***n, something bad happened. However, I am not certain what's going on.

Basically, I get hot extremely easily and cannot cool down once I get hot. This isn't my only symptom but this is how it all started. This all began ~5 weeks ago (remember this originally post was written a while ago) and as the summer came to an end and weather cooled down, it got, naturally, better but did not return to normal. If I am exposed to heat in any way for more than 5-10 minutes, I sweat an excessive amount and feel extremely hot. Once this happens, I cannot cool down without the A/C, even if the ambient temperature is somewhat cool. Even with the AC it is quite hard to cool down. Especially my hands and feet get hot very easily and are sometimes hot all night long, albeit only mildly.

Secondly, I am very badly inflamed, or believe so. My feet always gave me problems and hurt a lot if I walk more than 10-15 minutes. This has gotten much worse. I also have a lot of muscle weakness and find it very hard to finish my weight sessions. After weight training, I get sore as ***l -much more than normal. This is actually scary; I had a leg workout and the following 5 days could not get out of a seating position without supporting myself with my arms. It was a hard leg workout for sure but ***n, this is way way too much (I HAVE BEEN WEIGHT TRAINING FOR OVER 15 YEARS AND NORMALLY HAVE VERY LITTLE SORENESS THE NEXT DAY)

I also get out of breath easily, much more so than normal. Even though I tend to have slightly high Blood Pressure, I get light headed quite easily right now. After leg presses, for example, I got pale in the face, which is the first time this has happening a very very long time.

I also gained some fat lately...

>



After I made the post above, I first suspected thyroid issues. I have had insomnia forever (really forever, almost as far back in my childhood as I can recall) and had slightly elevated Free T4 levels in some tests. So I went and had a thyroid panel done. The results were all normal and only "T3 Uptake" was outside of the range. Also free T4 was high but not above the upper limit of the reference range. To be absolutely and totally sure that thyroid was not the issue, I even took a low dose of anti-thyroid for 2 weeks (100 mg of Propycil) but saw no change whatsoever.

Furthermore, when I connect some other dots, I am thinking more and more that the issue has to do with vasoconstriction, which in turn is related to an imbalance between endorphins and adrenaline -this is my amateur hypothesis here, so bear with me...

Why do I think that? Well first of all, I got some Lisinopril -an ace inhibitor- during my last visit to the doctor and that helped my feet tremendously. The extreme swelling and pain in my feet went down by 75% I'd say. I was not at all expecting that but the effect has been very reliable and consistent. (FYI, the doctor was an idiot and found nothing. All we checked was my thyroid, because I refused to get more tests done; I have no insurance and that was all i could afford. I know it sucks, but this is the reality of the situation, nothing more I can do on that front now. I am not sure what he would have looked at if I had all the money. He just suggested "doing a full blood test" but did not have any theories what could be causing the issue). In addition, the Lisinopril also reduced my Blood Pressure from around 89/169 to around 80/120 (80/120 is where it has always been).

Now, based on the many conversations I had with friends and intelligent acquaintances over the last 2 years, I have reason to think that my feet swelling have been due to vasoconstriction (again, just so it does not get too confusing: feet have been hurting for a while, the heating started only 3.5 months ago and together with that the feet swelling got worse) and the fact that the swelling of my feet got worse lately, makes me think that vasoconstriction is playing a role in this most recent episode. Also, and more importantly, I am often waking up with "pins" in my arms. Whenever I sleep on an arm, it gets completely numb, which happened almost never in the past. Also, I am getting redness in my skin during weight training sessions, which too makes me think vasoconstriction. In barbell curls for example, I have to stop after 7-8 reps because my muscles will get shut down and my skin gets all red, as if the skin is about to explode. It is not exactly "a pump", but more of a lack of circulation.

The fact that it is now taking me much longer to recover from workouts is also a sign in my mind that the blood vessels are constricted. Some athletes, for example, are reporting better recovery from weight session by using viagra. Viagra of course will cause vessels to relax, which is the opposite of what I think i am having, and the pieces seem to fit in perfectly.

Now, if we for a moment assume that vasoconstriction is the issue, I can come up with two ideas as to why this might be happening. The best candidate is excess adrenaline, which I think was caused by the very stressful event in my life (a very close friend passed away), a month or so before my symptoms began. My sleep is very bad, and breathing is very fast. My heart rate goes up pretty quickly and then takes a long time to come down. If there is a sudden noise, for example, my heart will start beating and it can take many many minutes to return to normal. Another very important reason I think that adrenaline is high is that my appetite is completely gone. I used to crave lots of carbs and loved food in general, but now I can barely eat. If I do not force myself to eat, I actually forget to eat.

