Discussions By Condition: I cannot get a diagnosis.

Heart? Lungs? neurological???Problem

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: bach1056
  • March 8, 2007
  • 00:45 AM

I just got home from the hospital and the doctors can not agree if I had congestive heart failure or just my copd and asthma attack. I had 12 liters of fluid taking out of me in 2 days. I couldn't barely breath, I was soo swollen and up to this point I was fatigued,can;'t sleep,use a c-pap still wasn;t doing it for me toward the time I went in to Hospital I only could sit straight up to rest. One doc said it was asthma causing this fluid retention and inflammed lung lining and body others said Heart.
EKG was fine. Blood work didn't show heart attack or lower whatever the doc in ER said.
This is the second time in 2 yrs this happened. Also, years back I was diagnoised with POTS. Postural Orthostatic Tychardia Syndrome. And I recent went from taking paxil 25cr mg to zoloft 50mg. THIS is when the breathing problem began,it started off with having a hard time breathing when laying down...not too bad..then grew over time in 2-3 weeks to the hospital visit. Any ideas!!HELP!

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4 Replies:

  • Yah...start by finding the best cardiologist you can, and have yourself fully checked out. Also a pulmonary speciallist.12 liters of fluid is an enormous amount. I'll bet you had a hard time breathing, if you were building up all that fluid. My best advice is to do some research and find the best specialists you can. Emergency room doctors are people skilled in saving lives. But they are not long haul specialists.That experience just sounds horrible. I hope you don't ever go through it again. Wish I had something more concrete to offer. But this one is just out of my knowledge base.Good luck,Shula
    Anonymous 42789 Replies Flag this Response
  • Thanks Shula for your concern. It is really nice not feeling all alone.It was specialists who ended up not knowing what happened and this is at a Hospital rated in the 30's for heart in the country. It is considered best in cardiac for many many states! They say I am a puzzling case....because they at least remembered me from the first hospital stay that lasted 2 months. that time I got a 5" pocket of blood in my lung lining and they had to drain that out and all my usual inflamation and then a staff infection in bladder.liver and lung pocket. They told my daugthers to come say their goodbyes. I am glad it wasn't my goodbye these past 2 times.However, I just do not get this and I am getting tired searching for doctors...I moved from WI to FL for these doctors. Not sure where to go anymore.
    Anonymous 42789 Replies Flag this Response
  • Please, do try to find a very good Chinese accupuncturist. Trying to find the answer in a realm (normal, American style medicine) when the specialists are all confused, is like the old story of the person looking for their lost keys under the street lamp...someone comes up and offers to help, and asks where he lost the keys, and he points out into the dark. "Then why are you looking here?""Because this is where the light is."You can allow the speciallists to continue trying to figure it out, but in the mean time, go alternative! But don't go on your own. Find someone who will take a whole different approach than the "heart, lungs, neuro" model. Someone who will look at the whole body of you.There must be a kind of strength in you, to have survived this twice. I assume it is still going strong. Whatever is that strength, a wholistic Chinese doctor might be able to tap into it to help your body get back in balance.I do wish you the best of luck. Keep posting, and updating. Shula
    Anonymous 42789 Replies Flag this Response
  • Please do not listen to anything Shula or Acuann tell you. My sister just passed away because Shula and Acuann told her that her doctor was wrong and she did not have a serious condition. Acuann even told her to get acupuncture to get healed. These people are going to be investigated for practicing medicine without a license. Shula and Acuann are specifically wanted in connection with my sisters homocide. Thats right homocide. If she would have listened to her doctor instead of these internet quacks she would still be here today. Rest assured I will do everything in my power to put these two behind bars and shut this website down for good.
    Anonymous 42789 Replies Flag this Response
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