Discussions By Condition: I cannot get a diagnosis.

heart abnormalities and pic of skin hyperpigmentation ive developed

Posted In: I cannot get a diagnosis. 7 Replies
  • Posted By: taniaaust1
  • June 27, 2011
  • 02:56 AM

I still have the patch of skin discolouration I developed a couple of months or so ago. My doctor who is also wondering what it is too (cortiosteriod cream didnt work on it), said I should of asked my specialist about it but we were too busy discussing other medical issues I have and this being a wee little thing, I didnt bother to ask him. I have read that skin hyperpigmentation can be a harmless thing or can coexist with other medical conditions.

Im wondering if this looks like what anyone has if so what other health condition did it appear in for them. (im wondering is this due to PCOS??? I do have PCOS but dont know if they get brown patches in this place like this? My gyno previously looked for brown patches on my body due to the PCOS but looked for them under my breasts where he said they commonly occur.. i think he said something about it appearing in skin creases??).

Ive also heard addisons disease hyperpigmentation can appear in creases (I dont think I have addisons but my cortisol is out of normal range and low).. I are well tanned (my skin in the pic appears light due to the camera flash). Anyone has any comments on this hyperpigmentation?


http://i1190.photobucket.com/albums/z458/taniaaust1/hyperpigmentationonmyleg-footcrease.jpg (as I said.. its not too bad but just is there.. see the top of my right foot just above ankle). Note.. it doesnt itch.
..........

My second question is my last echocardiogram showed up minor heart abnormalities. I have mild Tricuspid regurgitation along with mild mitral regurgitation (leaky heart valves) .. (along with some hardening of the arteries starting to happen). (doctor and cardiologist isnt worried about all these issues as they are mild). I dont think these issues appeared on my last echocardiogram I had several years ago.

Im wondering if anyone can tell me how likely that is to be indicating that I could have a MVP? The other causes I could find for this I dont have. (I have ME and MVPs are meant to be common in that).

Im also concerned as wikipedia said that Mitral regurgitation has an effect on the BP and gets better some when BP is down and gets worst when its up. http://en.wikipedia.org/wiki/Mitral_regurgitation

My BP due to my orthostatic issues (dysautonomia) skyrockets when Im up on my feet. As the echo got done (I think? I cant quite remember but I assume) when I was laying down and my BP is low then.. Im concerned now what is going on with my heart and these issues when my BP goes into an orthostatic reaction and goes up sky high eg my BP goes up to 138/156 ..
Could these heart valve issues which were shown when my BP was low, then be going very severe when my BP goes up??????

Ive no idea where on earth I could find someone who specialises in both orthostatic issues and heart issues together to give me answers on this.. (I get collapses but I think they are caused by my POTS .. one of my specialists thou thinks I have epilepsy causing the collapses (unconsciousness) and keeps sending me for EEGs.. i have to have another one done)

How worried should I be?. Im 40.