Now, the increase in adrenaline may not be the only cause and I say that because I also suspect that something with my endorphin system may also have been screwed up. This is not so much something new and has been going on, well pretty much since birth. I have always been extremely sensitive to light and noise, which is one of the symptoms of opiate withdrawal. Also, I have quite an exxagerated pain perception. I have been invovled with martial arts for a long time and do not consider myself a girly man as Arnold would say, but I also believe that I feel a more intense sense of pain when hit than my training partners do. The ever-lasting insomnia is another reason that makes me think I am having an endorphin problem.

That being said, both of the above theories have a weakness.
1- I had been prescribed PROPRANOLOL years ago to treat my insomnia and have tried to use it again recently. The result was the same as before: No relaxation or reduction of heart rate if I take only 1 tablet (10 mg) but when I take 2 tablets, on around day 3, I get extraordoinarily tired. Yet still at that extremely tired state, I am feeling equally hot... (earlier, when my issue was sleep, again, I saw no beenfit from 1 tab but was extremely fatgued at 2 tabs). So is the adrenaline theory out? I hope not... Maybe another beta blocker will work, no?

2- I also tried Xanax for this condition, which also had been prescirbed to me years ago for insomnia, but saw no benefit whatsoever. In fact, neither valium nor Xanax helped for sleep (in the past) and the reason I still have some of both left in my cabinet is that they did very little when I tried them for my insomnia (similarly Klonopin also had little effect. all 3 drugs do make me sleepy to varying extents, depending on how high a dose I use; but none really make me more relaxed). The doctor was amazed and after all these experiments, I am thinking that I maybe have too few opiate receptors all over my body... A very indirect piece of evidence is that my Testosterone levels are off the charts. So high that in some tests it was slightly above the top number in the reference range. This is without touching any aromatase inhibitors, steroids or anything of the sort... We know that opioids play a role in LH secretion and drugs such as Naloxone can increase Testosterone. So naturally low opioid levels or lack of of opioid receptors may similarly have lead to high Testosterone.

So, what can I try next?

Before you make a suggestion let me clarify a few points:

I have never used an illegal substance and I am not saying this because I am scared that the police will read this post. I really wish to clarify that so that people who read this post do not try looking for answers in the wrong places. I understand that many opioids or items such as cocaine can make the body do bizzare things but those cannot possibly be the culprit here. I have used the benzos and other items described above but they were all prescribed by a doctor back when I had insurance and none helped me enough to justify their use for a long period. The only thing I used over the years with some consistency is Amitryptiline at a mere 10 milligrams - I would say 2-3 times a week for some part of the year. When I am able to get some sleep without it, I do not even use the A.triptiline.

I am generally in good health with the exception of the issues above. I weigh around 200 lbs but having trained with weights for over 15 years, I can confidently say that a great deal of this is muscle and my bodyfat percentage is not above 14% by any means. Not a bodybuilder in contest shape, but not a *****s either...

Please do not suggest that I should "just see a doctor" I fully realize that I should but I cannot right now. I am doing the best I can to straighten my financial situation and will see a doc as soon as I can. At this very moment, the money is just not there (no insurance either)

Thank you very much

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17 Replies:

