Discussions By Condition: I cannot get a diagnosis.

Headaches, and weakness

Posted In: I cannot get a diagnosis. 4 Replies
  • Posted By: xarmyangel26
  • October 10, 2008
  • 03:46 PM

I am a 26 year old single mother with two kids. I started having problems in July of 2007. I got a horrible horrible headache, went to the ER and they found out I had viral Meningitis. Ever since then I have had a headache every single day. Some days it is a very mild pain that is barely noticeable, other days it feels like my head is going to explode. Also, last August 2007, I had what some people think to be a mini-stroke. I got a really sudden sharp pain in my head and got really dizzy, I was cooking dinner for my kids and was trying to tell them to go to the table to eat, but I could not get the words to come out right. Then the left side of my body felt really weak and tingling. I did not go to the doctor because it got better after about 2 hours, well I ended up having to do physical therapy and use a walker to help me walk correctly again.
Now again just this past week, I had to be rushed to the hospital because I was at work and the left side of my body went almost completely numb, I could barely move my arm, and had extreme difficulty walking. I was admitted to the hospital they did a CT and MRI of my brain and EEG. All tests came back normal. They did not tell me what any of my blood work showed, just said everything looked normal. They released me from the hospital, however, I still have difficulty walking due to weakness in my left leg, my left arm is still weak as well.
ALong with the headaches I have I also have vision problems where I will see black spots or one eye goes almost completely black. I also have trouble sleeping. I have tingling in my arms and legs, pain in my neck and back.
I was wondering if anyone out there would have any ideas what I could asked to be tested for? As far as I know there are serveral things that run in my family that could possibly have these symptoms: MS, thyroid problems, some cancers, fibromyalgia, and thats all I know for sure. If anyone has any ideas, please let me know, I would greatly appreciate it.

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4 Replies:

  • What is ER and what kind of test did you take to detect viral meningitis?
    Anonymous 42,789 Replies
    • October 11, 2008
    • 09:03 PM
    • 0
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  • Have you been to a doctor or just seen in the ER for this? I would go to a neurologist and see if they can figure out what is going on with you.
    SpineGirl 64 Replies
    • October 11, 2008
    • 11:57 PM
    • 0
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  • It sounds like a severe migraine headache. I had an episode a few years ago that sounds very much like your symptoms. Left side of my body went numb and I went blind in my left side. Strange thing is, even though it's called a migraine headache some of the time your head actually doesn't hurt. I don't know what to tell you about the lingering weakness, but could be left overs from being numb. Hopefully you will get better. Ask your doctor about imitrex. It's kind of an older medicine but comes in many forms such as; tablet, nose spray, and injections. It's worth a try, feel better soon.
    missbarbiegal23 6 Replies
    • October 12, 2008
    • 00:13 AM
    • 0
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  • Meningitis, trouble sleeping, confusion, trouble with speech, weakness and the list goes on for a long ways... I went blind for a week (but my testing was normal) I had headaches for 8 years nearly every day. My testing was normal. I had trouble finding the words I needed to talk correctly and to write and read, but my testing was normal. I couldn't sleep, but no tests helped with any answers. Yep, they did think I had MS, FMS, CFS, Lupus and about a zillion other things which all proved to be wrong diagnoses. After 16 years of that and much, much more, I finally went to a qualified Lyme Doctor a "LLMD" Lyme Literate Medical Doctor... and he tested at a specialty lab, I have Lyme Disease, Babesia (another tick borne disease) and immune issues because lyme wore out my body systems. Literally, Lyme can attach ALL your body systems and organs. Please look at Lyme Disease as a possibility.You have seen what the testing from regular labs get you. If you have something a bit "different" they don't help much. Check out these sites for information and if you even see anything that sounds close to what you are dealing with, join a Lyme Disease Support Group Forum. You will find out pretty fast if this has any merit. LINKS:Lyme Disease NetworkLyme Disease FoundationLyme Disease Association Start there... more information can't hurt... GOOD LUCK, I hope you find answers. If you want to email me, let me know, I will give you my email so I can help you find resources and support close to you.
    Anonymous 42,789 Replies
    • October 12, 2008
    • 05:02 AM
    • 0
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