Reply Flag this Discussion

7 Replies:

  • Hello taniaaust1,1) Are you sure that you have skin hyperpigmentation? Is it official diagnosis given by your dermatologist doctor? Or just hypothesis? If I look at the picture it seems to me that this may be something like inner capillary injury (damage) under the skin, and less possible variant = may be fungus. I'm not sure, it's difficult to see all details in the photo, but definitely, this is not eczema, psoriasis, or anything like this so that is why steroid cream did not work.2) If you want I can give you my diagnostics regarding your heart problem, and I also can say what can be cured easily.If you have blood pressure & arteries problem too (="some hardening of the arteries starting to happen"), my supposition about capillary injury is going to be more likely.
    alltimatehelp 128 Replies Flag this Response
  • I myself have called it some kind of skin hyperpigmentation as it is discolouration for some reason and if it cant be called that, I wouldnt have a clue what to call it. What would you call it? I havent seen a dermatoligist as its such a tiny minor thing so only have asked my normal doctor about it when at an appointment for something else, who said he didnt have a clue what that is. He too said he didnt think it was eczema or dermatitis (but still suggested I try the strong cortisteriod cream which failed). Possible fungus? do you think I should try using some Clotrimazole cream then on it? I have that currently at home for the thrush issues I occassionally get. If it was injury like bruise (which was my first thought when I first saw it for the first couple of weeks).. but it would of cleared up and not be stayed there for past couple of mths if it was just a bruise. After this time, it appears to be stable and not something which is just going to go. Would inner capilitary damage be a problem which dont soon heal itself?? ............... If you want I can give you my diagnostics regarding your heart problem, and I also can say what can be cured easily. Please do ... is there anything else you need to know to do so? I dont mind sharing my personal medical stuff here at all if you need to know anything more.
    taniaaust1 2267 Replies Flag this Response
  • Hi. Actually I have experience in diagnosing of most common skin disorders, but there are cases when it's difficult to make conclusion based on the photos observation. I'm not sure that it is a fungus exactly, it's just one of the possible options."but still suggested I try the strong cortisteriod cream which failed" = actually, a hormone steroid cream have very quick effect, especially "strong" cream (I mean class3-1, something like mometasone furoate, betamethasone dipropionate, clobetasol propionate, etc.; usual hydrocortisone is very weak). It takes about several days to eliminate a very bad skin disease manifestation with such cream. If it doesnt work after a week of everyday usage, it's not reasonable to continue. Please, be careful! "Strong" topical steroid creams have very bad side effects: for example, you may face a skin atrophy problem when using strong steroid cream too long."Possible fungus? do you think I should try using some Clotrimazole cream then on it?" = It depends. Some kind of fungus cannot be cured by Clotrimazole. Although Clotrimazole is relatively safe for trying, I would recommend you to confirm the diagnosis before.And please note, sometimes it requires very long time to remove fungus spots. For example, last case of the treatment of my patient's Tinea versicolor (Dermatomycosis furfuracea) required about 4 weeks 2 times per day applying antifungal cream Terbinafine hydrochloride (Lamisil) to notice that spots are disappearing, while Ketoconazole (Nizoral) was not helpful at all for this case. BTW, the hyperpigmentation/discoloration is very common for fungus problem."Would inner capilitary damage be a problem which dont soon heal itself?" = may be you are right, but your case is so strange..."Please do ... is there anything else you need to know to do so? I dont mind sharing my personal medical stuff here at all if you need to know anything more." =That is why I prefer to communicate by email. I agree it's a personal information and I think it's not reasonable to post such kind of information at the forum.I can do it in two ways. First = short description with possible variants of diagnosis. Second = more definite, but it requires to answer my questionnaire about your particular medical conditions/symptoms (e.g., about allergies, traumas, glucose level, etc.). For both variants it is necessary to know your main biometrical parameters: DOB, weight, height, normal BP numbers. You can send me this information on my email box or by PM.
    alltimatehelp 128 Replies Flag this Response
  • "but still suggested I try the strong cortisteriod cream which failed" = actually, a hormone steroid cream have very quick effect, especially "strong" cream (I mean class3-1, something like mometasone furoate, betamethasone dipropionate, clobetasol propionate, etc.; usual hydrocortisone is very weak). It takes about several days to eliminate a very bad skin disease manifestation with such cream. If it doesnt work after a week of everyday usage, it's not reasonable to continue. Please, be careful! "Strong" topical steroid creams have very bad side effects: for example, you may face a skin atrophy problem when using strong steroid cream too long. nods yeah.. the doctor gave me warnings when he prescribed it eg dont use on face at all, dont use for longer then specified time. Dont use it more then twice daily, use in little amounts, dont put it anywhere else etc. He told me to use it for up to 14 days at the max and to make sure I dont use for longer. It was betamethasone dipropionate I tried on it. Although Clotrimazole is relatively safe for trying, I would recommend you to confirm the diagnosis before. It will have to wait then, due to my other medical illnesses my health is so bad I cant drive and can only handle without getting a lot iller getting another to take me to medical appointments or other necessary things twice a week. (I had 5 different medical appointments in the matter of two weeks the other day, its exhausting.. Im just focusing on trying to sort out the health stuff which is really incapatitating me.. currently focusing on the sleep carardian rhythm issues, getting my diet for the hyperinsulinemia right, physio for my frozen shoulder and stabilising my mental health (dealing with Aspergers (diagnosed) and PMDD (diagnosed) possibly PTSD which if I do have is currently undiagnosed). There are other urgent things I need to deal with healthwise (POTS (which i definately have but I have no one medically helping me with it as I cant find a doctor who even knows what it is), low coritsol (i think i may have adrenal insufficiancy (but current