  • bump... any input is welcome
    omoplata 7 Replies
    • December 29, 2008
    • 05:59 PM
    • 0
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  • Sounds like hyperthyroidism to me. I'd get tested through online testing. Choose the Thyroid Panel II which includes FreeT3, FreeT4, and TSH.http://www.healthcheckusa.com/lab_tests/An informative website on thyroid disease is:http://www.freewebs.com/thyroidThere's also a link to a very supportive forum.Here are the symptoms of hyperthyroidism:Axilla (under arms) moist/wet on examRigors/Shaking chillsHyperdynamic circulatory status/signsPalpitations/Skipped BeatsTachycardia/Fast heart rateHyperhidrosis/Chronic sweating excessMoist, warm, smooth skinSmall/absent thyroid gland/signAppetite increasedDiarrheaDiarrhea and Weight LossDiarrhea, chronicDiarrhea, recurrentDiarrhea, painlessFrequent bowel movements/not loosePolyphagiaWeight lossHypertoniaQuadriceps/thigh weakness signsWarm/Extremeties dry/warm to touchActive reflexesHyperreflexia/DTRs increasedInsomniaTremorTremor, fineTremulousnessRapid breathingTachypnea/Increased respiratory rateAgitationBody temperature/high settingFeverFever and Normal Sed RateFever/Febrile PossibleFlu-like SyndromeHeat Intolerance/Warm all the timeHigh body TemperatureNervousness/excitability/hyperactive adultTalkativeness/Pressured speechWeight lossWeight gainMydriasis/wide pupilsHere's another symptom list:Elevated pulse and blood pressureAnxiety, nervous energy, tremors, feeling jitteryShaking hands, tremorsFeeling irritable, overemotional, aggressive, easily startled, or erraticDifficult concentrating, mind is always racing, can't shut off thoughtsDifficulty sleeping, insomniaFatigue, exhaustionPerspiring, feeling overheated, especially when others are coldDiarrhea or loose bowelsHeart palpitations, feeling like heart is skipping a beat, or racingDepressionWeight loss with no change to diet/exercise, or sometimes weight gainIncrease in food intake, with no weight gainCraving and/or eating more carbohydratesUnusual hunger pangsExcessive thirstLoss of appetiteFrequent bowel movementsHair lossChanges in other hormonesEnlarged, sensitive or tender neckDizziness, breathlessnessAchy or weak muscles and joints, especially achy or weak in thighs and bicepsEyes are enlarging or looking "bug-eyed"Dry, gritty, irritated, red eyesHeadache in eye area, pain behind the eyesI've done a lot of research on Thyrotoxicosis or Hyperthyroidism as I had it when my doctors overmedicated me. One thing I learned through my research is that it's quite difficult to diagnosis because the manifestations of this disorder can vary greatly from person to person.I had 90% of the symptoms and both an endocrinologist and a primary care doctor told me they wouldn't change my dose. I had to change doctors or risk dying from a heart condition. The reason they didn't believe I had Thyrotoxicosis is the endo said I didn't have tremor. He based his entire diagnosis on one symptom and I didn't have it.Online I found a text book for endocrinologists called Endocrinology and Metabolism. The book states:Their frequency and severity vary substantially among patients, and clinical severity is poorly correlated with serum T4 and T3 concentrations. None is specific for Thyrotoxicosis, although the combination of increased appetite and weight loss is nearly so.Factors that influence the clinical severity of T include the rate of onset, the age of the patient, and the vulnerability of different organ systems to excess thyroid hormone action.The symptoms listed were:Nervousness Increased sweatingHeat intolerancePalpitationsFatigueWeaknessWeight lossDyspneaIncreased appetiteHyperdefecationSigns:Tachycardia >90Thyroid enlargementTremorLid RetractionHyperactivityAtrial FibrillationAnd then the Frequency in Patients by percentage followed each symptom. I was surprised to see that tremor had a range of 32 - 97% frequency. Which meant the endo had been erroneous in using that symptom as the only one which determined whether I was overmedicated. I had all but five symptoms and signs.These symptoms are for exogenous thyrotoxicosis which is overmedication with thyroid medication. The symptoms are basically the same for hyperthyroidism.You might also want to get your testosterone tested. Many times that is off when your thyroid is off.
    Anonymous 42789 Replies
    • December 30, 2008
    • 09:05 PM
    • 0
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  • Dxd,Just like you, I thought that it was a thyroid issue and got a thyroid panel. As I indicated in my original post, the results clearly show that this is not the problem. I have also been on anti-thyroid meds for a little while and saw no difference. At this point, it is quite safe to say that thyroid is not the issue. Blaze, This is amazing new angle. I have not changed anything in my home, nor did I start using the cell phone or other microwave devices over and above I was already using (and my normal usage is not high at all). However, I do not know if a new tower was installed nearby. Are you aware of any site where I can check for this using my zip code? I am in New York City and the towers are not easily visible. I will be looking around the net to see if I can dig up some information on it, That being said, I do not know if that alone can explain all the symptoms. How about shortness of breath? Could it be that heat shock proteins trigger an overall inflamatory response, which weakens the body and causes a lot of fatigue? Let's see..Any other insights, please share. Did you have any of the other symptoms I described?
