Discussions By Condition: I cannot get a diagnosis.


Posted In: I cannot get a diagnosis. 3 Replies
  • Posted By: aussie_gal25
  • April 21, 2009
  • 07:47 AM

ok so this is about my step sister, she is 7 years old. She has this weird thing she does in her sleep, she has been doing it since she was a toddler and i know of a 21 year old man who also does this. In the middle of the night she sits on the bed continously banging her head onto the bed. She says she is not aware of doing it and we are not sure if it's a habbit of hers or if there is something wrong with her. It is quite annoying and has kept my family up at night for years.

She has been to the Childrens hospital they thought she might be having some form of epilepsy in her sleep but that's not the case. If anyone has any information on this it would be greatly appreciated.

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3 Replies:

  • Have they done a sleep study? Or seen a neurologist (preferably one who specializes in movement disorders).
    mpalmer118 1 Replies Flag this Response
  • It does sound like epilepsy; there is a very rare form that is very difficult to diagnose--but, if she has been in the children's hospital, I would think they would have checked for it. The children need to have a video on them all night when they are sleeping; a neurologist who specializes in the rare form is able to diagnose from observations. It does not always come through on the diagnostic data. I forget the name, but it was on "Mysterious Diagnosis" on tv. The child in that case would vomit at night.
    Monsterlove 2921 Replies Flag this Response
  • I'm a 22 yo male and I've been banging my head at night since I was little. I've read up a little on it and they think it's a self-soothing mechanism. Most of the time I don't bang my head anymore, but sometimes when I'm incredibly tired I'll find myself doing it and it will help me fall asleep. I'm not autistic and I didn't suffer any brain damage even after years of doing it, so it my case it really was not an issue. I can't guarantee that your step-sister doesn't have a medical issue but just wanted to share my story as an alternative explanation.
    tpno2005 1 Replies Flag this Response
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