doctors only believe in Addisons).. i need to see someone who specialises in cortisol issues, my severely disregulated BP issues, very possible mold issue and I need a new GP as my current one dont want me as a patient as Ive got too many complex health issues he's unable to deal with.. seriously doctors basically want to run when they see me. Ive had other doctors put on my medical file they dont wish to have me for a patient). That wee rash is real low down on the sort out list as far as going to medical specialists go hence just trying to find out here seeing once again general doctor was no use. (In the 3 years ive had this one, there is not one thing he's managed to help me with other then do the scripts (other then that cream) my other specialists tell him to do and kept telling me every time I have an issue of anything to "ask your specialists". My specialists are iall in various places in the city so actually a long way for me to travel from the country area (no specialists here) which I keep having to do. I feel so frustrated with this all. First = short description with possible variants of diagnosis. Second = more definite, but it requires to answer my questionnaire about your particular medical conditions/symptoms (e.g., about allergies, traumas, glucose level, etc.). ok medical questionaire.. be prepared that there is a heap there in my case (my medical stuff covers 3 whole files at the hospital). Ive had a lot of tests showing a lot of uncommon things. I havent tried to pm anyone here before (actually i didnt even know one could do that) I'll try to pm you here answering you and then you can send me your medical questionaire normal BP numbers There is no "normal" BP numbers to give you as mine alters majoring orthostatically. An old endocrinologist specialist who was doing studies (I was a participant) once told me I have the worst dysregulated BP he's ever come across. He didnt suggest anything to treat it (I think he didnt know what to do about my BP at all). thanks
    taniaaust1 2267 Replies Flag this Response
  • allmatehelp .. I sent a friend request to you. I figure that is needed before one can send PMs? (i currently cant see anywhere to contact another by PM throu this site). Are you able to read profiles at this site? It has always come up with the following when Ive tried to do so. taniaaust1, you do not have permission to access this page. This could be due to one of several reasons:If you are trying to post, your account may be awaiting email activation (check your email for instructions) or the administrator may have disabled your account.Your user account may not have sufficient privileges to access this page. Are you trying to edit someone else's post, access administrative features or some other privileged system? anyone know why? does it do this to everyone here?
    taniaaust1 2267 Replies Flag this Response
  • "It was betamethasone dipropionate I tried on it."= On my opinion it's useless to apply this anymore. As I said before, if you use "strong" steroid topically you will notice effect within several days. If you see no effect after a week, it has no sense to apply it further. It's not necessary to wait 14 days, this is only for a worst case, for your case I think a week is enough to estimate this steroide tolerance."There are other urgent things I need to deal with "= Yes, I agree. If the spot issue is the minor thing and does not bother you significantly, you should concentrate your efforts on the major health issues. I wonder, you are so ill, but you always reply anybody at this forum and trying to help everyone. You are very kind person, my respect to you. I'm so sorry to read about your bad health, I would like to help you to get your health better."There is no "normal" BP numbers to give you as mine alters majoring orthostatically. An old endocrinologist specialist who was doing studies (I was a participant) once told me I have the worst dysregulated BP he's ever come across. He didnt suggest anything to treat it (I think he didnt know what to do about my BP at all)."= Anyway it's also a valuable information. The description of your BP's behaviour can be helpful for diagnostics of overall health status."ok medical questionaire.. be prepared that there is a heap there in my case (my medical stuff covers 3 whole files at the hospital). Ive had a lot of tests showing a lot of uncommon things."= It's not necessary to give me all medical information. Usually I need only a small part of symptoms and medical tests results, but my questions will be driven by your answers. For example, I send you first series of my questions and after analyzing your answers I will form another series of my questions (on purposes) taking into account your previous answers and so on. I don't have the ready completely-established questionnaire for all patients, my method is very adaptive and based on my rich practical experience."Are you able to read profiles at this site? It has always come up with the following when Ive tried to do so."= Yes, I see the same message too. I can not read users profiles, I always get this message. I don't know why but something wrong with this forum operation. Sometimes I even cannot post a simple message, it goes to moderator and disappearing."allmatehelp .. I sent a friend request to you. I figure that is needed before one can send PMs? (i currently cant see anywhere to contact another by PM throu this site)."= I received your request and accepted it. I also sent you my friendship request.I have added you in my friends list (Contacts & Friends).I found PM menu in my profile (User Control Panel), but when I try to start PM (PM Users) at popup window, I get the following message (vBulletin Message):"Your administrator has disabled private messaging."You can send me email. My email address is the same as my user name here on this forum, at hotmail.
    alltimatehelp 128 Replies Flag this Response
  • hi altimatehelp I've sent you mail. I crashed with the ME so havent been here.. Im fine now but had a seizure of some kind this morning. (I think due to the ME.. I'd like to know thou what kind of seizure im having (ive described it in the email), its been about 4mths since I last had one of these but this one I think I thrashed about more. The hyperpigmentation.. Ive been researching and are thinking it probably is Acnthosis nigricans http://en.wikipedia.org/wiki/Acanthosis_nigricans due which common cause of it is insulin resistance (along with cancer can also be a common cause). If it is that and being caused by my hyperinsulinemia.. I wonder why it only appeared while Ive been on low carb diet for quite a while (so my insulin is being controlled) and not before when my insulin was going high all the time.
    taniaaust1 2267 Replies Flag this Response
Thanks! A moderator will review your post and it will be live within the next 24 hours.