    omoplata 7 Replies
    • December 31, 2008
    • 02:10 AM
    • 0
    Flag this Response
  • OK, Blaze must be thinking I am crazy. I asked her to help me with any websites that tell you how many towers there are in your neighborhood and I just realized that the very first link she gave was precisely that. Sorry, I was just so excited that I opened all the links in new windows to read them in detail after writing a response to you. Anyways, I checked and found that there are loads and loads of towers near my home -as expected, since I am in New York City. I also tried to see when each was built and there does not seem to be one that was built just around the time my symptoms started. I cannot tell for sure however. For some towers, the site says "unregistered" and provides only the date of registration as opposed to activation of the tower. On the other hand, there are so many towers nearby and at least three appear to be equidistant to my house. So -unless all 3 were built at the same time, there probably was not a big jump in the signal intensity I am being exposed to.By the way, you're not impacted by antennas right, only towers? Do antennas only receive signals and not emit any; is that accurate?Thanks so much Blaze...Omoplata
    omoplata 7 Replies
    • December 31, 2008
    • 02:37 AM
    • 0
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  • Are you still feeling hot?If so,whatis your temperature?Are you truly hyperthermic or do you just feel so?It's very important to tell the difference.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 02:28 PM
    • 0
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  • Oh,no!Not an acolyte of Blaze!Heat-shock proteins have been around since they were discovered,I believe in 1962.They have nothing to do with your problems.
    richard wayne2b 1232 Replies
    • December 31, 2008
    • 02:35 PM
    • 0
    Flag this Response
  • Hello Everyone, Secondly, I am very badly inflamed, or believe so. My feet always gave me problems and hurt a lot if I walk more than 10-15 minutes. This has gotten much worse. I also have a lot of muscle weakness and find it very hard to finish my weight sessions. After weight training, I get sore as ***l -much more than normal. This is actually scary; I had a leg workout and the following 5 days could not get out of a seating position without supporting myself with my arms. It was a hard leg workout for sure but ***n, this is way way too much (I HAVE BEEN WEIGHT TRAINING FOR OVER 15 YEARS AND NORMALLY HAVE VERY LITTLE SORENESS THE NEXT DAY) I also get out of breath easily, much more so than normal. Even though I tend to have slightly high Blood Pressure, I get light headed quite easily right now. After leg presses, for example, I got pale in the face, which is the first time this has happening a very very long time. I also gained some fat lately... > After I made the post above, I first suspected thyroid issues. I have had insomnia forever (really forever, almost as far back in my childhood as I can recall) and had slightly elevated Free T4 levels in some tests. So I went and had a thyroid panel done. The results were all normal and only "T3 Uptake" was outside of the range. Also free T4 was high but not above the upper limit of the reference range. To be absolutely and totally sure that thyroid was not the issue, I even took a low dose of anti-thyroid for 2 weeks (100 mg of Propycil) but saw no change whatsoever. Furthermore, when I connect some other dots, I am thinking more and more that the issue has to do with vasoconstriction, which in turn is related to an imbalance between endorphins and adrenaline -this is my amateur hypothesis here, so bear with me... Why do I think that? Well first of all, I got some Lisinopril -an ace inhibitor- during my last visit to the doctor and that helped my feet tremendously. The extreme swelling and pain in my feet went down by 75% I'd say. I was not at all expecting that but the effect has been very reliable and consistent. (FYI, the doctor was an idiot and found nothing. All we checked was my thyroid, because I refused to get more tests done; I have no insurance and that was all i could afford. I know it sucks, but this is the reality of the situation, nothing more I can do on that front now. I am not sure what he would have looked at if I had all the money. He just suggested "doing a full blood test" but did not have any theories what could be causing the issue). In addition, the Lisinopril also reduced my Blood Pressure from around 89/169 to around 80/120 (80/120 is where it has always been). Now, based on the many conversations I had with friends and intelligent acquaintances over the last 2 years, I have reason to think that my feet swelling have been due to vasoconstriction (again, just so it does not get too confusing: feet have been hurting for a while, the heating started only 3.5 months ago and together with that the feet swelling got worse) and the fact that the swelling of my feet got worse lately, makes me think that vasoconstriction is playing a role in this most recent episode. Also, and more importantly, I am often waking up with "pins" in my arms. Whenever I sleep on an arm, it gets completely numb, which happened almost never in the past. Also, I am getting redness in my skin during weight training sessions, which too makes me think vasoconstriction. In barbell curls for example, I have to stop after 7-8 reps because my muscles will get shut down and my skin gets all red, as if the skin is about to explode. It is not exactly "a pump", but more of a lack of