Discussions By Condition: I cannot get a diagnosis.

Heart palpitations, low fever, swollen spleen and lymph nodes, strange muscle feeling

Posted In: I cannot get a diagnosis. 6 Replies
  • Posted By: amanda88
  • June 10, 2013
  • 04:00 AM

I'm a 26 year old female and I have been feeling sick for over a year now. It began with fatigue and my heart beating in a very strange way. I had an episode where I felt my heart beating very hard and out of rythem, it was like it was seized up in a vice or something for a few seconds and my vision went black and I felt I would pass out then with a great big deep breath I recovered. I had these episodes several times and they got milder but I saw a cardiologist anyway and had several tests done (echo, stress test, several ekgs) and my heart checked out fine. By this time I was having more symptoms but my cardiologist was not interested in those. I began to have a strange feeling of being very heavy all over, felt like I was being pushed on by someone constantly, I developed swollen lymph nodes, I was so desperately thirsty all the time, Low fever, decreased appetite, weight loss (10lbs), sweating, and mood swings. One night after a larger meal than I was used to eating at the time my throat began to feel very tight and this feeling continues all the way down the front of my body and I began uncontrollably shaking and felt very cold, but registered no fever, fed up with ER visits by this time I took Ibprophin and waited to see and in a few minutes I stopped shaking. The next visit to the doctor diagnosed me with mononucleosis and the doctor told me time was the only treatment. I began to improve, gain weight, and feel almost normal with exception of some fatigue, spleen swelling, and the occasional mild heart palpitation episode. Recently the feeling of heaviness in my muscles has returned now accompanied by some dizziness. Sometimes the heaviness is severe and others my muscles, particularly my legs, feel week or like I have recently had bad muscle cramps the night before. Sometimes my head also feels like it is pressurized but not painful like a headache. My lymph nodes and spleen also feel swollen again. I have been seeing an infectious disease specialist and had tests for my immune system and regular blood workups that look good. I have been feeling sick off and on for over a year now, could this really all be from mono?

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6 Replies:

  • Have you had your cortisol levels check? Mine was due to the back injections I got but I looked at your post and saw your symptoms. Sometimes you can have a small tumor that causes problems and one of the symptoms for low cortisol/adrenal issues is fainting. I have had panic attacks and it feels like my throat is closing up and I have had heart palpitations as well. I know thyroid can do that but my thyroid is so perfectly fine cause that is the one thing that every doctor tested. I will cross my fingers for you!Paula
    Paula1849 5 Replies Flag this Response
  • Dear Amanda88:Just so you and others know, MonoNucleosis or the Epstein Barr Virus (EBV) is a trigger for 8 different cancers. One of them is Hodgkins Lymphoma. My daughter had this about 1.5-2 years after an exceptionally horrible bout with infectious Mono! Hodgkins lymphoma is curable, affects people mainly between the ages of 16-32-ish. In women I've noticed they tend to get tumors in lymph nodes in the neck, but many get them in the mediastinal area (center of chest) and end up with later stage of the disease because it's harder to catch. Main symptoms are weight loss, anemia, hair loss, nightmares, seriously ITCHY SKIN and nothing gets rid of it, nothing except chemo, pale skin (due to anemia), circles under eyes, swollen hardened and stable(not movable) lymph nodes in sides of neck, under arms in pits or groin, or chest (need a PET/CT scan to find them all), swollen spleen and / or liver, fatigue, sore throat etc.. You can find everything you need to know about any immune (blood or bone related) cancers at LLS.ORG or the Leukemia and lymphoma society. I hope this helps. If you find you do have lymphoma feel free to get ahold of me for support. My daughter had stage 2 nodular sclerosing hodgkins and is six years in remission. She did six months of grueling chemo but survived ! Good luck with your health concerns. Best regards: Sintek.I'm a 26 year old female and I have been feeling sick for over a year now. It began with fatigue and my heart beating in a very strange way. I had an episode where I felt my heart beating very hard and out of rythem, it was like it was seized up in a vice or something for a few seconds and my vision went black and I felt I would pass out then with a great big deep breath I recovered. I had these episodes several times and they got milder but I saw a cardiologist anyway and had several tests done (echo, stress test, several ekgs) and my heart checked out fine. By this time I was having more symptoms but my cardiologist was not interested in those. I began to have a strange feeling of being very heavy all over, felt like I was being pushed on by someone constantly, I developed swollen lymph nodes, I was so desperately thirsty all the time, Low fever, decreased appetite, weight loss (10lbs), sweating, and mood swings. One night after a larger meal than I was used to eating at the time my throat began to feel very tight and this feeling continues all the way down the front of my body and I began uncontrollably shaking and felt very cold, but registered no fever, fed up with ER visits by this time I took Ibprophin and waited to see and in a few minutes I stopped shaking. The next visit to the doctor diagnosed me with mononucleosis and the doctor told me time was the only treatment. I began to improve, gain weight, and feel almost normal with exception of some fatigue, spleen swelling, and the occasional mild heart palpitation episode. Recently the feeling of heaviness in my muscles has returned now accompanied by some dizziness. Sometimes the heaviness is severe and others my muscles, particularly my legs, feel week or like I have recently had bad muscle cramps the night before. Sometimes my head also feels like it is pressurized but not painful like a headache. My lymph nodes and spleen also feel swollen again. I have been seeing an infectious disease specialist and had tests for my immune system and regular blood workups that look good. I have been feeling sick off and on for over a year now, could this really all be from mono?
    sinnie4u 1 Replies Flag this Response
  • Perhaps have yourself checked out for Lyme disease. A bite from a tick transmits allllll kinds of odd viruses.
    pojub1 3 Replies Flag this Response
  • I would suggest you look up the symptoms of Black Mold Toxicity as the symptoms and them some that you are describing are similar to what I experienced. I found it up in my attic and took care of this horrible mycotoxin that most doctors are for the most part unaware of how this, and how ill it can make you. It is called Stachybotrus Chatarum. I was misdiagnos` are multiple. Since I took care of this problem, my pets and myself have improved to optimal health.
    AndreaD 1 Replies Flag this Response
  • No I haven't thought of that, it's a good idea though. Thank you!
    amanda88 16 Replies Flag this Response
  • Thank you so much for taking the time to give me all this helpful information! That is good to know especially because none of the doctors I've seen have ever mentioned this to me. I'm hoping to get feeling better soon but now I know I should make sure to keep getting regular checkups and blood work. I'm also happy to hear your daughter has recovered . Thanks for your help.Amanda
    amanda88 16 Replies Flag this Response
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