circulation. The fact that it is now taking me much longer to recover from workouts is also a sign in my mind that the blood vessels are constricted. Some athletes, for example, are reporting better recovery from weight session by using viagra. Viagra of course will cause vessels to relax, which is the opposite of what I think i am having, and the pieces seem to fit in perfectly. Now, if we for a moment assume that vasoconstriction is the issue, I can come up with two ideas as to why this might be happening. The best candidate is excess adrenaline, which I think was caused by the very stressful event in my life (a very close friend passed away), a month or so before my symptoms began. My sleep is very bad, and breathing is very fast. My heart rate goes up pretty quickly and then takes a long time to come down. If there is a sudden noise, for example, my heart will start beating and it can take many many minutes to return to normal. Another very important reason I think that adrenaline is high is that my appetite is completely gone. I used to crave lots of carbs and loved food in general, but now I can barely eat. If I do not force myself to eat, I actually forget to eat. Now, the increase in adrenaline may not be the only cause and I say that because I also suspect that something with my endorphin system may also have been screwed up. This is not so much something new and has been going on, well pretty much since birth. I have always been extremely sensitive to light and noise, which is one of the symptoms of opiate withdrawal. Also, I have quite an exxagerated pain perception. I have been invovled with martial arts for a long time and do not consider myself a girly man as Arnold would say, but I also believe that I feel a more intense sense of pain when hit than my training partners do. The ever-lasting insomnia is another reason that makes me think I am having an endorphin problem. That being said, both of the above theories have a weakness.1- I had been prescribed PROPRANOLOL years ago to treat my insomnia and have tried to use it again recently. The result was the same as before: No relaxation or reduction of heart rate if I take only 1 tablet (10 mg) but when I take 2 tablets, on around day 3, I get extraordoinarily tired. Yet still at that extremely tired state, I am feeling equally hot... (earlier, when my issue was sleep, again, I saw no beenfit from 1 tab but was extremely fatgued at 2 tabs). So is the adrenaline theory out? I hope not... Maybe another beta blocker will work, no? 2- I also tried Xanax for this condition, which also had been prescirbed to me years ago for insomnia, but saw no benefit whatsoever. In fact, neither valium nor Xanax helped for sleep (in the past) and the reason I still have some of both left in my cabinet is that they did very little when I tried them for my insomnia (similarly Klonopin also had little effect. all 3 drugs do make me sleepy to varying extents, depending on how high a dose I use; but none really make me more relaxed). The doctor was amazed and after all these experiments, I am thinking that I maybe have too few opiate receptors all over my body... A very indirect piece of evidence is that my Testosterone levels are off the charts. So high that in some tests it was slightly above the top number in the reference range. This is without touching any aromatase inhibitors, steroids or anything of the sort... We know that opioids play a role in LH secretion and drugs such as Naloxone can increase Testosterone. So naturally low opioid levels or lack of of opioid receptors may similarly have lead to high Testosterone. So, what can I try next? Before you make a suggestion let me clarify a few points: I have never used an illegal substance and I am not saying this because I am scared that the police will read this post. I really wish to clarify that so that people who read this post do not try looking for answers in the wrong places. I understand that many opioids or items such as cocaine can make the body do bizzare things but those cannot possibly be the culprit here. I have used the benzos and other items described above but they were all prescribed by a doctor back when I had insurance and none helped me enough to justify their use for a long period. The only thing I used over the years with some consistency is Amitryptiline at a mere 10 milligrams - I would say 2-3 times a week for some part of the year. When I am able to get some sleep without it, I do not even use the A.triptiline. I am generally in good health with the exception of the issues above. I weigh around 200 lbs but having trained with weights for over 15 years, I can confidently say that a great deal of this is muscle and my bodyfat percentage is not above 14% by any means. Not a bodybuilder in contest shape, but not a *****s either... Please do not suggest that I should "just see a doctor" I fully realize that I should but I cannot right now. I am doing the best I can to straighten my financial situation and will see a doc as soon as I can. At this very moment, the money is just not there (no insurance either) Thank you very much Hi Omoplata, You may have more than one thing going on. Some of your symptoms could be b12 deficiency related. http://forums.wrongdiagnosis.com/showthread.php?p=135792#post135792 Come on over ands look at the complete list of symptoms and talk with folks. Good luck.
    Freddd 3576 Replies
    • January 1, 2009
    • 00:15 AM
    • 0
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  • You still haven't told me your temperature.
    richard wayne2b 1232 Replies
    • January 1, 2009
    • 00:59 AM
    • 0
    Flag this Response
  • Where did you get the''bright'' idea of taking propylthiouracil for two weeks?First,are you trained to practice medicine?Next,it takes several weeks to months for it to work;therefore,your experiment proved nothing except how brazen you are.
    richard wayne2b 1232 Replies
    • January 1, 2009
    • 01:22 AM
    • 0
    Flag this Response
  • Hi Omoplata, You may have more than one thing going on. Some of your symptoms could be b12 deficiency related. http://forums.wrongdiagnosis.com/showthread.php?p=135792#post135792 Come on over ands look at the complete list of symptoms and talk with folks. Good luck.Thank You Fred, I will check the B12 thread right now. I did take B12 a while ago, but back then I did not have any of these symptoms. Let's see in the other thread...As far as my actual temperature while I am feeling hot: Well that is a little tricky. First, I will admit that I have not been able to take my temp. as diligently as I should have during this whole episode. Sometimes I was outside for many hours without any way of taking my temp and some other times I just forgot. Also, another complicating factor is that my base temp seems to have climbed a little over the years. It used to be 36 centigrade or so, but is more like 36.4 or so lately. When I get hot, it seems to hover near 37 C. But I will be honest, I should have taken better measurements and the figures above are not very reliable. At least, let me start as of today and see if there is any actual elevation of temp. and my feeling hot.Finally, I am trying to read about polycythemia as another potential explanation for the symptoms. More details are herehttp://www.mindandmuscle.net/forum/index.php?showtopic=36641&st=0&gopid=526363&#entry526363Thanks Ladies and Gents.Omoplata
    omoplata 7 Replies
    • January 1, 2009
    • 10:46 PM
    • 0
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  • Muscle breakdown is called rhabdomyolysis.It can be very serious and can be caused by hyperthermia,so,again,I'm asking you to take your temperature.If you've already had it to some degree, your urine would be coke or tea-colored.in that case it's a real emergency.
    richard wayne2b 1232 Replies
    • January 2, 2009
    • 00:34 PM
    • 0
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  • OK, I had written a response which, upon hitting "reply" took me into the "your post will be evaluated by a moderator" screen. However, the response hasn't shown up here despite the many hours (nearly 24) that passed since. So I am assuming that it got lost.I had basically said that it is hard to tell whether my temperature really increases, specifically during the times when I feel more hot than normal. I will readily admit that this is primarily due to the fact that I wasn't as diligent in taking my temp as I should have been. I guess I am simply going to carry my thermometer with me from now on. All I can say is that my temp has maybe gone up slightly (by a third of 1 centigrade to half a centigrade over the last few years) but hard to say really... With regards to B12 deficiency; I really appreciate the link but that thread has thousands upon thousands of comments/posts. If you don't mind Fred, can you tell me which of my symptoms you think fit with those of B12 deficiency? I understand that the lack of energy could possibly be explained by a lack of B12, but anything else that I described which you think could be a B12 related symptom?Thanks
    omoplata 7 Replies
    • January 3, 2009
    • 02:23 AM
    • 0
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  • Hello Everyone, Basically, I get hot extremely easily and cannot cool down once I get hot. This isn't my only symptom but this is how it all started. This all began ~5 weeks ago (remember this originally post was written a while ago) and as the summer came to an end and weather cooled down, it got, naturally, better but did not return to normal. If I am exposed to heat in any way for more than 5-10 minutes, I sweat an excessive amount and feel extremely hot. Once this happens, I cannot cool down without the A/C, even if the ambient temperature is somewhat cool. Even with the AC it is quite hard to cool down. Especially my hands and feet get hot very easily and are sometimes hot all night long, albeit only mildly. Secondly, I am very badly inflamed, or believe so. My feet always gave me problems and hurt a lot if I walk more than 10-15 minutes. This has gotten much worse. I also have a lot of muscle weakness and find it very hard to finish my weight sessions. After weight training, I get sore as ***l -much more than normal. This is actually scary; I had a leg workout and the following 5 days could not get out of a seating position without supporting myself with my arms. It was a hard leg workout for sure but ***n, this is way way too much (I HAVE BEEN WEIGHT TRAINING FOR OVER 15 YEARS AND NORMALLY HAVE VERY LITTLE SORENESS THE NEXT DAY) I also get out of breath easily, much more so than normal. Even though I tend to have slightly high Blood Pressure, I get light headed quite easily right now. After leg presses, for example, I got pale in the face, which is the first time this has happening a very very long time. I also gained some fat lately... > After I made the post above, I first suspected thyroid issues. I have had insomnia forever (really forever, almost as far back in my childhood as I can recall) and had slightly elevated Free T4 levels in some tests. So I went and had a thyroid panel done. The results were all normal and only "T3 Uptake" was outside of the range. Also free T4 was high but not above the upper limit of the reference range. To be absolutely and totally sure that thyroid was not the issue, I even took a low dose of anti-thyroid for 2 weeks (100 mg of Propycil) but saw no change whatsoever. Now, based on the many conversations I had with friends and intelligent acquaintances over the last 2 years, I have reason to think that my feet swelling have been due to vasoconstriction (again, just so it does not get too confusing: feet have been hurting for a while, the heating started only 3.5 months ago and together with that the feet swelling got worse) and the fact that the swelling of my feet got worse lately, makes me think that vasoconstriction is playing a role in this most recent episode. Also, and more importantly, I am often waking up with "pins" in my arms. Whenever I sleep on an arm, it gets completely numb, which happened almost never in the past. Also, I am getting redness in my skin during weight training sessions, which too makes me think vasoconstriction. In barbell curls for example, I have to stop after 7-8 reps because my muscles will get shut down and my skin gets all red, as if the skin is about to explode. It is not exactly "a pump", but more of a lack of circulation. The fact that it is now taking me much longer to recover from workouts is also a sign in my mind that the blood vessels are constricted. Some athletes, for example, are reporting better recovery from weight session by using viagra. Viagra of course will cause vessels to relax, which is the opposite of what I think i am having, and the pieces seem to fit in perfectly. Now, if we for a moment assume that vasoconstriction is the issue, I can come up with two ideas as to why this might be happening. The best candidate is excess adrenaline, which I think was caused by the very stressful event in my life (a very close friend passed away), a month or so before my symptoms began. My sleep is very bad, and breathing is very fast. My heart rate goes up pretty quickly and then takes a long time to come down. If there is a sudden noise, for example, my heart will start beating and it can take many many minutes to return to normal. Another very important reason I think that adrenaline is high is that my appetite is completely gone. I used to crave lots of carbs and loved food in general, but now I can barely eat. If I do not force myself to eat, I actually forget to eat. Now, the increase in adrenaline may not be the only cause and I say that because I also suspect that something with my endorphin system may also have been screwed up. This is not so much something new and has been going on, well pretty much since birth. I have always been extremely sensitive to light and noise, which is one of the symptoms of opiate withdrawal. Also, I have quite an exxagerated pain perception. I have been invovled with martial arts for a long time and do not consider myself a girly man as Arnold would say, but I also believe that I feel a more intense sense of pain when hit than my training partners do. The ever-lasting insomnia is another reason that makes me think I am having an endorphin problem. That being said, both of the above theories have a weakness.1- I had been prescribed PROPRANOLOL years ago to treat my insomnia and have tried to use it again recently. The result was the same as before: No relaxation or reduction of heart rate if I take only 1 tablet (10 mg) but when I take 2 tablets, on around day 3, I get extraordoinarily tired. Yet still at that extremely tired state, I am feeling equally hot... (earlier, when my issue was sleep, again, I saw no beenfit from 1 tab but was extremely fatgued at 2 tabs). So is the adrenaline theory out? I hope not... Maybe another beta blocker will work, no? 2- I also tried Xanax for this condition, which also had been prescirbed to me years ago for insomnia, but saw no benefit whatsoever. In fact, neither valium nor Xanax helped for sleep (in the past) and the reason I still have some of both left in my cabinet is that they did very little when I tried them for my insomnia (similarly Klonopin also had little effect. all 3 drugs do make me sleepy to varying extents, depending on how high a dose I use; but none really make me more relaxed). The doctor was amazed and after all these experiments, I am thinking that I maybe have too few opiate receptors all over my body... A very indirect piece of evidence is that my Testosterone levels are off the charts. So high that in some tests it was slightly above the top number in the reference range. This is without touching any aromatase inhibitors, steroids or anything of the sort... We know that opioids play a role in LH secretion and drugs such as Naloxone can increase Testosterone. So naturally low opioid levels or lack of of opioid receptors may similarly have lead to high Testosterone. So, what can I try next? Before you make a suggestion let me clarify a few points: I have never used an illegal substance and I am not saying this because I am scared that the police will read this post. I really wish to clarify that so that people who read this post do not try looking for answers in the wrong places. I understand that many opioids or items such as cocaine can make the body do bizzare things but those cannot possibly be the culprit here. I have used the benzos and other items described above but they were all prescribed by a doctor back when I had insurance and none helped me enough to justify their use for a long period. The only thing I used over the years with some consistency is Amitryptiline at a mere 10 milligrams - I would say 2-3 times a week for some part of the year. When I am able to get some sleep without it, I do not even use the A.triptiline. I am generally in good health with the exception of the issues above. I weigh around 200 lbs but having trained with weights for over 15 years, I can confidently say that a great deal of this is muscle and my bodyfat percentage is not above 14% by any means. Not a bodybuilder in contest shape, but not a *****s either... Please do not suggest that I should "just see a doctor" I fully realize that I should but I cannot right now. I am doing the best I can to straighten my financial situation and will see a doc as soon as I can. At this very moment, the money is just not there (no insurance either) With regards to B12 deficiency; I really appreciate the link but that thread has thousands upon thousands of comments/posts. If you don't mind Fred, can you tell me which of my symptoms you think fit with those of B12 deficiency? I understand that the lack of energy could possibly be explained by a lack of B12, but anything else that I described which you think could be a B12 related symptom? Thank you very much All of the bold face items could be b12 related. Hypothyroid is a major secondary issue of many people on the thread, very common and on the list. A lot of people report similar things and many are on the list or very similar. Start at the back end and read backwards for a couple of hours. At the end right now is a 4 part post by kevin explaining all the basics.
    Freddd 3576 Replies
    • January 4, 2009
    • 00:21 AM
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  • All of the bold face items could be b12 related. Hypothyroid is a major secondary issue of many people on the thread, very common and on the list. A lot of people report similar things and many are on the list or very similar. Start at the back end and read backwards for a couple of hours. At the end right now is a 4 part post by kevin explaining all the basics.Don't even know how to thank you. You went through my huge post and pointed out, symptom by symptom, what may be specifically related to B12 deficiency. You ROCK!!!I have looked at the B12 I still have at home (the one I had previously used) and realized that it is cyanocobalamin -the kind your other thread specifically mentions as a far worse alternative than the preferred types of B12. I will get some m-B12 or ad-B12 and start using some right now. What is there to lose? I knew before that toxicity wasn't really an issue with B12, and will do some added research -including from the thread you linked- but B12 is definitely worth trying.Thanks a lot...Omoplata
    omoplata 7 Replies
    • January 4, 2009
    • 05:59 AM
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  • Don't even know how to thank you. You went through my huge post and pointed out, symptom by symptom, what may be specifically related to B12 deficiency. You ROCK!!!I have looked at the B12 I still have at home (the one I had previously used) and realized that it is cyanocobalamin -the kind your other thread specifically mentions as a far worse alternative than the preferred types of B12. I will get some m-B12 or ad-B12 and start using some right now. What is there to lose? I knew before that toxicity wasn't really an issue with B12, and will do some added research -including from the thread you linked- but B12 is definitely worth trying.Thanks a lot...OmoplataDear Omoplata,I don't know if you are still looking for help as it is a few months since the last post I think.Your symptoms are identical to mine. It took me 5 years of absolute burning, worsening fatigue, rejection by doctors (hypochondriac ! ), muscle weakness, fat gain and finally headaches and sight impairment.An opthalmologist told me I had a pituitary tumour, and get to my doctor quickly, as it was large ( by now ) and affecting my sight.Within a month, all my endocrine system was evaluated, Tumour confirmed, and I was operated on in February.I am still recuperating, but feeling tons better. Strangely though, still hot flashing, but the docs say still all to do with endocrine system which will take months to settle, and need some hormone supplementation.Good luck, and if you haven't already, GET AN MRI SCAN !Mic
    micfox 2 Replies Flag this Response
  • Dear Omoplata,I don't know if you are still looking for help as it is a few months since the last post I think.Your symptoms are identical to mine. It took me 5 years of absolute burning, worsening fatigue, rejection by doctors (hypochondriac ! ), muscle weakness, fat gain and finally headaches and sight impairment.An opthalmologist told me I had a pituitary tumour, and get to my doctor quickly, as it was large ( by now ) and affecting my sight.Within a month, all my endocrine system was evaluated, Tumour confirmed, and I was operated on in February.I am still recuperating, but feeling tons better. Strangely though, still hot flashing, but the docs say still all to do with endocrine system which will take months to settle, and need some hormone supplementation.Check out the Pituitary Network sites and you will see the same symptoms over and over again.One in 5 people have a pituitary tumour, but only one in 10,000 present with problems! Good luck, and if you haven't already, GET AN MRI SCAN with an endocrine system check.Mic
    micfox 2 Replies Flag this Response
  • Have you researched about Ehlers-danlos Syndrome, MCADD and POTS?
    Anonymous 1 Replies Flag this Response
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